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Boost and more Boost
Hi everyone,Im going in today and have my feeding tube removed.It has a fungus or bacteria build up in it.Im still not eating much but we bought some Boost high calorie on line.I should mention that im 7 months post.What im wondering is can i maintain weight if im able to get enough calories with it.
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Pain gone and now returning
Sorry for any mistakes made, but my english is not very good...My husband ended radiation and chemo treatment 3 months ago. He has been fine, with no pain since more or less 2 weeks after that. Now, when he swallows his throat hurts. Doctor says there his no visible reason for the pain. Is it normal?
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Reoccurrence in lymph node
Does anyone have any experience with occurrence after rads and chemo? My husband had tonsil cancer HPV + and finished treatment in October of last year. There was node involvement so but no distant disease. His 3 month PET was NED but they did find he had a serious pneumonia during that scan that went undetected and he had…
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Bump on inside of lip
Hi All - I have a scare that I am really quite concerned about and was looking for information that might help put me at ease. I have been an on and off dipper (chewing tobacco) user for 6-7 years, I'm 27 years old. It was actually to the point where I had stopped for a long time (~6 months) and then relapsed a couple of…
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ROLL CALL 2017 - UPDATED AUGUST 11, 2017 (CLOSED)
ROLL CALL 2017 5th Updated August 11, 2017 All H&N members are welcome! Roll Call is dedicated to the memory of HAWVET (JOHNNY) who’s curiosity to know and to share a little bit about members of the Head and Neck Form inspired him to start and run this thread (2008 thru 2014). Thank You. First off, please feel free to…
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So worried foreigner... need an advice
Hello everyone! I've been in a terrible crisis in last couple of days. Can't sleep, can't work, can't think normally. I have a feeling I'm doomed, somehow. Let me tell you my story. I am an young adult, almost 27 years old but i've made a terrible mistake in my life, unfortunately. Unfortunately, once again, I've…
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Feeding tube bleeding
Hi, I have been taking care of my mom who has been on an uphill battle with tongue cancer. She has had a feeding tube for the past five months. She is in constant pain in the area directly around the entrance into her body. She has always had some stuff (some blood and other discharge) but tonight when she changed the…
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new here
Hi everyone, I am new here and am so grateful to have found this forum with so many wonderful people. I was diagnosed with squamous cell carcinoma of the tongue on March 16th of this year. Towards the end of January I found a spot on my tongue that I thought was a canker sore. After giving it a couple of weeks and it not…
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Well..
Not NED. The Tumor has gone (yay) but the lymph nodes still light up like a christmas tree, so I'm looking at surgery. 2 options, - wait and see, or cut them out. I'm not fond of wandering around with an axe over my head, so if the Tumor board agrees on monday, we'll be removing them.
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MEC of tongue, looking for hope and guidance
Hello all, My boyfriend of 3 years was recently diagnosed with a MEC of salivary gland, intermediate grade. I am looking for some advice, guidance, and hope at this time. I have been reading a lot of these discussion boards and have found them very helpful. My boyfriend had a 15.5 hour surgery on 08/1, in which the base of…
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ear pain & mucus
Just had my 1st radiation treatment. About one hour later started to have extreme ear pain & lots more mucus then usual - thought this might happen after more treatments. Anyone else have this happen with only one treatment?
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Is this normal procedure?
Hello, everyone. My husband has BOT (base of tongue) cancer and is in his 5th week of 7 weeks of radiation, 5 days a week. He is doing fairly well - usual side effects - sore throat, no taste, fatigue, mucous, etc. He sees the Radiation Oncology Dr. once a week after his radiation treatment. At this checkup, the Dr. always…
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Husband diagnosed Nasal Cavity SCC
I am new here. Please forgive the copy/paste but I don't have the strength to type this out again. Any advice at all is appreciated. ________ For the past year, he has been having severe nose bleeds. For the past 8 months he has seen multiple Dr's without answer. His last Dr. biopsied his nose (in May) and said he did not…
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Pain following oral radiation
Hello everyone. I'm new on this chat board and am need of advice.. My sister finished 6 weeks of grueling oral radiation 3 months ago . She no longer has sores/ulcers or any dental issues but is still experiencing excruiating pain in her mouth. Has anyone else gone through this? How long does the pain last? Thank you!
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pain following oral radiation
Hello everyone. My sister had 6 weeks of daily oral radiation that ended on April 2017. 3 months later,with no sores,ulcers or dental problems she is still complaining of severe pain .Has anyone else experienced this and how long does the pain last? Thank you!
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newbie to radiation treatment
Hi - I will be starting radiation next week. I have tonsil cancer on one side & my doctor wants to do radiation on each side, although no indication of cancer to the other side. Is this the norm? Anyone else have this two sided treatment? Thanks for any help!
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First Week of Treatment Down
Well, I started my treatment last week for SCC base of the tongue (stage 3, approx .5" square tumor, HPV+ with multiple nodes on both sides of neck, 47yrs old, no drinking, no smoking). Doing the 3 mega doses of chemo (Cisplatin) with daily radiation to equal 35. Day one of chemo was nightmare. I had met several people who…
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Dry Mouth 5 Weeks Out
Hello! I haven't been on here in a while. My husband is almost 6 weeks out of treatmet and doing very well. His one month check-up was great and he is healing nicely. He is eating just about everything. He is noticing some tightness in his jaw so I told him to be sure to stretch it every day. One thing he is just starting…
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Osteoradionecrosis
I've come on here to post a new thread regarding osteonecrosis as there only seems to be older stuff in the hope that I can get some recent information. After having squamous cell carcinoma (cancer in tonsil) I have been living with osteoradionecrosis of right lower jaw. I have had 3 debridements but the bone is still…
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Flouride gels
I quit using the Colgate gel for my trays because my teeth darkened a lot! my dentist at home told me to try OralB NeutraCare. Has anyone tried this gel? I am looking for one that doesn't stain teeth and that my insurance would cover.
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NED, NED, NED!! What a lovely name!
My husband's scan showed No Evidence of Disease!!! We are over the moon! Thanks for all of the prayers and good vibes. It all helps! What a gift we have been given.
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How long does the pain last from treatment?
My husband is 2 weeks post treatment. What are your personal experiences with how long the pain lasted? One of his nurses seemed to think he might need pain meds for maybe another 2 weeks.