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Pain control
Hi Everyone, I'm new to the forums and posted about a week ago. My biopsies were inconclusive and the cancer grew in my neck for a year prior to selective neck dissection which basically removed everything but internal carotid. Surgeon said I had high 80 s chance of survival with chemoradiation, but first TORS to remove…
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Peg tube
I've read quite a bit on this forum and was somewhat prepared for the pain after the tonsillectomy which was pretty bad but not the excruciating pain I'm experiencing from the peg tube insertion this morning. About 30 to 40 minutes after the surgery while I was in recovery it felt like somebody hit me in the stomach with a…
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confusion about adjuvant chemothey NPC
My Friend went for his one minth post radiation consultation and he was suppose to get his adjuvant chemo. However after having consultaion with the ent, radiation and chemo Doctors, they had different opinions. The Ent told us there no need for adjuvent chemo since it's stage 2 and the radiation doctor said can chose if…
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Peg tube and trachea device
Hello all: A couple of weeks ago I was admitted to cooper with a laryngosc and couple biopsys. I was sent home with some still swelling of mouth and throats while on steroids and amoxacillin. Still had trouble breathing. My last radiation treatment was march 31st of this year. Two weeks ago I had trouble breathing and was…
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Ned!!!!!
had scan on Tuesday and saw doc today.the scan was NED!! It has been tough as heck! But I did it and am very pleased with the results. Yipppeeeee
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1 month post treatment SCC
SO, I am right at 1 month out of treatment (35 radiation with Urbitux - 6 times). What I would really like to hear from others of this same situation is about when did you receive some taste and saliva back. I have no feeding tube and can get down booste shakes. Taking the Boost Very High Calorie (530) to maintain and gain…
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Legislative Alert on Agent Orange and Throat Cancer
Consideration is now being given to moving throat cancer into the Agent Orange presumptive categories by the Senate Veterans Affairs Committee. Your immediate support is needed. My husband, a Nam vet who was disabled by surgeries and treatments for tonsil cancer 9 years ago, and I have been contacting Iowa Senators Harkin,…
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Port and PEG procedures on same day?
Hey, this is my first post here. You guys have no idea how happy I was to find this site! SO much information! Thank you!! My husband is diagnosed with Stage IVa base of tongue SCC. He has 2 nodes (level 2 nodes, I think) on the same side of his neck that have spots too. T2N2MO. Anyway, he starts with weekly Erbitux on…
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Mouth Sores Post Treatment
I have HPV-16 Tonsil Cancer, which is in my right tonsil (had a tonsillectomy to remove it), base of tongue on the right side, right neck muscle and right lymph nodes. I had 35 radiation treatments and 2 rounds of Cisplatin. I am now 6 weeks post-treatment and still suffer from mouth sores. They were starting to get better…
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Post treatment checkups
All appears different in Ireland post treatment I’m 12 weeks out of treatment tomorrow and going for C&T scans that my ENT consultant says are just for a base line and not looking for spread. I saw my ENT consultant last week 11 weeks after treatment and will see her every 8 weeks for the first year. All good last week…
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Cancer and fibromyalgia
I have fibromyalgia and just been diagnosed with tonsil cancer. I am wondering if anyone has had to deal with these together. I am scared of pain level. I already have chronic pain, about a 5 to 7 with lyrica and hydrocodone. A lot of my pain is in arms and shoulders. Any advice is appreciated.
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AND HERE IT IS!
Nodes came back clean, and this afternoon my wonderful, wonderful ENT Dr Chan told me, I am considered cancer free, so go out and live a long and happy life. He tried to shake my hand.. hell no, he saved my life, he got a huge hug! Thank You everyone, I was such a total noobie when I first found these boards, and no one…
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Will there ever be quality life again?
Hi All, I finally had surgery for right neck node caused by scc, tors to find primary tomorrow. It's been recommended to have 33 radiation treatments and Cisplatin. I had neck dissection on July 25/17 ( the node's been there since July 2016, inconclusive biopsies, now stage III HPV). Left me with swallowing difficulties.…
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Need help for NPC
A close friend of mine, who is in his early fifites, was recently diagnosed with late stage 2 NPC. He has completed 7 weeks of radiation and concurrent CT which was given two days after the first radiation session; 60 mg of cisplatin for the first three weeks, 50 mg cisplatin for week 4 and 5, 40 mg for week 6 and 7. His…
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Late radiation complication -slow healing mouth ulcers
I was diagnosed with T2N2M0 SCC of tonsil. After the radiotherapy, I has mucositis aa expected. But after about month after the treatment,I had big and deep ulcers where the areas that received the highest doses of radiation.They healed very slowly (more than a year), with alot of scar tissue. I have still mouth sores. I…
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neck recession
whose had one, I have some questions!
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10 weeks out of treatment
Had my first appointment with my ENT Consultant today 10 weeks out of treatment scope shows no tumour. Re tested hearing and the Cisplatin has caused some hearing loss. I will be getting checked every 8 weeks for the first year and they want a baseline scan in a few weeks but other than that Im done I think.
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IS IT REALLY GONE?
Had appointment with ENT doctor today. He did a scope down my throat and I could barely wait to hear what he saw. At first he didn't say anything. So I asked if there was any change in size of the cancer at the base of my tongue. Then he said the tumor wasn't there and he didn't see anything. At first, I felt nothing. Not…
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Hi Everybody....
Thought I'd start a new thread cuz the other one is getting too long.... :) . After my 4th infusion of Keytruda, I went on a week long jaunt with girlfriends to the Oregon Coast....felt great the whole trip! I wish I trusted a drug that doesn't make me suffer....preferably just a little suffering, like tired for 3 days,…
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Water coming out the nose while swallowing
Can it be fixes? What ever I drink comes out my nose while trying to swallow again after throat cancer. Will this also happen with food?
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NEW TO THIS FORUM
Hello, everyone. First off, let me say that I have read every topic on head and neck cancer on this site. Thank you so much for your insight and personal experiences with this form of cancer. In July 2016 I was operated on for cancer in my neck (left side). The SCC cancer was involved in my skin, large salivary gland,…
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Mucous 3 years on
has anyone suffered with mucous and cough three years after treatment. I'm so used to coughing and mucous it's become routine and I think nothing of it. That's, I did, until a ct scan showed a shadow on the top of my lung. I went for a bowel scan but they did chest abdomen and bowel. I had bowel cancer two years ago, the…
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Thanks from a new member
I came across this site a few days ago researching problems with your teeth after radiation. I wish I would have found it sooner. I found out I had tonsillar squamous cell carcinoma stage 1V in Jan. if 2016. I had a tumor at the base of my tongue and it had spread to one of my lymph nodes. I had no signs other than my…
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On the flip side
Surgery was Thursday, came home friday. Not much pain, sore really is all (Tylenol) I look like something out of a slasher movie... AGHH.. lets cut her head off! 2 - 3 weeks on Pathology report. So fingers crossed!
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My husband's cancer is back (or never really left) - carbo after cisplatin?
my husband completed his initial treatment of cisplatin with concurrent radiation in August of 2016 and his PET in November was clear (NED). His initial experience was very difficult (severe nausea/hospitalization, PEG tube, pneumonia) but he got through it even though he had to be wheeled down for his final radiation…
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Famm flap
Famm flap Hi. I am new to this group. I have received a famm flap and am not to happy. I received it January 2017. I am still on a liquid diet. I have seen several dentists to try to get my bottom partial in. None of them could help me because my famm flap has been sewn in the area where a tooth would have resided. In…