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Got some good news the hard way
I'm ct young this from my hospital room as I had to check into club med for a couple of days too get IV antibiotics to deal with a self imposed pneumonia. As part of the drill, they sent me for a chest CT with contrast to see where the pneumonia was. Long story short, it also revealed my tumors in my Mediastynum have…
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Wanted to wish all the Dad's Happy Father's Day
Hey everyone ! I'm a bit early with this....but I'll be gone for a few day's. I'll be spending a few day's with my Father Lloyd, who is 80 yrs. young. He has plans for fishing and agate picking with all of us. I know we have tons of Father's on our board, and I wish you all the best day ever. Enjoy the day with your…
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I am new to this site and need advise/support... my dad was recently diagnosed with Squamous Cancer
My dad, Glenn, has never been a smoker or a drinker... he was recently diagnosed with Squamous Cell Cancer. To say the least we were all in a state of shock when he was diagnosed. The location is in his neck and back of the throat. (HPV) He has been in Radiation treatments for three weeks, he has three more weeks to go. He…
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Caught the fish, made a link, need help with pic
I would like to use this as a profile pic but my membership page has stumped me on trying to upload it. I figured out how to make a clickable link to the photo of me with a black drum that I caught surfcasting from the beach on Alligator Point. Would appreciate any suggestions on how to convert it to a profile pic. Thanks,…
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PEG installed-
Hi everyone- I finished the primary Cisplatin and concurrent radiation on May 10th and finally succumbed to PEG on Friday June7th. I started the adjuvant chemotherapy on May 30th and the 5FU tore up my mouth and throat way worse than the Cisplatan or Radiation and the DOCS all agreed the weightloss was too much. I seem to…
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I see you / you see me ? photo no show
I tried ... and failed ... to upload a pic to my profile page. I like being able to see a face when reading posts and comments, so thought it only fair to have a profile pic myself. The browse area seemed to find the photo but after I clicked 'save' no photo appeared anywhere on my page. Guess I will have to remain…
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Selective Neck Dissection
Has anyone had a selective neck dissection...it would appear that it may be a possibility for me in the near future. Any insight would be appreciated.... Jon
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3rd Round of Cisplatin
My husband is being treated for Stage 4a tonsil cancer (HPV - SCC) with 30 rounds of radiation and 3 rounds of Cisplatin (at the beginning, middle and end of the RAD treatments). He finished his last RAD on Wednesday 6/12 and was to have his 3rd round of Cisplatin on Tuesday 6/11 but lab report showed low white cell, red…
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Howdy!
Checking in. Tired as hell. Brain won't cooperate. Besides that, I'm peachy keen. Get another scan in 2 months. I'd like to add another NED to the file. hope all is well!
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Tomorrow is PEG day
I ended up in the ER getting 4 more hours of IV fluids today (just had 4 hours of them Monday), I had lost 5 lbs since then and the oncologist was beyond concerned. My oncologist (not my fave) is on vacation for 2 weeks so the one I like is seeing me. He sent me right over to the ER and got fluids going and then asked why…
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C and me
Got home at 5 this afternoon, had been to Penn State hershey to get results of a biopsy I had on my prostate 3 weeks. Doc said that in two of the 12 needle biopsy cores there was a couple of cancer cells in each one. he went on to state that this not uncommon in most men my age and then gave me options. Do nothing and keep…
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mugard
had ron's oncologist fax in an order for the mugard, they said if insurance wouldnt cover it it would be about $1500 for a months supply! well, was told my insurance wouldnt cover it. so gave up on it. got a call today from mugard rep. they are sending a months supply to rons oncologist in his name, no charge. told me that…
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Dry mouth
Hey everyone, My dad is going to treatment today and going to mention to the docs that his mouth is starting to feel slightly dry. Is there anything you can recommend that worked for you? I just want to get some ideas that I can mention to dad. He's been staying pretty hydrated so far, but didn't know if there was a tip or…
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Thanks for information on USAUNA (scam)
I'm sure that a few of you will recall me posting about my uncle trying to push these antioxidant pills on my father not long ago. It was really ticking me off bc he thought they were miracle pills-yet not FDA approved or anything. Thanks to your information about antioxidants and how they replenish cancer cells, along…
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Good saying....
"Look back in forgiveness, forward in hope, down in compassion and up with gratitude."- Zig Ziglar
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Tim6003 Update and a few prayers could be used if you all don't mind
Hey All. Sure have missed talking to all of you as well as missed keeping up. I apologize in advance if I have not responded to posts to say I'm thinking about, whispering prayers and what have you. Some of you may not know, I went to Daytona Beach to check on my mother, the visit was 10 days and upon the first day or two…
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When was everyone able to start
eating again? If you had a PEG when where you able to start eating real food by mouth again after finishing treatment. Rob is almost 2 weeks out and says he is worse now than 2 weeks ago. Maybe I am just in a rush to get something in his mouth. I have noticed he is not spitting as much, but it is hard for him to talk and…
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Hernia
I finally made an appointment with the surgeon today and he confirmed I have a double hernia - not swollen lymph nodes- thank god. I have scheduled the operation for repairs in two weeks.
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Update on dad
Just wanted to take a minute and update everyone on my pops! He has 29 (out of 35) radiation treatments left and 2 chemos left. 29 seems like way too many more for him to go through... it's scary to think about. So far no nausea or any other side effects that I'm aware of. I spoke to him for a minute this morning before I…
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If y'all kick me off of here, I'll understand..
How sick are y'all of my rollercoaster of treatments? I know I am. So, the oncologist that I like (but never get to see) consulted with my oncologist (the older one) and my surgeon. He is concerned about my symptoms and is reevaluating if I should finish. He thinks my body is reacting to the radiation in an almost…
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No one is invincible to cancer....
I just wanted to say that no one is invincible to cancer.... I came across this story about Steve Perry (ex lead vocalist for the group Journey) and his girlfriend and it just made me cry. I've always been a fan of Steve Perry's and have followed his life. As much good that had come to his life, equally there was as much…
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Magic Mouthwash
I just tried Magic Mouthwash for the first time today and I am disappointed with the results (especially for the price). It is primarily my throat and upper palate that are sore and make it difficult for me to drink things like fruit juice or V8 juice. I have twice used it as directed, gargled with it, swallowed it down…
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Flounder Day - Revisited...
OK, to add to this journey...; Cleaned, boneless fillets ared ready to go... Spicy Seasoned Breading and ready for the pan... Dinner is served... Best ~ John
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Ok, Ok, I give...
My surgeon recommended finishing treatment if I can. I've cried all afternoon, but I guess this is what I have to do. How long will they "give me a break" as I can't lay flat without vomiting. I'm rinsing, swishing, taking Mucinex and doing all I can to try and thin this crap out. Frustrated, starving, and very, very…
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Hi everyone
I decided to take a break, didn't feel that I was really contributing much to the board. I'm so sorry to see so many new names on here and pray they'll all conquer this beast as many of us old timers have or are doing. I read the post everyday, so I'm keeping up with my old friends and smiling when I read of your…
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Unbelievbable
I was strolling the East Bay shore over the weekend and I asked them if they knew John from Florida, They said sure he was a friend of their mutual friend, floundafish. They pass along their hellos, John! HI JOHN! from the gang
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5 Weeks Post Treatment - Need to Transition from Peg
I am now 5 weeks post treatment, and I need to transition from PEG. (7weeks/35 rads, and 7 weeks cisplatin). Lost 35 lbs. Swallowing water fine, Boost can do but tastes like cardboard and towards the end of the bottle induces the vomit reflex. Pretty much the same with the smoothies I made. Applesauce, pudding, everything,…
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trout and flounder
Thanks everyone for the good thoughts. Jim's catch today was a flounder and 22 inch trout. Definately lifted his spirits. John, how do I attach a picture? Please explain for dummies:)
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Morning Favorites
Good Morning fellow troopers, survivors, warriors..... Just wanted to show a few of my morning favorites..., Coffee and CSN. Seize the day, prepare for battle, love the ones your with.... Best, ~John
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Dysphagia from Radiotherapy (Sudden Late Onset Fibrosis)
One of the causes of fibrosis in the body is radiation therapy (RT) or chemoradiation therapy (CRT), each used for cancer treatment. For most patients, fibrosis is scar like tissue that may form during RT/CRT or soon after. For other patients, who resolve well after RT/CRT, fibrosis may be suddenly experienced years after…