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Anyone have success using "Thick & Easy" or "Thick-it" ?
I want to travel (flying) but eating without access to a kitchen is a big problem. Anyone have success using "Thick & Easy" or with "Thick-it"? I can not figure out a way to use these products. I have tried both products. Everything turns nasty. Nasty to look at andnasty to drink. It is hard to disolve. I've tried warming…
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New here an looking for help
I have had 5 surgeries on my parotid gland. The last 2 dealing with ex pleomorphic adenoma. I was told with the 4th surgery the turmor would be removed an radiation would take care of any "spillage". 6 months later thr turmor returned, thus time around the facial nerve. This happened in 2015 oct [radiation], and 2016…
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Suspicious red spot in mouth
I am closing in on 4 years NED, and suddenly I have been having bad tongue reactions to certain foods, then last week I starting having real bad post nasal drip and sore throat. This morning I see a dark red spot in side my mouth, on my back right cheek, it wasn't there yesterday. I have a doctor's appoinment in 2 days,…
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Everything Has Changed
Hi Everyone, I have piped in & you guys helped Me soooooo much. Unfortunately, I felt luck at the beginning of Recovery. My Chemo Dr treated Me like a "Test Rat". I was having an amazing recovery, unlike others. During treatment had every side effect. My mouth inside was so burned, so filled with sores, I could not even…
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Refusing Radiation
My husband just found out he has cancer a week ago. They are searching for the primary. In the meantime, he has a friend with head and neck cancer who told him the horrors of radiation and that he should just have surgery. While our cancer team has yet to give us his cancer plan my husband is already totally against…
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Clear for going on 7 years, but I'm back...
First a little history: In April of 2010 I was diagnosed with SCC unknown primary with golf ball sized tumor on right neck. i had surgery to include tonsillectomy and 40 or so lymph nodes removed. Pathology showed one tumor with clean margins. Decision was made to not radiate or use chemo, but instead wait and see for the…
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NED
My thanks to the providers of the vast wealth of knowledge reflected on this site. You have certainly made the trip thru recovery much more sane than the treatment phase.
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Tonsillectomy question
anyone out there have an "occult primary" detected after tonsillectomy? If so was additional, more invasive surgury performed afterwards In the area? Thanks for the input any feedback greatly appreciate.
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Thrush, steroids, and acid
Hi all, So this weekend we were blessed with another new symtpom. My husband had another dose of Dexamethasone on Friday via IV along with fluids to make sure we get through the weekend. He also took the pills on Sat. and Sun. During the infusion he was fine and even after he seemed OK. A couple of hours later he began…
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Fatigue in jaw and neck long after TX...
Coming up on 3 years since the chemos and 35 rads for stage 4 base of tongue cancer and metastasis to the right lymph nodes. Obviously my jaw and neck took the brunt of all the rads and now in the last month or so my jaw and neck muscles are feeling quite different. They feel very fatigued, tired and weak. Now numerous…
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Hyperbaric chamber
My Husband is 3 months out and still is experiencing the same pain as day one... (He had SSC on base of tongue... 35 radiation and 5 chemo-cisplatin) Went to the dr. on Thurs, and he believes my husband has "consequential tissue injury" which means his body hasn't healed well and did not keep up with the radiation. (He is…
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major sweats/fatigue post 8 weeks
My husband is 8 weeks post treatment, (7 weeks Rad and Chemo) and suffering greatly, he has been in bed more than not, severe pain in jaw, neck, and sinus. The last three days his bed is so wet you would think a pitcher of water was poured on him. His fatigue is so severe he can barely lift his head to talk to me, anyone…
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In a Quandary: Surgery or No Surgery Before Radiation and Chemo
I'm now facing my 4th battle with oral cancer since 2008. Have had 3 prior partial R glossectomies and a R modified radical neck dissection. In January, I found a swollen lymph node under my chin. The needle biopsy was negative but the surgical biopsy was positive as well a biopsy of small ulcer on floor of my mouth. PET…
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How long does it take for the Erbitux rash to go away?
Hi All, I'm 5 weeks out from my last Erbitux infusion and completed my last Proton radiation 3 weeks ago. My face is still very red from the Erbitux, the acne part of it cleared up easily but my face is so red. If i stay in a completely dark room and stay out of any sunlight it fades a little, but as soon as i go into a…
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Base of Tongue Cancer
Hi all....newly diagnosed with SCC cancer at the tongue base. As I'm sure all of you know, it's almost overwhelming to hear that you've been confirmed as having cancer, but after locating this site and discussion board, I am heartened by the support, information and helpful suggestions that other "cancer folks" offer here.…