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Tongue Cancer?
Hi all. I'm currently waiting to go for a biopsy of a lump (or three) in my tongue next Monday. I'm making myself insane worrying and I just want to hear feedback from those who may have more insight than I do. I'm 26 years old, 27 in September. Mama to two little ones- 2 and 4 yrs old. I'm healthy. I don't smoke, or drink…
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Last radiation treatment today
I've been out of touch for awhile, surviving my treatment, but today I received my last radiation treatment and had them throw the g#*! mask away. I received Amifostene/Ethyol shots throughout and still have good saliva production.....although I can't taste anything. I have bad radiation burn on my neck ....I guess I…
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1 down and 38 more to go
Ron had his first rad and chemo today. 4 hours of chemo, wow. He is tired and had a little nausea but started his meds immediately. a little dizzy, which is probably due to all the hydration and low potassium. he is eating and drinking, using his aquafor on his neck. using his l=glutamine. He plans on going to work…
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Neck Dissection Question
Had a radical left neck dissection three years ago. 35 or so lymp nodes were removed. lately I have noticed the area often gets clammy, cold, and wet feeling, often while I'm eating ( no I don't need a bib ). Has anyone else had a similar experience?
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Brother Update
Today is Day 6 for my brother's treatment. He's doing quite well actually, except that he has already lost 11 lbs. I was amazed on how well he did after his first chemo. He wasn't even a little bit sick. He was warned, however, that because he handled the first one well, does not mean that the subsequent ones will be a…
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Sense of smell - decreased or increased?
I was wondering if anyone who has undergone radiation treatment to the head/neck region noticed an increase in their sense of smell? Or perhaps a decrease? I read an account online of someone whose smell sense increased during treatment and they thought it likely due to a compensation for the lost of taste, due to the idea…
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Have you heard of this scam?
I cannot 100% say this is a scam, but in my mind it is 99.99% scam. My uncle has sworn by USauna (spelling?) products for years now. I have never heard of these pills from anyone ever besides my uncle who swears that these pills are a medical phenomenon. The day my dad was diagnosed he told me a story about this girl with…
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Cisplatin Docetaxel Nightmare
Hi All, 1st post here. My husband was diagnosed with SSCHN on March 24th 2013. His tumor is in his left face and is greater than 8cm. His team seemed undecided on his treatment plan for an extended period of time and after flip flopping tx decisions finally arrived at 3 rounds of cisplatan/docetaxel 21 days apart and then…
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Speaking of getting back into normal....
Greg and I spent the day at a friend's farm.....they have riding horses, but we went to watch their draft horses work, and then to watch them start their mini-horses driving.....where we had a mini-rodeo....LOL. Last night we went to a benefit auction for our farrier, who got hurt badly a month ago. We won a two night stay…
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radiation side effects
My husband, 52, was diagnosed with HPV+ base of tongue cancer with a few lymph nodes in the neck involved. He finished 8 rounds of chemo (cisplatin) concurrent with 35 rounds of radiation. He is going to have brachytherapy on 7/9 at Beth Israel Hospital in New York City. My question has to do with two specific side…
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Motorcycle ride and fish fry on a beautiful day....
What a beautiful day it was! Was able to take the bike out today and drive along the gorgeous lake.....then stopped for a good perch fry! Boy, it's nice to feel normal. Hope everyone was able to enjoy their weekend!! ~C
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I'm done
I have decided today to not finish my final 6 treatments. I'm sicker than I've ever been and the weight loss is getting concerning. In order to stop vomiting, I'm drugged constantly. I was given a clear path report back in March after my surgeries and rads were just to be done as a precaution. I physically can not…
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update on Jim
Jim saw the oncologist Friday. He said the pain was from pluresy. The ER xray showed less than normal lung function in the left lung. The pain has lessened a lot and doc said Jim doing great considering. What a relief! I was really scared. Thanks for all the prayers and support. Don't know what I would do without this…
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Flip Flop - Pop-A-Top
Here's the flip flops.... A few rainy day flatties fof the box...; Now to Pop-A-Top... John ~JG
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Another First Followup After Treatment
Have my first set of followup appointments this Monday-Wednesday at MD Anderson in Houston. A little anxious about the whole thing but know it is something I need to get used to at least for the next five years of my life. Any advice going into this from those who have gone before... Thanks!
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Spell check
Just for the record- I can't stand the spell check on my I phone and I pad - I am not an idiot who can't spell - it is most frustrating so I just want to apologize for all the spelling errors you may see when I post thank you, Ralph
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Great news
My salvia gland on the right side is back 14 weeks post treatment. Just happened sitting wondering how to get to the next day and bam I could talk and swallow without being in a lot of pain ! Thank you God for answering a prayer .. To anyone going through dry mouth it does get better. Susan
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First Follow Up
Hi Folks, I was in Baltimore most of the day. I had my first follow up with my MO this afternoon. All in all it was very encouraging. I'm doing as well as expected for 6 weeks post Tx. Blood work was decent but several aspects were on the low side as expected. This accounts for the fatigue and gout. As far as the gout…
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Need some help please!
I have had 24 rads, only 6 more to go. About 2 days ago I started being VERY sick on my stomach. I'll spare you the details, but the doc thinks I maybe caught some kind of bug and told me to keep up my fluids. So, I have, and today I feel back to normal. I haven't been able to eat all day because I'm scared of throwing up…
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Friendship
Why do some people who say they are your friends abandon you when you get cancer I've had 2 friends do this to me .
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PEG guidelines draft - solicit your feedback/input
DRAFT - Guide for using PEG during HNC cancer treatements. I have created a draft document that includes much of what flew across the thread the past few days, If you feel having a guide of some sort to assist with the topic of PEG, then I suggest you take a look and add your latest thoughts. I will incorproate feedback I…
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Friendship
Why do some people who say they are your friends abandon you when you get cancer I've had 2 friends do this to me .
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Reoccurrence Rate? HPV SCC Tonsil Primary
Trying to find information on the reoccurance rate of HPV SCC. Since most studies are either, A- outdated, or B- only studied patience for 3 years post diagnososes, this leaves me wondering if there is any studies that show long term reoccurrence rate. I ask here because I imagine some of you may have doctors who were able…
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Planned CSN outage
CSN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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Numbness
23 years ago I had a neuroma taken out of my right foot. In December I had a carotid endarterectomy, dodgy surgery, big cut and deep inside the neck, left me with a 5 inch long scar goinng from below my left earlobe down to underneath my adams apple. After I had chemo and rads in 2009, i could feel a little numbness in my…
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When does the swallowing get better?
Hello there, Have finished radiation and chemo treatments around about 5 weeks ago and have lost saliva or just thick saliva at times was diagnoised with SCC stage lll /left tonsil and part of right tonsil/had tumor on left side of neck with a lympnode involed,was HPV positive,had left tonsil biopsy and found the cancer…
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I have tongue cancer. I think...
Hey there all, so I'm not sure if I should post here or not but I've been having some problems in the last month or so and have been self diagnosing with the help of the ever helpful Dr.Google. I'm sure. 110% that I have tongue cancer, really really sure. I have almost all of the symptoms I can find online and am…
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pain increasing things moving to fast - update
Everyday Jim's pain is increasing and breathing is starting to be a problem. Jim's color is not good either. He refuses to take the pain meds because then he will not be able to go fishing in the mornings. He is very sensitive to pain meds. The Lortab makes him sleep almost 24/7 and he can't be left alone because he starts…
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How long before one can eat or drink again once treatment ends?
Hello everybody! My husband Kenny was diagnosed with metastatic squamous cell cancer of the tonsils, stage IVA, last January. I've been reading these posts for several months now and appreciate all the great information and helpful souls out there. But my husband rarely goes online and prefers to get info filtered through…
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life is a bowl of cherries !
Got back from my lung re-check today. A little more than mind spun. My lung function has dropped to 27%....10 points in 4 months. In the left lung the noduals have stayed stable (no growth). But the right lung, one node is not behaving as well. Up to 3 cm's. So they sent me home with predinsone and yet another inhaler. I…