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Head and Neck Cancer

Archives for November 2013

Concerns
I'm the wife of Tom who was diagnosed the end of August with stage IVa SCC of the epiglotis & 2 nodes. Finished 8 cisplatin chemos last week & has 2 more rads to go for a total of 38. The last 6 rads are to be directed at the tumor. I've been reading a lot of the posts here and have an idea what to expect, but a big…
cant swallow
The last two days I cant swallow. The water goes a little way i can feel it in my throat then it comes back up. I got my voice back a little bit yesterday but its gone again this morning. My throat feels tight and I have a smattering of tiny white spots in my mouth. I have mucous again. A week Wed I have a visit with my…
Prayers requested for family members UPDATE
Please pray for my sister, Rita, she has tumors in the lining of her uterus which they think are fibroid but can't have surgery because she had a stroke in April. She is bleeding and cramping. I think the blood thinners are making it worse. Also I ask for prayers for our oldest daughter, Vicki, who was a district manager…
Mother struggling to deal with a life without food
My mother had a peg put in a couple of months ago and is really struggling with the prospect of a life without solid food, I am writing on her behalf because she is only getting used to computers, she is really looking for the perspective of people who are going through the same thing as opposed to medical people who have…
Hi guys update on mom
Sorry it has been so lond since I have posted. My life has been anything but peaceful. Mom got sick and started throwing up blood the first week in September. After doing a chest xray they told her she had a mass in her lung that had been there for 2 1/2 years and after futher test the found spots in her liver. The blood…
Any insight?
When my dry mouth is bad, it's bad. No amount of water can help. Xylimelts and Stoppers 4 not too much help but my swish and swallow does give relief. Eating also provides relief. I'm fortunate that it isn't a constant thing but it is annoying when it does happen. I have been trying to determine what, if anything, triggers…
Got the mask today
Well, I got the mask formed today - made it through it - almost felt like I was going to panic twice but didn't - kept trying to breathe and lower my heart rate - the techs were nice and helpful - one in training - the nurse for the contrast was great - it changed me though - I told my wife who was waiting that it was…
Brother's First Scan - NED!!
Hello My Friends, My brother had his scans yesterday and found out this morning that he is NED! To say that I had a fair amount of scanxiety about his first scan post tx, is an understatement. My family and I were definitely dancing around the kitchen table with the good news. Apparently one of his nodes isn't "perfect",…
Johnnybegood Doing A Little Better
The bleeding has finally stopped, but still no answer as to the cause. She is still having severe diarrhea & abdominal cramps. Crazy doc asked her if she felt comfortable going home tomorrow with the dairrhea & cramps & no answer. She told him "NO". She lives 100 miles from the hospital. Makes me angry that hospitals just…
Roof of mouth
I promised myself I wouldn't, get overly concerned by symptoms that appear in the early stages of recovery...but.. I have lumps on the roof of my mouth. I can run my tongue over them and they feel smooth lumpy, different sizes. I looked in my mouth and can see them with a torch. it.s the same colour as the roof of my mouth…
Bronchitis
Well at lease it is not pneumonia - - - - yet. I been feeling sick for the last week or so and finally went to see the doctor. After she checked and did an x-ray told me I had Bronchitis and I am one step away from pneumonia. For some reason I can’t help but to remember our friend Denny, he was always having problems with…
Hello again
Hi it has been some time since I last checked in and it is nice to see the same names and faces of the people I read about when I was going through my cancer treatment. I am still recovering from my rad treatment, which ended May 1st of this year. I was diagnosis last week with cancer..... Again.....same one! I am still in…
Hi friends...
Well, here we are, nine days left. I sure am happy that Matt told me to leave 'my big girl pants on' for a little bit after my last post. I may have been a bit too 'upbeat' that early in the game. LOL! I have been reading up on most of the new posts, and want to be around to help; especially the 'newbies' who are here, and…
Major worries about my taste returning to normal
I'm 4 weeks post treatment from SCC right tonsil cancer with two right neck lymph nodes affected. I've had 35 rad treatments and 2 high dose cisplatin chemo treatments. None of my surgeries were to actually remove the cancer, so it’s being treated completely by the rad and chemo. 3 DEC is my next visit for results of this…
Questions concerning tips for XRT
Hello again, I think I have most of what I need from reading the thread on RT, but still have a few questions to ask the group. My nurse gave me some ALRA therapy lotion to use but not less than 4 hours before treatments. I started the L-Glutamine powder from Vitacost. It has a small scoop that has 5G in it and I am not…
Started TOMO/IGRT
Hi all, Yesterday went well and my radiation oncologist who was trained at Sloan Kettering in NY with Dr. Nancy Lee (look at her video and how she treats her patient it moved me to tears). My r/o Dr. Sophia Edwards-Bennett spent a lot of her precious time with me explaining and going over the treatment plan looking at the…
new here and scared
start my radiation and chemo treatments on nov. 13, stage 4 scc right tonsil and 2 nodes have been reading on here for a couple of days looking for answers on what to expect lot of helpful information and a lot of great people
clean PET scan again Update
I again have no signs of my cancer. In Dec 2009 I had a lump on the left side of my face. It was cancer I was operated on at John Hopkins ln Baltamore Md on 2/5/2010 then had 33 Rad treatments ln 2011 the cancer returned in my Right shoulder the Dr gave me 2 to 4 months to live .I had 14 rad treatments and months of…
A rare moment
I've never been even a lousy cheerleader here but I came across this a few days ago and feel like it will put a smile on your face and warm your heart. I'm certain you will set aside and forget all about any illness, pain, or malady of your body and mind, if only for a few minutes.…
Nose bleeding (spotting)
I've done two chemotherapy and 20/33 radiation treatments. I've noticed lately that after radiation treatment, my body, mouth, and throat feel hot. I can feel each time my heart beats. When I rinse my nasal with a nedipot then blow my nose, blood comes out but not continous bleeding. Along with that is a big snot with what…
Check up with the surgeon yesterday...
and he said that everything looked GREAT! I can open my mouth in the "normal range" again....the very lowest reading, but still just barely in the range. He said that I was good for another 3 months but to continue to see my rad onc a couple of more times. Boo!! haha I will see him later this month. He is not recommending…
Anemia
Has anyone suffered with anemia post treatment. I,m at the start off second week after radiotherpy. I,ve been getting more breathless and tired by the day. At clinic this morning I had to do blood tests for anemia, I only have to stand up for a short time before I feel weak and out of breathe. on a trip to the shop I had…
OBAMACARE
Has anyone here had their insurance cancelled, modified, ETC in a negative way? I have not yet, but my Oncologist says the ACA will definitely make it hard to stay profitable. Hope you are all doing well. So far so good with me, scans show tumors continue to shrink, but the long term side effects of the Taxotere are…
Juicing
My husband is in his first week of radiation and is doing well so far. He is using Mugard and Magic Mouthwash daily along with Biotene. He hasn't had any problems with swallowing, saliva or eating yet but we both know it's matter of time. I am wondering if anyone has any experience with juicing and if there are certain…
Prayers Needed Please For Johnnybegood--UPDATE
I posted this on the Colon Board, but am also asking all my friends here for prayers & good vibes for my daughter, Johnnybegood. She was taken by ambulance to Louisille with uncontrolled rectal bleeding. My son-in-law will call me as soon as they figure it out. We are all so very scared. Luv, Wolfen The bleeding has slowed…
I Am Scared....
I finished treatments for left side tonsil cancer 11 months ago. I have been recovering nicely and all scans have been good. All of a sudden, I feel like my throat is swollen, throat feels tight, and swallowing seems a little difficult. It feels so much like it did when I was diagnosed. It feels swollen on the left side…
I am still here
Hey everyone. I am so sorry I left the grid for so long. It has been a very difficult 7 months. I lost my home to foreclosure but thank goodness David had a bit of life insurance so I was able to buy myself a cute house. It isn't as big but I love it. I am still missing my husband intensely but I am starting to really move…
WBC still low. New baseline?
Hello, Robert is doing well being 19 months post treatment. He is holding on to this WBC of 2.1, just wondering if anyone else has had a new low baseline with their WBC? thanks, Denise
Anyone else starting XRT this week?
Just wondering if anyone else is starting radiation therapy IMRT this week? I start tomorrow and would like to coMISERYate with you if that is ok. PJ
so kind of freaked out
So I am kind of freaked out....I was one of the lucky ones who made it thru treatments without many side effects....I could swallow and eat anything...didnt develop any sores....and my skin held up...not even a sore throat...not sure what is going on but woke up this morning and the inside of my throat feels swollen....and…

Head and Neck Cancer

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