-
Risk taking?
Hi all! I've recently been diagnosed with adenocystic carcinoma. I found what I thought was a swollen gland on my neck and after a couple of months went to the doctor. After trying some things like an antibiotic and pilocarpine over several months, I finally talked my doctor into removing it. That's when he discovered it…
-
Depression after Treatment
I got to thinking as I read this. People post from time to time on this board who are clearly depressed, or post about someone who is clearly depressed. It makes intuitive sense that depression frequently follows treatment for this disease, but I was unaware until now that anyone has actually looked at it. I know this: no…
-
so sad
It grieves me to, open this site, and, see so many new names that are just beginning either their or a loved ones journey. Just want to say, you're amongst the most caring,kind,loving,knowledgeable people you could even imagine..the treatment is brutal, the recovery is hard, the finish is wonderful..you'll get there. A…
-
Eurbtix and Gammaknife
Hi Everyone haven't been here for a while my husband has nasopharengyl Carcinoma the cancer has not metastasize. At first the ENT didn't not give us any hope and gave my husband a year to live. His oncologists disagreed with the ENT and said that the doctor should have never told us that. My husband has just finished 6…
-
Neuropathy
Hi all, apologies for my slackness in keeping active on the site with regards to posting. Fair to say more of a observer then participator. I have been working on getting my systems back online post treatment and as reinforced by all the comments / posts on this site, the majority of things do come back in time for most.…
-
Tongue Nerve Damage After Neck Dissection
I had robotic tonsil surgery (cancerous T3 N0 M0) and total neck dissection - removal of 131 lymph nodes (no cancer) ...since then I have Hypoglossal nerve damage - half my tongue is completely numb - when I stick out my tongue it points towards the dead - damaged side. The pain and discomfort are constant . When just…
-
Thrush
my 3rd bout with this crap - i am going to have to really research what i can do. My wife is telling me pro biotics - i think there is a pill form and it comes in some yogurts. it may have something to do when i drink alcohol. my daughter got married over the weekend and i over indulged. had a great time. but a day later…
-
Base of Tongue Symptoms
Hello, What was everyone's symptoms as far as your BOT cancer was concerned? Did anyone have tongue pain or any kind of pain with this or was it just noticed by a swollen lymph node? Any long time survivors on here? If so, which treatments did you choose? Thank you
-
Chat to specialist
I had a good chat with my 'Wednesday' specialist at the Churchill hospital yesterday. I feel a lot better about the rad /mask. I have the usual neck cancer SCC. They will give me strong rad on the right side of my neck and tongue and lighter strength the left side. I had 3 Cancerous nodes removed along with 29 other down…
-
Husband getting trachea Help
My husband is getting ready to have a trachea put in next Thursday, September 20th. He was diagnosed with squamous cell carncinoma which had metasize after 6 months of chemotherapy and 38 radation treatments.. he is no longer able to breath due to damage to his windpipe can anyone out there talk to me about this or does…
-
treatment begins
After months of waiting and worrying, my first chemo is today. Doctor decided to use erbitux. Sounded like a good choice (less side effects) until I read about it on the internet. I will be having it together with radiation which begins next week. Does anyone have experience with erbitux? Dr said no hair loss or nausea. I…
-
Ran across this
I don't know if this has been posted before but I thought it was interesting. http://www.npr.org/search/index.php?searchinput=HPV I am think my immune system is not the best. I rarely get sick but I am on my 3rd cancer, melanoma 40 years ago, prostate 12 years ago and now scchn. Although the melanoma which was a mole on…
-
Colleen Passed...
Thanks for the thoughts, prayers and well wishes for my sister, myself and my family.. Colleen passed away comfortably yesterday at 1:01PM. John
-
carotid arteries
Met with my cardio doctor today, back in 2008 I had a minor stroke that was attributed to a blocked left side carotid artery. Underwent an endarterectomy to have it cleaned it. Then I underwent radiation to the neck and I was moved from yearly check ups (ultrasound) of the carotids to six months, 2011 went back to yearly.…
-
Another Step Forward
Just had to share; when I lived on the in PA I was an ATA (amateur trap association) memeber, I shot trap/clay targets competively all over the east coast and at the Grand American in Ohio several times. Since moving to AZ not so much, then my dance with the Big C kinda put a hault to such things. Well since getting ,my…
-
Never Forget ~ 911
In Honor...
-
Root canal.....DONE!
The root canal is DONE! It was really nothing. No pain, just a little uncomfortable. Expensive as heck...but that's about it! Now to eat soft foods for a couple of days and then an extraction next week. Soft foods after that and then 4 cavities filled and a crown put on. Getting a little sick of doctors/dentists/etc…
-
nasopharyngeal carcinoma stage 4 - making life easier
Hi All, This forum is a light in a dark tunnel. I'm so grateful to everyone who takes the time to post and share information on their experiences to help others. My mom just got diagnosed with Stage 4 nasopharyngeal carcinoma. We are all very worried about her and want to make sure that we can give her the best care…
-
up-date~~Live Strong
Had my evaluation yesterday for the new group at the Y, I did fairly well, have been having trouble with my lower legs while walking, so the 6 minute walking test didn't go too good, HOWEVER, I pressed 100 lbs with my legs, 75lbs arms, balanced on each foot singlely for 4 minutes...the classes start 9/23, I'm excited to go…
-
Special Prayers for Special Lady
As many of you know, my sister Colleen is losing her battle with cancer.. She's pretty much in a sleep state for these last few days, and they don't expect her to survive more than a few more. Please keep Colleen in your prayers, and for a peaceful passing... She's a loving person, and it has been such an honor to share…
-
Baby steps!
As you may know, I've been so overwhelmed lately with everything! Each day after work and school ive been trying to help with getting last minute things ready and prepared for my parents so move soon. They hope in a few weeks! I can't wait. As I wrote previously, dad tried jello and pudding but he couldn't really eat it…
-
Facial artery musculomucosal flap to oropharyngeal defect
J Plast Reconstr Aesthet Surg. 2013 Oct;66(10):1365-8. doi: 10.1016/j.bjps.2013.05.029. Epub 2013 Jun 10.A novel use of the facial artery based buccinator musculo-mucosal island flap for reconstruction of the oropharynx. Khan K, Hinckley V, Cassell O, Silva P, Winter S, Potter M. Source Head & Neck Unit, Oxford University…
-
what is Varian6
I have received my list of rad appts 18th Sep--29 Oct and it just states the dates followed by the word Varian6 is this a name for a certain radiation treatment. I don't get much info on my treatment, I will see my head of the team tomorrow to ask questions but usually I dont understand the answers unless I looked up on…
-
Favor to ask - clinical trials
Hey Kids, Got a favor to ask for those more internet savy (or with a better memory). A while back someone on this site posted some links that gave a pretty comprehensive list of clincial trials or some sites to check for them. I've searched for it, to no avail. I also did a general search on the web and found some info,…
-
4th Recurrence
Well, I don't seem to be able to beat this thing. I was just diagnosed with another tumor on my base of tongue. This is my 4th reucrrence since my original diagnosis 5 years ago. Because I've had prior tongue base resections, the only surgical option at this point is a total glossectomy with a free flap from my rectis…
-
Injecting some levity
WHY OLD PEOPLE DON'T GET HIRED! Job Interview: Human Resources Manager: "What is your greatest weakness?" Senior Citizen: "Honesty." Human Resources Manager: "I don't think honesty is a weakness." Senior Citizen: "I don't really give a **** what you think."
-
Almost Exactly One Year
I found this site almost exactly one year ago and I can't really put into words how thankful I am. You folks have seen me though the panic and the pain with your insightful, often humorous (yes Matt, I'm talking about you) advice and support. Most of the remedies that actually made treatment bearable didn't come from from…
-
Tobegolden
Have not heard from Rick in a long while, any info or news.
-
Any word from George Baltimore?
Wondering if anyone has been in contact with George? I haven't seen any posts from him. Keep him in my prayers and hope he is just out living life.
-
Hoax Email-Johns Hopkins Medicine Repudiates
You may have seen the following: “CANCER UPDATE FROM JOHN HOPKINS”. This hoax email reputedly from Johns Hopkins Medicine has been around for quite a few years. Johns Hopkins Medicine posted a repudiation of this misinformation on 20 March, 2010. I am saddened to say that it is still being recklessly promoted. You may have…