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Introduction to my Mom- Squamos Cell Carcinoma in the Jaw - Stage 4a
Hi everyone, My mom (65 yrs) is currently a cancer patient. Her cancer was detected in April of 2012 and she was diagnosed with Stage 4A squamos cell carcinoma in the jaw in September 2012. The tumor mass is primarily located on the bottom of her chin. The story begins with my mom losing her teeth in the summer of 2011.…
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Late term radiation effects
Hi, I am a 12yr Nasioparengeal Stage 3 Survivour, I have the normal side effects, teeth are almost all gone I have like 10 real and 1 bridge, jaw scarred down to with teeth 2 inch opening, taste buds are back and fine, salavia is thicker and does nothing to break down food or wash teeth or relieve my throat. I am writing…
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black mucous post treatment
Hello, Has anyone experienced coughing up black mucous? I am 10 months post treatment and just started having small amounts that I am coughing up. I quit smoking a year ago December when I was diagnosed. Thanks, Robert
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Any professional career issues by sharing personal blog publicly?
What is the general experience of those who have shared publicly their personal blog or journal? From a professional career or business standpoint, does the fact many are aware of your situation hinder current or future business? I run my own business but want to hear if others have had issues arise due to your cancer…
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Hoping Maybe Someone Has An Answer
Hello Everyone, For those of you that had a met or another primary in the lung, could you tell me if your chest hurt in that area? Hubby has had a pain in his chest sort of between the breastbone and left lung for a couple of days now. He sent a reading to the cardio on his Carelink Monitor and although he is in A-fib and…
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Pronounced pain in elbow joints and shoulder joints lately?
Hey all... In the last month I have noticed pronounced pain (scale of 4-5) in both elbows and the right shoulder. This is new. I have always had hip joint pain since my treatments ended in Jan 2012 but I attributed that to my dramatic weight loss of 70lbs and hip joints just shifting to a different place (and my oncologist…
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Help! Ive been on disabality for 11 months,my job might not be there..
Hello every one,Ive had a tumor removed from my neck stage 4 patroid cancer,and 33 radation treatments 4 months ago.....I live in Southern Calif,I drive for a nonemergency medical service,Ive been there 4 years.....Ive been off 11 months on state disability....Im released to return to wk Feb 21...........my job says "there…
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Help! Ive been on disabality for 11 months,my job might not be there..
Hello every one,Ive had a tumor removed from my neck stage 4 patroid cancer,and 33 radation treatments 4 months ago.....I live in Southern Calif,I drive for a nonemergency medical service,Ive been there 4 years.....Ive been off 11 months on state disability....Im released to return to wk Feb 21...........my job says "there…
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How Did You Chose Your Forum Name...
LOL... I decided to post up an old thread on the subject...check it out. There are some very funny origins, as well as some interesting perceptions of what the various forum names were derived... How Did You Chose Your Screen Name JG
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HPV Origin Throat Cancer stage4
My husband has HPV Origin Throat Cancer stage4 and he is only 36 year old. This came suddenly so fast in our life unexpected!! and we started his treatment last week. His protocol is 36 radiations and 3 chemo treatment. He has surgery for port and g-tube before we started this therapy. He is also starting acupuncture once…
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Can I have your opinion
My mother is 73 years old and is recovering from tongue cancer surgery, where they took out 3/4 of her tongue, broke her jaw, floor reconstruction of her mouth and neck dissection. She had to have the floor reconstruction done twice as sutures came loose the first time. They put a wound vac in my mother's mouth for over a…
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**New REPOSTING for Postie a/k/a Brenda**
Hi there, I have been reading all your posts and soaking in the infor. I am a Canadian girl, 47, with stage 2 Squamous Cell Carcinoma of the tongue. I am going for rad #10 of 30 today and have had one round of Cisplatin of 3 treatments. Round 2 is on Feb 19th 2013. I can't believe how much my mouth changed overnight as far…
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huge neck lump and swollen nodes.help
hi all. ive just come across this site and i was hoping someone could give me some advice.3 months ago i was putting cream on my face and nevk when i felt a lump as i was rubbing down the left side of my neck.the lump is about 1 inch above my shoulder.i was also getting a lot of aching on that side of my neck and…
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Update on my husband/Nurses and Some Doctors needed to be better educated about laryngectomees
My husband had a needle biopsy yesterday, and yes his lung collapsed and he is now a patient. During all of this several of the nurses kept saying he had a trach. I told them repeatedly he has a stoma and that that is his airway now. That if he needed oxygen it can only be given thru the hole in his neck. Some knew, some…
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Losing touch
I feel like I am losing touch with my CSN friends. Every time I come to the site I am seeing more and more people I don't know and feeling less viable on the site. I miss everyone and feeling like I can contribute. I am now seeing people who started the journey around the same time and shortly after who are now recovering.…
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Facial Spasms after radiation
Hello all. Recently joined. My wife found this forum for me and I'm looking for some answers. I'm a 54yo male dianoised with tongue/tonsil cancer in 02/11. I went through 2 weeks or chemo (weeks 1 and 4) and a total of 36 radiation treatments. My lower wisdom teeth were removed 4 weeks after completing radiation treatment.…
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Update on Dad
Dad saw the oncologist today and he will start on chemo again this friday. The Dr. said the tumor has not changed that much since two months ago, but he wants to stay ahead of things. We talked about the issues dad was having and he said it was withdrawl from the bad fentanyl patches. Dad will have the same chemo as before…
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Damage to saliva glands
It's me again I promised my dad I would try to find out some things that he has questions about before he starts his radiation on Thursday I have read so many posts but just wasn't sure- When you take radiation does it destroy your saliva glands and if so do they repair themselves after the radiation is over? How many…
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Bowel Changes....
Hi All... I know this could be a very personal topic for most, but I'm hoping for a little advice as to what is normal and when it returns to normal. We are 11 wks post tx and still weining off the narcotics and the fentayl patch (last week for patch..12.5mg) and having bowel issues. They are not consistent. One day it's…
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Oral Neck Cancer Online Workshop
I see Posner is involved. http://www.cancercare.org/connect_workshops/336-treatment_oral_head_neck_cancer_2013-05-15
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nose feeding tube vs G-tube
Hi Everyone, I was wondering, can you get a feeding tube down thru your nose instead of the G-tube into your stomache? Dad is supposed to be starting RADS on Thrusday and this is a question he has. Also, how quickly will the RADS affect his mouth, saliva glads, dry mouth, ect?
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Get a second opinion
My mum at 55 was diagnosed with aggressive squamus cell carinoma 2 weeks ago. The tumor takes up the right nasal cavity, Right maxillary sinus, Ethmoid sinus cavity and erroded the bone between the nasal cavity and eye socket and possible nerve damage in the cheek. The ent team (ent surgeon, maxo facial surgeon, professor…
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Swallowing
Mhusband is 3 years out and still cannot swallow. He has had tests done and has had Pheumonia for a month now and it is due to As[irating everything he swallows. The Dr said Feeding Tube, Husband say's NO...I told him he NOT to try and drink, or blend soup or anything when I am at work. The Dr said it is from Radiation the…
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trouble swallowwing
Hi, I'm new here although I have posted some responses. I had BOT and Tonsil and Throat stage IV diagnosed last dec which (so far) has responded to 3 courses of chem, 35 rads, and modified neck resection to remove about 25 lymphnodes. I had a real rough 2 months with pain, nausea and lots of mucus. I had a feeding tube but…
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Persistent "flem" in throat
I had SCC in 2006 with Rads only then SCC on the other side of my neck in 2012 with Rads and Chemo. I am now 10 months post treatment and continue having "flem" that I have to spit out. I also have lymphedema in my throat which is slowing getting better with the help of hyperbaric treatments. Can anyone else reflect on…
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Haven't really felt like talking
I am 9 days past my last treatment and continuing what the doc called "the worst two weeks of your treatment", so far he has been right on. Stacey, you nailed it on the head, this hairball is driving me nuts. Today I thought I'd turned a corner, only mild discomfort for most of the day. Now, 7:30 PM and it's back in all…
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What is good to help healing process after a removal of the lingual tonsil surgery and biopsies in h
I'm feeling with my hands tied without doing much for my Papi's relieve, he have hart time drinking liquids because his throat have swollen tongue after the surgery, please some suggestions. So I'll help alleviate his pain or make easy his recovery. I feel like I'm not doing nothing to making feel good. Please suggestions,…
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Neck Very Puffy After Treatment is Over
Hi all. I cannot tell you how much your replies mean and how much they provide me with the feeling that I am not alone. I am 8 weeks out from last radiation and chemo. Stage IV neck, unknown primary. I had 7 weeks radiation and chemo. Last week I woke with my neck very puffy on the left side, where I had a neck dissection.…
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Polar Ice Caps - the unofficial survey :)
So, how many of us were on line early enough this morning to see the U of Chicago "research" survey briefly posted on the Head Neck forum (until Admin took it down)? The survey supposedly addressed chemotherapy-related alopecia. Upon questioning, the poster admitted to Pat that the real point of the survey was to determine…
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I Think I Have Tongue Cancer.
Hello, First some history. My name's Gavin and I'm 35 years old. For about five or six years I've had an area of what I now think is white leukoplakia on the right hand side of my tongue. Because the outline of the leukoplakia is the same as three very sharp, uneven back teeth myself and my dentist have been putting this…