-
MOUTH WASH
When I started my radation ,I joined a trial study on different mouth washes,to numb you so you could eat. The study had 3 different washes. I was luckey and the one I got worked.!! It would num my throath about 2hrs. I don"t know if you can get it but it was great. It is doxepin hydrochloride oral solution,usp…
-
Rad/Chemo starts next week
My husband is ready. I am scared. So where I left off was that my husband had stage 1 (T1N0M0) oral tongue cancer that had not spread to any lymph nodes. There was perinueral invasion so we were deciding between careful monitoring and further treatment. On Nov. 19th, we spent 9 hours at doctor's offices at MD Anderson and…
-
Any ideas on What to Eat?
I'm at the end of week three post treatment. I've been living on milk shakes exclusively for a several weeks now. But I'm starting to see a small but noticeable reduction in the pain in my throat and have started experimenting to see what I can eat. So, in the last couple of days, I find I can eat scrambled eggs, Gerber…
-
Physical Therapy?
I was wondering if anyone has had any PT done to help ease the tense muscles on your shoulder from a neck dissection? I was going to ask the doctor about it when I see him next week. Ibuprofen helps some but not that much. I use biofreeze a lot that helps some. But just sitting in the chair watching tv I can feel the…
-
blast from the past!
Hello everyone! It has been SO very long since I've been on here. I had some computer issues, got rid of said computer and now I am accessing thru my iPad. I've missed you all and hope you are all well. So far I'm NED, yay! Please know I never ever go a day without thinking of you all and thankful for all that you did to…
-
Happy Thanksgiving!
Wishing you all a very happy Thanksgiving! I know that I personally have an awful lot to be thankful for this year (and every year!) I am truly thankful for all of my family here on CSN! I hope you all have a great day with friends and family! Love you all!!
-
Not4me
i am a 44 years of age, 6' 2" tall, weigh 205 pounds and had a sore throat, once when I was a kid. I have NEVER been sick so you can only imagine how terrified I was when I heard CANCER. I had what I thought was an ear infection and after 10 days of antibiotic to treat it without any success my wife "made" me go to the…
-
Saw the Oncologist this morning....
damn....this is such a roller coaster ride....I thought I was pretty much done with the carnival ride, and moving into treatment mode. The Oncologist has not seen anything in research that would indicate to him a justification to poison me with chemo with this recurrence. He does want to get a second opinion....first over…
-
Obamacare Who can afford it
Wow I can't believe it but my health care coverage will go from $400.00 a month to $1,200.00 a month with a $7,500 out of pocket deductible next year. I don’t get it but something is wrong with this picture. My Disability and SS with my Wife’s SS puts us over the limit to receive any discount in coverage so we have to pay…
-
Filling for cavity post-radiation
Hi, I am almost two weeks post-radiation and require a filling for a cavity. I have read about needing antibiotics for extensive dental work such as extractions, but haven't seen anything about precautions for a filling. My dentist thinks I shouldn't need any antibiotics. Of course, my radiation oncologist's office isn't…
-
Sudden sensorineural hearing loss
A few weeks ago my husband was fitted with hearing aids and things were GREAT! He was hearing better than he had in years...or at least since the Cisplatin accelerated his hearing loss. He was no longer asking people to repeat everything, no longer leaning in to hear people. The bluetooth directly to his mobile phone was…
-
A big scare...and lessons learned
So the main lesson learned is that you need to transition to real food by mouth S-L-O-W-L-Y. For the past month I've been helping my husband try to eat some foods by mouth again. Mostly I've been doing pureed soups, yogurt, applesauce etc. Well today he took the nurse practitioners that work in his clinic out to lunch for…
-
scan results
Both head & neck and chest CTs were negative. Don't think there will ever come a time that I don't cry for happy when I hear those results. The anxiety is so bottled up and just explodes. Prayers answered thank you all.
-
Damn! The drain hole
from the neck dissection won't quit leaking. It was fine Tues and most of yesterday....then last night when I was getting undressed for bed the cork blew out, and it drenched my camisole....soaked it. I put another bandaid on it, but woke up this morning and my pj's are soaked. Put gauze and tape over it, and it is now…
-
Nasopharynx is....
....clear! Whoo Hoo....Yippie Ki Yi.....Woopie.....Hallaluah....!!!! Dr. called a little while ago with the biopsy results. He took several biopsies of the nasopharynx, all of them were clear. Ended up with 3 nodes with cancer, not just the two that we saw on the PET scan.....one is excapsulated, so that means chemo again…
-
Done with radiation and weekly chemo. [Stage 2 NPC]
With Stage 2 [T2N0M0] NPC, I'm finally done as of yesterday with 35/35 radiation and 6 chemo (240 mg/m2 total). It's been pretty tough, I started taking painkillers a week ago and have been on them ever since. I do not have a PEG, good in some sense, although a part of me wish I had it around as it would make life a bit…
-
Keitter doing a little better
Hi Everone: I got an e-mail from Keitter the Chemo is giving her a good butt kicking but it sounds like she is doing a lot better this week. She also has a lot of her family coming in for the holidays, especially her Mother and Sisters. She said to thank you all for remembering her in your prayers. That’s what family is…
-
Surgery in the books
Well surgery was on the 10th and went as well as could be expected. At least that is word on the street as I was still drooling and staring for several hours after the operation. Medical team rocked and after 8 hours sent me to ICU for some needed rest LOL. Nurses and staff were all so professional making me as comfortable…
-
Submandibular gland swollen
I've searched everywhere trying to find some answer, since my family isn't particularly supportive, they would prefer to bury their heads. Anyways, I am 30 years old, female. About a year ago I noticed a gland on the left side of my throat under my jaw was swollen. i left it alone for a few months, until it started growing…
-
Radiate or not?
We just talked to my husband's doctor about his pathology report. The tumor in the tongue was 1.2 cm at its greatest size and was removed with clean margins. All of the lymph nodes removed from the right side of the neck were not cancerous, which the doc said was huge. The only negative was that the tumor showed some peri…
-
I am Home!!
Got released this morning....the human body is amazing....like total turn around in the night. Nerves quit screaming, able to turn my head, and get my arm over and close to my head without feeling like "I wish the PT people could get a chance at this, they might not be so mean"....LOL. It's amazing to me how everything…
-
shoulder pain?
I seem to be past the sore throat pain now and am eating food normal, although the appetite still is not there yet. Been about 8 weeks post radiation treatments now. But what about the constant burning and pain from the dissection? That was done on the 1st of July? Some days are worse than others. Last night I was up every…
-
shoulder pain?
I seem to be past the sore throat pain now and am eating food normal, although the appetite still is not there yet. Been about 8 weeks post radiation treatments now. But what about the constant burning and pain from the dissection? That was done on the 1st of July? Some days are worse than others. Last night I was up every…
-
Food Aversion
Hi, I just wanted to run something by you guys. Heading into my fourth week of TX. Starting last week I developed a food aversion (made that up). First I was full after a couple bites and of course food tastes either weird or bad. Then the metallic taste started and I was sick after eating a few bites. Now it just seems…
-
First post here - hubby is 7 weeks out
Hi all, I'm new here, but have been reading your posts since last summer when my hubby was dx with tonsillar squamous cell carcinoma. He had 35 doses of radiation and 7 weekly doses of Cisplatin. From what I can tell by reading here, he had a pretty severe reaction to the chemo. He was dehydrated, fell down, had…
-
Help appreciated! 22 and freaking out
Hello everyone, I stumbled upon this website when doing some research online. When I clear my throat I've been spitting blood for the past 4 or 5 months almost. I went to an ENT around that time, and he dismissed it as membrane irriation and really didn't take it seriously, due to my age and the unliklieness of cancer at…
-
Simply Brilliant-changed to the U tube version
https://www.youtube.com/watch?v=T8dDeq3QYzM
-
Post Treatment Recovery
I finished my treatments one week ago. I'm feeling pretty awful. My lower throat just keeps getting more painful and it makes eating or drinking anything almost unbearable. I don't have a feeding tube, so I'm very afraid that I'm not gettting enough nutrition. Has anyone else had a problem with throat pain? I would like to…
-
Phran?
Can someone who has phrannie's contact info get us an update. I sitting on pins waiting to hear she's ok. I gave her my info on Thursday night in case she needed to get me offline but stupidly didn't get her husband's cell phone. Joe
-
DebbieJeanne
I have not been on for a few months and came back recently with a question. I saw the Phrannie posts and I have been back a bit more to see how she is doing (she was so helpful to me). I have not seen any recent posts from DebbieJeanne. She was always supportive and a sweetheart. Is she doing ok? Does anyone know? Thanks…