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I know I am getting annoying
Hey Everyone, I really need to know if anyone out there lost their swallow after treatment only to do excersises and regain control. I know it can and does happen during treatment and you fight to maintain and regain. I am climbing my mountain and you have all (as they said long ago on SNL) PUMP ME UP! i was just wondering…
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Hidey-Ho Neighbor!!!
I just realized it's been a really long time since I was on here. I hope everyone is doing better, getting better, getting healthy, etc... As for me, I get another scan on Friday. Everything has been clean as a whistle so far. Let's have a repeat of that please! My swallowing is good, the saliva is the issue there. I have…
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SCAN RESULTS
Had my every six week CT this past Friday and saw my doc this morning. My neck and throat was clear and my lungs had several spots that for now my doc is calling Aspiration Pneumonia. The spots are "ground glass and opaque" in appearance. I hope this is the case as I have enjoyed an "all clear" status for a couple of…
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Two types Squamous Cell - Rare Combo
Curious to find anyone else surviving with returning squamous cell cancer. My mother started with diagnosis in Sep2005 at 71 yrs old. No teeth already - but now no dentures either. Feeding tube installed Dec2005. First surgery JAN2006 lost inside cheek area with reconstruction from hip graph. No bone involvement at this…
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Ladylacey
My moms diagnosis sounds a lot like your husband. 9 years ago she had epiglottis SCC. She did radiation and chemo and has been in remission for 9 years. January 13 she started having trouble swallowing so ENT did biopsy on pharyngeal wall and it came back SCC. He then referred her to ENT in Houston med center where we met…
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Your follow-up schedule after tx...
Hi All, I was wondering if you each would mind telling me what your schedule of follow-up visits consisted of/and how often after tx. I know Kreg will be seen every 6-8 weeks with scope by his ENT, but he was unclear of his scan schedule, just that it was head to chest. I'm waiting to get some clarification on that and in…
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Journal site now live - PLEASE JOIN and share
Hello fellow CSNers, I built and personal journal website. I did not care for the ones like caringbridge, more due their business model more than anything, and having skills and interest decided to build my own, specifically since I have full control over the look and feel, the content, and the features. The site is ready…
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mind, body, spirit
Hello guys and gals, I'm bringing up a subject that for me as a survivor needs to be addressed. Physical activity, and how to incorporate into our life styles after dx's and tx's. As most of you know my lungs are pretty banged up. The weather in Minnesota is not cooperating for walks outside. Ice, and more ice. Push ups,…
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Peg Tube late in treatment
Oncologists want me to get a g-tube on Monday morning. I have finished chemo and have 4 Rad Tx left. Problem is, as many of you are aware, no appetite, everthing smells and taste like Boost or ensure to me,not able to eat any solids at all. Surviving on a 1300 cal smoothie per day and that takes 8 hrs to drinkand starting…
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Evoxac for Saliva
I've been using Evoxac now for about 4 weeks. I'm about 4 months out from my 2nd rad/chemo treatment for nasalpharengeal/maxillary sinus and eye orbit cancer. I have to say, that, my saliva generation seems much better than it has since my first rads in 2010. Could just be my time to feel better. But I would like to hear…
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Speech Therapy session today:
Had my evaluation from new speech thrapist and now know what happens when you are all 1st dx and referred to speech. DO IT, there is no guareentee that what happened to me @ 12yrs clean won't happen to anyone, but much less likely if you are ahead of it. I would have been, but the technology or connection from rad to…
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Loosing Weight: PEG Tube
I have lost about 5 lbs over the last month in spite of eating quite well. I did have a boost in my thyroid meds and I do not feel freezing all of the time. Perhaps, I'm just burning more calories and need to adjust intake. I really would rather avoid the PEG Tube, if at all possible. Did you guys have trouble taking food…
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MATT talking to Matt
If Matt were to ask Matt... What advice would Matt give to Matt..., I mean concerning Matt of course..., LOL...? JG
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Leukoplakia on the Vocal Cords
I have a friend who was diagnosed with leukoplakia on the vocal cords, where they come together. He saw one ENT who said it was cancer and sent to another ENT. The next one was like a Mc Donald's drive through and scheduled surgery without any diagnostic work up leaving him with no confidence in her plan of care. The…
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What did you say?
Tackstrip posted on a thread about the Voice. As I read through the posts from the beginning, I began to regret doing so. Normally, I'm a pretty positive, glass half full kind of guy but I'm having a "moment"... please forgive me. I just need to vent. Being that my voice is SO important to my livelihood as well as my…
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When to call in Hospice
My husband's cancer has spread and he has elected not to do anything further. Surgery is out due to the fact that it has spread and he doesn't want to do anymore chemo since the chemo will be more and harder than what he has done already. Our oncologists have told us that more chemo won't cure only prolong and could even…
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Say Hello to Tackstrip!
I'm sure there's a better way to do this - - - I just dunno what it may be. Tackstrip's posting was at the bottom of an old thread - trying to start a Forum topic for Tackstrip. Here's tackstrip's post: VoiceNew Well its been almost 3 months since I last posted here. Made it through my Radiation Treatment. It got tough,…
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need to move posts to new thread
Please look at posts by "tackstrip" at bottom of thread with subject "Lost My Voice".... you will need to scroll all the way to the bottom of that fairly old thread. Does anyone know how to move them into a more current thread? They may not be seen by those who might want to help since finding them requires scrolling all…
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Squamous Cell Carinoma on Temple Leading to Nerve Invasion
Hi, I am new to this site. Glad to have found it. My dad has been diagnosed with Squamous Cell Carcinoma that has invaded his facial nerves. he is being told to do radiation. It is advanced and inoperable, so that is the treatment. Another doctor said radiation and chemo. Anyone out there who has been through this and has…
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am i the only one?
am i the only one here who has a permanent trake? If anyone else has one, I'd love to know how you deal with it on a daily basis. How long have you had it, do you still cough a lot with it, do you have trouble breathing thru it at times? If you know of any tricks to dealing with a trake i'd appreciate the info. Do you have…
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Cisplatin Fears
My husband is in the first six days of treatment for SCC of the larynx with cisplatin and radiation. He is down to 98 pounds and sleeps about 20 hours. He runs a fever every evening just at 99.5. He says everything tastes disgusting even water. He has another cisplatin treatment in 2weeks and radiation every day. We ahve…
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Todays scan
had a chest and neck scan at Hershey today, this comes following surgery I had in September to remove a small cancerous nodule in my left lung. Doctor said no cancer, still have a small 4mm nodule in left lung that is not cancerous, it's been there since 2010 and has not changed, I did not know it was there, so I had two…
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Speech Therapy, finally!
Hey everyone, Tomorrow I finally have my 1st appointment with new speech therapist. They said expect to be there an hour, she will get all info and evalute situation to develop a treatment plan for me. Although I won't be doing another swallow study xray as of yet, they may order a tray and have me swallow to see where we…
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PET Can update - question
My husband completed his radiation and chemo treatment in December of 2011. He had a terrible time healing and had many set backs. Within the last month he has had a pet scan Pet scan did light up in 2 places 4.0 and d 4.2. One where the original tunor was and other one furhter down in his voice box. Yhe oncologist said he…
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Katie....you finally added a picture
so we can put a face to the beautiful words, and genuine compassion and encouragement you offer on a daily basis....NICE seeing you, my dear!!! p
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should have listened!
Boy do I have nerves jumping tonight. Against P's advice, I might have over searched the internet this past week, researching every word on my ultrasound report. My findings are they have lists of words that make a nodule suspicious, and those that don't. Of my 6 little friends (2 are huge, in reality) all of the words…
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It's been a long time
It’s been 2 ½ years sense treatment and the mucus is worse how long does it last. My cancer Doctor said she don’t know any thing to try to control it I wake up in the morning choking I get up coughing and blowing my nose I guess it gets in my head, Anybody know of any relief I need some help. Robert
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Liquid diet formulation
Hi all, With all the recent talk about swallowing and "eating" of any form orally and the need to keep swallowing during treatment, I accellerated my experimentation with liquid nutrition so I am not going to be "eating" anything, only swallowing water and liquid nutrition. Personally, the Ensure type stuff is a bunch of…
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Lick It, Stick It, Paste It and Waste it...~Scan Update..
OK, now that I have your attention, LOL.... I have my semi-annual blood test, and it's my annual CT, PET is in six months...tomorrow. So say a prayer, stick me in your pocket, paste me to your mirror....and throw a little MOJO my way please... Oh, BTW..the Subject line is the term we use to use when pasting up bullet holes…
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levothyroxine and psa levels
hi everyone i am a two year survivor of scc.just had a routine physical that included screening for prostate cancer. the psa nunbers came back very high 24 and 10 days later 41. i have been on levothyroxine therapy which has recently been increased. this leads to my question has anyone experienced elevated psa levels due…