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Getting back to my pre-cancer life.
October 9th I got the offical N.E.D from my doctors. I have had thrush a couple of times, and I have to take Synthroid now, still have a slight phlegm situation and can only taste Teriakyi chicken all the way through a meal, but compared to the alternative, life is great! Will be competing in my first bicycle race in a…
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plan moving forward
As many of you have coached me, my plan is moving forward - had a salivary gland moved on Halloween and the port put in, saw the dentist yesterday - have to get root canal on one upper only - was due for this anyway - and had fluorine molds made - any of you doing fluorine on a daily basis for the rest of your life? Also…
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hoarseness
So anyone out there who has had Larynax cancer and radiation treatment....My voice still struggles with hoarseness ...is this something that gets better or will it come and go from now on....i know I am only five weeks out of treatment but I was hoping it would start to get more consistant...... Thanks, Benjamin
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Baking soda/salt...
Hi everyone! Today, and for the past few days, Pat is starting to deal with the 'thick' saliva. I know I read somewhere the combination of baking soda and salt solution...BUT, can't find the 'recipe' anywhere. I checked the Superthread, and it doesn't seem to want to load for me...Would someone be so kind as to tell me the…
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Hearing problems?
So, I had a question. As some of you know, others do not... my dad had 35 radiation treatments from sinus area to throat due to sinus cancer/one lymph node affected. While watching a movie with him the other night, he had the tv turned up quite loud...there were times I would have to tell him what ppl said in the movie. I…
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Really ambivalent about the gastrostomy tube tomorrow
Hello survivors, I am getting ready to go for a bike ride on this beautiful day before yet another surgery (3rd in 3 mos). I am scheduled to have a gastrostomy tube inserted via laproscope tomorrow afternoon and would love some insights/encouragement. I had TORS surgery 9-4-13 and Left neck dissection also. My margins on…
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Medicaid Update. Good news!!
After fighting for months...Medicaid in NC has decided that H&N Cancer is a "serious" cancer and has granted me my one year of coverage. They immediatley grant one year for those with lung, breast, brain or lymphoma (they call those the 'serious' cancers). I've made/received over 30 phone calls, provided more paperwork…
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BEWARE!!!!
Hello everyone, Just wanted to alert everyone on this site that scammers are creating profiles and sending private messages to members. They first talk about how their spouse and children died and how they were recently diagnosed with cancer and only has two weeks to live and has millions of dollars in a bank in West…
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New here - wish I would have found sooner! SCC-HPV Tonsil
Hi everyone, my name is Jamie (male) and I'm glad to have found this forum. In September, I was diagnosed with Stage 2 right tonsil cancer, HPV16 positive, spread to two lymph nodes that are side by side. My tonsils were removed (not fun) and the biopsy of the tonsil showed a 2.2 cm tumor that was completely encapsulated…
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coughing more...especially at night
I am 5 weeks after treatment and I have started coughing more especially at night when i am laying down...is this "normal" or have some or most of you experienced something similar? As i wait to go back to my first post pet....all and any new changes are making me anxious, Thanks, B
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New Insurance
I am tying to figure this new insurance out,I am six months and a few days post,Still having little or no saliva,taste comes and goes,Found out the reason why my Doctors are not giving me anymore pet scans is because my insurance will only pay for 3 of them in my lifetime.Am looking at this new insurance and am wondering…
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Mouth feels burn and throat feels constricted
I just finished my 3rd week of radiation and 2 chemos. Now I experience a burning pain in my mouth like a pulsation. Lips feel puffy. When I swallow, it seems the esophagus has constricted or narrowed. Thick mucous come out of mouth and stuck in back of throat. Making it hard to swallow. Is this gonig to get worse for the…
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A strange question regarding food...
My 17 year old LOVES peanut butter sandwiches. He eats at least 1-2 a day. He hates the crust so he cuts it off and gives it to our dog (who is very happy about it!) Yesterday, I grabbed one of the crusts to nibble on as he made another sandwich and about 2 minutes after I ate it, the inside of my mouth started swelling.…
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Has anyone heard from Candi?
I was reading through some recent posts and haven;t seen anything recent from Candi. Does anyone know how she is doing? Thanks! Thinking of you all!
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Dad is 100% cancer free
We got the results of my dad's petscan last week, he is 100% cancer free! I'm so glad to announce that! Thanks to the James Center at OSU he received some of the best treatment and thanks to docs for catching it early enough that it could be treated. He still has his peg tube, but is eating much more each day! Had dinner…
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Advice
Hi, I have written once before concerning my mother. I do research through this wonderful supporitve board frequently, and would like to ask advice from you all again. My mother is 82 years old, she completed 35 rounds of radiation follwoing a debulking of hypopharyngeal(very close to voice box) cancer tumor in January…