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Treatment Unsuccessful
The latest CAT Scan indicated that the chemo did not slow or reverse the spread of the cancer. Therefore, the chemo has been discontinued and the cancer is left to run its course. I should expect "months" to live rather than "years". For a short time, I will feel better as the side effects of the chemo wear off. There is a…
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Peg tube feeding and care info
Have to apologise ,I responded several times to people that the web site for Peg tube info was the Olney Foundation its the Oley Foundation . Sorry for the misinformation
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a bit off the subject
Hey everyone, This is not c related, but very near and dear to my heart. Today is my husband's Birthday. He has struggled with diabetes, and related health issues since he was in his 20's. Rolie has been through the ropes seriously....eye surgeries, heart attack, loss of his vision, serious kidney damge. And yet he puts me…
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Feeling taken advantage of
Title says it all. I am tired and not sure how much more I can do. Rob says he is not any better. We are 3 weeks out of treatment. His thrush is still bad. He won't call the docs to tell them. He says "I ahve been on high doses of diflucan and it isn't workin". Okay I look up alternative at home remedies to help. Will he…
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Soon to be
I got the call today from my onco's office...I'm scheduled to be de-PORT-ed on July 5th ...yeah, not that the little beast ever bothered me, it was a godsend during chemo and any labs I had to have, besides you can barely see the bump in my chest, the de-port-ation is another milestone, I count each one as blessing . My…
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Ding, ding, ding...I did it! Rads=done
I rang that bell today!! I had two rads (one at 7:15am and one at 3pm) to complete my 30 treatments! I had a really rough time, my body didn't react well to rads and I was an overall mess....but I made it. Y'all have been such an incredible group of people who have encouraged me, given me inspiration and provided me with…
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Shoulder Pain and Dysfunction After Radiation
Remembering that I have had radiation twice, most will not run into this problem. But some will, and as I've not seen a reference to it before, thought I'd talk about this situaton. It has taken me awhile to figure out I had a problem. Beginning soon after my last radiation, I started having mild bilateral shoulder pain. I…
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Radiation Oncologist in Denial
Today I had my 3-year follow-up appointment with my local chemo oncologist and radiation oncologist. They are now seeing me every six months. These folks are different from my local ENT and my Stanford Head/Neck Surgical Oncologist who seem to be doing me a lot more good. I attempted to initiate a conversation with my…
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Diappearing Adam's Apple -- Where did that neck come from???
Friends, Starting to have mild lympdeamia on the neck...any thoughts? Does it eventually find its way further south instead of in the neck region....thanks! Jon
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JUST CHECKING IN!
I haven't been on here for a while and wanted to check in. I stop by and read up on everyone but just hadn't posted in a while. 10 months out of treatment and am doing pretty well. I will have a cat scan of the head and neck and a chest x-ray on Monday so would appreciate prayers for another NED. Just got back from a 6…
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NED!!
Just a quick update: I had a nasopharyngoscopy performed today by the ENT surgeon and I am happy to report a NED! He said that the nasopharynx (which looks "pristine") and also the oral cavity mucosa, healed very well (and looks well hydrated - here I beg to differ, LOL). In his own words, out of the hundreds of patients…
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Double rad treatment in one day?
Has anyone had two treatments in one day? They want to double me up tomorrow so I'll be completely DONE! I'm very excited at the possibility of ringing that bell at 3:30pm tomorrow, but nervous about two treatments in one day. They will be almost 8 hours apart. I'm feeling SO much better with the PEG, but this saliva,…
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Ear Ache after completion of Radidation Treatment
I am almost ten weeks out and have started experiencing an ear ache on the side that recieved the most radidation. Anyone else experienced this....
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NED Visited Again
Saw my onco today got the NED results..whew!!!....BUT, seems that my left carotid artery shows 50% blockage, this was the side of the neck with the least rads ..as the WHAT THE XXXX rolled off my lips I said how..she said a gift from radiation, I said tell me how 4 clean PET scans , now a 2nd CT all in the last 18 months…
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Missed all of you
Hi guys, I wanted to thank all of you for your sweet words after my father passed away. I can not believe that it has been 1 month since mom and I lost him. He was such a fighter and stayed strong right up to the end. The ER docotrs told us it was pneumonia, but I think he has another stroke and also his cancer had spread…
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I met DonFoo yesterday....
FINALLY I met someone from the board who doesn't live in this town (helps that I actually left this town...LOL). I flew out of the Oakland airport, so he came down and we talked and chit chatted....it was fun. The funny part, was we were trying to find one another....by talking on our cell phones....we were only 10 feet…
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I met NED again!!
It's been a year since I finished rads, and of course had many scopes and scans but today was a milestone for me. Been kind of worried, as my voice more "iffy" but so far, so good!! The Dr. says no more scans unless something else develops, which kind of worries me but guess with my CA it will show visibly/vocally before…
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6 Months After Treatment/Tonsil and Lymph Node
Hi Friends, I had my 6 month checkup yesterday. Doctor looked at everything with the camera. She said that things are looking good. Still a little redness and mucus but she said that I a recovering nicely and no visible signs of recurrence. I wanted to share this news in hopes of offering a little encouragement to those…
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Hello and intraduction..
A month from finding out i have SCC on right tonsil with lymphnodes involved. update day 5 in hospital for prep work. I now have a tracheostomy a port and a peg. Did all as precautions cuz was not breathing at night when sleeping. Going to dr kremple and dr boguardus and dr razoc at the stephenson cancer center. Might have…
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Just Wishing For A Break(Not Cancer Related)
This is not cancer related, but has been another day of extreme sadness for my family and me. We were preparing to go to the cabin to list it with a realtor. My son's dog was all happy & excited as she likes to travel. As she's done a hundred times before, she leaped for the Jeep seat. She lost her grip and fell flat on…
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Back on track!!
I started back treatments yesterday. Had mine today already....it was NOT easy. The massive amounts of saliva (thick, nasty, evil stuff) has made being flat on the table a challenge. My belly is a little sore still from the PEG so it takes two of them to get me on the table and back off :) Anyway...I'm getting it done. The…
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Just A Little Teary Eyed Today
Hello All, I'm afraid I've been hit with the "What If's" today. I guess it doesn't make sense, but I just keep thinking "What if I had only given permission to remove my hubby's vent, but continue with dialysis & all the meds for infection, heart & diabetes? Would he ever have recovered enough to even fight the cancer, or…
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CT Scan Today
Just had my CT scan today , will get the results from my onco when I see her on Wed. While it's not the PET scan I am more confortable with , but there seems no way of fighting with the insurance companies when they deem the PET as medicaly un-necessary..any way 18 months and still counting , life is good, or my new…
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Understanding PEG document draft posted
Hello, Thanks for all the lively comment and feedback last week on an early version of the PEG docment. I have reframed the entire view of the content and the new name is Understanding PEG for HNC patients I did my best to integrated the comments yet make the document still have some flow and logical grouping of subject…
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Bumbed
Man the salvia glands on the right side started working. Then bam quit will it start back any idea how long until it does .I am so tired of takeing 1 step forward and 2 back . It's been 4 months since I finished treatment. thank you susan
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Finally a computer!! Not cancer related...
But I MISSED you guys so will take advantage while I'm at my friend's house, to say hi to everybody...I can read everything, but can't write from my phone...drives me crazy (so hard for me to just sit back and say nothing....LOL). I'll be home Tues. night, tho....and will catch up with everybody then. p
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What foods could you manage?
Hey everyone, Today was a good day, but also tough one. I met up with my parents at Olive Garden and dad wasn't eating much. I ended up switching him meals bc he could tolerate mine more (Chicken Alfredo). Everything is starting to taste bad to him. I am really really worried about him not eating or not getting enough…
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Memorial Park Opening
Yesterday was a happy/sad day for me and my family. In 2006 my cousins son, Shane 6yrs old, starting sleep walking then complaining about headaches that were severe and quick on set and just as quick to disappear. Being an extremely athlethic boy along with Identical twin Zach and older brother Colin, my cousin Mark and…
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Happy Fathers Day
To all the fathers out there, to all the people who have had fathers , I wish you all a very happy Fathers Day. May you all be blessed with many more happy, healthy and loving Fathers Days in the future! Hang tough and God bless!
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Article from Alligatorpointer...."1884 Ulysses S. Grant dx with Throat Cancer"
Hi all......Alligatorpointer shared this article on one of my posts. I wanted others to be sure and read it...very interesting... http://www.thehistorychannelclub.com/articles/articletype/articleview/articleid/136/whats-in-grants-tumor ~C