-
Duggie Jeff & Skiffin John ~ ShowDown Tampa
Shelley and I had the pleasure to meet up with Jeff and his son this afternoon in Tampa and swap a few stories...., anyones ears burning around 2:00PM or so..., hmmmm. We had a great time, and enjoyed some good cold frozen yogurt on a hot Saturday afternoon.. Next time, treat is on me Jeff...., Flounder time Gandy Bridge…
-
Mask has been made
Number 4! Cyberknife will be Wednesday, Thursday and maybe Friday. I feel very good about this treatment. Doctor was very encouraging. I will leave Wed. morning and stay at my sister's again. It is great to have so much support. Also, pain med was upped, I was on a 'whimpy' dose! I would rather sleep than be in pain. 'C'…
-
Does it ever heal???
Had squamous cell carcinoma in the nasopharynx two different times, so been fried twice by two different rads (photon and then proton radiation) any how and I know this is gross, but I blow a hunk of my nasopharynx out of my nose every week or so. I blame my memory going on this cause i feel like I blow a piece of my brain…
-
chemo
Hi All, I am just wondering if anyone has had chemo and never experienced any side effects? The doctor gave my mom a pamphlet with a case study of a lady who had no side effects from chemo. thanks in advance.
-
MSContin/Hospice
After a visit to our oncologist, my husband decided to go on Hospice. He is doing so-so but the doctor explained to us that Hospice isn't only for end of life. My husband chose quality over quantity when his 2nd cancer recurred in January and spread to his lung. Hospice has been in and explained a lot of things to us.…
-
Super blessed! A true feel good story :) UPDATE
As many of you know I've run up about $225K in medical bills without any insurance. Well, Medicaid has decided to help, but to give me a $20k deductible. I am VERY pleased with that. Yes, it's a lot of money but I am beyond thankful for the assistance. Well, I now have about $1500 out of pocket in dental procedures to have…
-
Would you do it again?
My husband, who is due to start radiation soon after having tongue tumor removed is seriously considering not doing this therapy. He is considering the quality vs quantity issue. The liklihood of return of the cancer is a factor in this consideration. So often we have read of the return regardless of chemo or radiation. We…
-
laryngectomy and neck dissection
My husband had a complete laryngectomy and neck dissection in June 2013. He is recovering well at 3 months post surgery. However, the swelling/fluid retention from the neck dissection is still a large area of concern. His surgeon states that nothing but time will re-channel the lymph structure in his neck. He started…
-
PET Scan: no cancer return, but what does all that "other stuff" mean?
We (hubby and I) just got back results from what we've learned would be his last PET scan (4 years out from radiation and chemo). the doc was very pleased with the results and told us to come back in a year, for a final visit. He said the chances of his larengeal cancer returning is about 0%, which certainly sounds like…
-
Upcomong PET scan
Hi, everyone. It's been 2 months since (tonsil cancer) treatment ended and I've been battling Thrush for the past 6 weeks (allergic to the meds - gave me hiccups 24/7 for two weeks until I finally found a Dr who gave me baclofen which stopped them). I still cannot eat most foods due to dry mouth and have been living on 4…
-
8 weeks on from surgery
-
virotherapy cure fore for cancer?
Saw this today in newspaper. Has anybody had the treatment. It is a trial therapy which injects herpes modified virus into the cancer the body goes into 'fight' mode and kills the cancer. 94% of cancers tested after were cancer free
-
Proton therapy side effects?
Hi all, Err...I need educating with a big thick cancer book around the head. I'm new to this cancer business and I could really do with some info. Here's the deal...I have advanced esthesioneuroblastoma with three mets to spine and hip. Anyhoo it's HEWUGE and they want to take it out and then do proton radiation with chemo…
-
No Fishing Today
Jim's pain is increasing. It kept him up most of the night. He skipped fishing and finally agreed to take some pain med this afternoon. It doesn't seem to make him as goofy as the other pain med he had during tx. It does however make him dizzy and sleepy, but he is always sleepy. I have convinced him to take it tonight…
-
Questions regarding feeding tube
Here we go..... Firstly, very grateful to have found this site for information sharing....many thanks to all of you. It really does help tremendously to have your input. My husband will soon start radiation treatments of 200 rads per session for 6 weeks. He had 29 neck nodes removed, one of his tonsils and a large tumor…
-
Fixated on possible Recurrance
Friends, If we cant be honest here I figure that there are very few places we can be. Found a small white lesion on the right side of my tongue and it would apprear that my primary site (right tonsil) is getting bigger. i feel the bump and "just know" what that means. I had a CT on 6/12 NED but concern with right node. Had…
-
Osteoradionecrosis - ORN
After Mike's recent post about ORN and after reading many horror stories about jawbone and teeth failing after radiation, it clicked that what is going on in my mouth could be Osteoradionecrosis. I'm certainly not one to get wound up about various symptoms but after fighting a lot of pain in the gum last week, the imminent…
-
To wait or not to wait (feeding tube - radiation)
Hi All: My mom just got her feeding tube put in this morning. She is feeling a bit groggy and some (mild) pain in her throat on also on her stomach. The question is, should she wait until after the weekend to start the radiation, or should she start this tomorrow? Thank you.
-
Que Pasa and Whats Happening?
Hi all" Basketcase checking in here! Been awhile I know but I do try to keep up with what's going on! Well, I am finally officially a Retired Georgia Teacher as of Aug. !! Also Charlie's SS benefits started on 8/28 so I can now breathe a little easier. Still working at Jo-Ann's part time but will probably give that up mid…
-
ultra-sound check
Hey everyone, Went to my primary yesterday for updates. Caught the goop from the grandkids, 2 were sick when I watched them a week ago. Now grannies got a touch of pneumonia, go figure ! Course of antibiotics and neb at home. Also told him about the lump the specialist were saying was related to the carotid artery. Had an…
-
Nasopharyngeal Carcinoma round 2
I am a 21 y/o diagnosed when I was 20 just after graduating the fire academy. I was checked by the doctor because I could not breath through my nose, which made wearing an airpack very difficult. I went through countless rounds of chemo (cisplatin) and 35 radiation treatments. I was given a clean bill of health in late May…
-
debbiejeanne!!!!!!!!
Did you ever get your ct results?
-
Rating of Doctors
Hi All: I was wondering if there is a trusted website that I can go to to look up my mom's oncologist? She lives in a very small town and has already experienced a bunch of issues with her doctor / hospital. I did a general google search and found some info, but I would like to see if there are any infractions against her…
-
A few questions
Hi All, It has been almost 9 months since I first posted here on behalf of my father's disease. (http://csn.cancer.org/node/251404). I did get immense support from many here, thank you for that. My father was on Stage 4 pharyngial cancer, with a bone metastasis when the treatment started. After 9 chemo sessions and 33…
-
When you get sick after your treatment
When you get sick after your treatment specially radiation treatment!! My husband was done with his treatment in April with 35 radiation and chemo. Recently My daughter was sick from cold and fever and of course my husband got sick too.. But this is his first cold after his treatment and symptoms were different than ever.…
-
Anf the leg bone's connected to the...shin bone?
After over a year of waiting and seeing how my ORN was developing, a recent PET scan confirmed that it's still progressing and other tissue has become involved. So, I am in the prep stage to have a jaw resecting (replacement) in the future. Based on some travel and work timing, I am hoping to hold off until next April, but…
-
Sad Day To Happy Day
A bit off topic Today is 4 years that I lost my Dad. I memtioned before he was a very healthy 80 year old who just decided to take his own life for no apparent reason. For the last 3 years September 3rd has always haunted me until today. This morning my son and his girlfreind had a baby girl, it was pretty much planned (by…
-
Phew...
Dodged that bullet.....NED NED NED!!! They never called today, and just let me stew some more.....but when I got there the Onc gave me the relieving news.....Now we'll see if my plugged ear stops feeling plugged, or if that's going to be a new part of abi-normal for me. I can live with it, as long as I know I'm NED NED…
-
More (after tx) dental comments :)
Well, long story short...my onc dropped the ball and didn't call my dentist back, or consult with the other doctor, or call me back, or do anything he said he would. I had to verbally give the other doctor permission to make decisions for me. So, my dentist got in touch with the other onc who decided to let me go ahead and…
-
Phrannie!!!!!!!
Any news? Been thinking about you ALL day!!!!