-
Fentenayl pain patch side effects
When dad started on his third time with chemo the doctor incresased his patches to 50 mg. He told me there would not be much of a difference as far as side effects. But I have seen a major difference. Dad is sleeping 20 hours out of the day, says he feels really drunk and is having even more memory problems. Could any of…
-
Sportsman
I am Sorry to let you all know that Larry (Sportsman) passed away yesterday. Please keep his family and Wife in your prayers. He was a wonderful Christian Man who put his faith in the God that he loved God bless and be with them in this time of sorrow Tim Hondo
-
Just So Disappointed
Just when you think you finally might have all your ducks in a row, one of them drowns! For months now, have been waiting to squeeze in the opportune moment for hubby to have his dental work done. Have kept in contact with oral surgeon regarding all the various setbacks. Last Friday, they called to schedule the surgery and…
-
My Day of Diagnosis - For all the newly diagnosed on here
I see a lot of new folks on here. This is not meant to depress or be a downer, but if you were like me your first day, week of diagnosis your world was spinning as much as your head. You are NOT alone and your online family cares. Here is my first day of diagnosis story…
-
Pat Derby - the passing of a fellow warrior
Pat Derby - I had the pleasure of meeting her once. She was the founder of ARK 2000, and PAWS, the Performing Animals Welfare Society here in central California. http://www.thepinetree.net/index.php?module=announce&ANN_user_op=view&ANN_id=34182 "It had to begin with elephants. I was born in love with all elephants: not for…
-
Newly diagnosed
I was just diagnosed today with T1 SNUC. Had surgery on January 31, 2013 to remove nasal obstruction. What should I do next? My doctor is very unfamiliar with this and he is actually researching information also. Any help would be appreciated! My doctor thinks I will need 6 weeks of photon radiation 5 days a week.
-
Any recovering addicts post cancer treatment
Is there anyone on here that has been a recovering drug addict and than gone through cancer treatment? Jeff has been on the roxinol and fentenol patch. He is having trouble coming off. His thoughts are tending to wonder. He is thinking of going on methadone. Has anyone been through this? Sue
-
looking for answers to SCC stageIII in the tonsils
Was just wondering about what to expect.I'm A First timer, have been diagnosed with SCC stage III and HPV+ I am a smoker but recently gave that up over a month ago.the cancer is in my left tonsil and have a mass on the side of my neck below the ear.Doctors want to do 33 treatments of radiation and 6 to 7 treatments of…
-
vaccine ... so near and yet so far
It is so frustrating to know that vaccines like this are so close to being perfected, yet so far from being available to the patients who so desperately need them: http://www.emergencyemail.org/newsemergency/anmviewer.asp?a=2629&z=33 French researchers at the Universite Paris Descarte in France have invented a promising…
-
Set back
This has been the worst couple of weeks. Jeff finished Rads on 1/31, yeah. Than we got snow almost everyday (we take care of commercial places that need to be plowed/shoveled). He broke out with the erbitux rash (finish chemo 1/25) two weeks later. Really bad, a lot of pain. My daughter's father died 2/7. Jeff started…
-
A Very Poor Day
Ran a fever (100.5); which make one feel like sh*t all by itself. Skin burns all over. Burns when just clothes tough it. Legs arms etc. NAUSEA. Other types of pain. Can't concentrate. Hard to even take the meds. So this is what round-2 of chemo is like. Three more weeks of round 2. I did say that chemo would almost kill…
-
A question about swallowing....
I want to bounce this off the group. Last weeks surgery makes it two tonsillectomies I've had in 3 months. The first (Dec. 21st) they removed the palatine tonsils. The standard get your tonsils out tonsils. Along with that they did biopsies of the BOT and nasopharygnx and a laryngoscopy. That, for lack of a better word,…
-
Turmeric?
Stumbled across this article and wondered if anyone has heard of turmeric being beneficial as an adjunct to cisplatin? Link: http://oralcancernews.org/wp/turmeric-makes-chemo-more-effective/?pfstyle=wp
-
Recovery- Sore Throat Worse
Finished rads 8 weeks ago. Was feeling gradually better until Wed. Had a dental cleaning Wednesday and two days later throat hurt much worse. Is it normal in recovery period to have throat pain get worse? Two steps forward 3 steps back? Still not able to eat anything other than pudding and milk shakes.
-
Recovery- Sore Throat Worse
Finished rads 8 weeks ago. Was feeling gradually better until Wed. Had a dental cleaning Wednesday and two days later throat hurt much worse. Is it normal in recovery period to have throat pain get worse? Two steps forward 3 steps back? Still not able to eat anything other than pudding and milk shakes.
-
Beer or Wine Never Again?
Me - Stage IV HPV neck, unknown primary. Neck Dissection, 7 weeks radiation and chemo. One of my doctors said never to drink anything with alcohol and another said one or two beers or glasses of wine every once in a while is just fine. I am still without much ability to taste so neither have been a temptation. When (notice…
-
popping in to say hello !
Hello everyone ! I'm doing pretty well after that surgery in December. Still having issues with the lungs, but no more surgeries. (ever...wouldn't make sense) I am completely off of the 02, but get weak very easily doing every day activities. I remember I could shower, dress and be off to work at 4:30 a.m. in 20 mins. Wow…
-
"Rare Event": the Definition
I have often posted that I thought a "rare event" would be being hit by falling space junk. Then today, 1000 Russians are injured by falling space debris. Not so rare, I guess. So I guess that "rare" is an event that happens to someone else. If it happens to you, it is not rare. How about that for a good definition?
-
trach out
Haven't been on here for awhile, wanted to let everyone know that I got my trach out 2-13-13 after 2 years from my Laryngeal cancer, best ever Valentines present, I am blessed and thankful. bjw1955
-
Dillaudid (Hydromorphone) drug side effects
Anyone have side effects from the drug, Dillaudid? We're 11 wks post tx and trying to get weined off of these drugs, but having a hard time with this drug. Seems as though his stomach hurts along with other body aches and he takes the Dillaudid, then it helps dissolve the pain to almost nothing then the cycle returns…
-
Voice TEP
Hi ,I have the TEP but for a back up in case it failes me I have Purchased an I Phone 5 or you could us an I Pad ..And on this phone threw Gus Comunications I have purchased an APP that will speak for me ;they have phrases already on it or you can write whatever you want to say and it will speak for you .I like it a lot…
-
"WTF"
Sorry about the title, but just didn't know what else to say. As you know, we are caught somewhere between the H&N and Lung Cancer. I can't really identify with any of the Lung Cancer posts so I guess you guys are stuck with me for a while. For many years now, I have been presenting each and every physician we see with a…
-
Jaw discomfort in area of Mandibulectomy
Having a lot of jaw discomfort in area of mandibulectomy. The new mandible/flap feels very swollen. It is not mucositis. I'm on Rad #13, chemo # 4. Just wondering if others experienced this, Thanks
-
Have I
told you lately that I love you?~~~~Happy Valentines Day All!
-
~ SweetBlood22 - Dawn - Out of Surgery - March 20 PM
SweetBlood22 - Dawn has had some issues for awhile... Just talked to her and unfortunately she has to do battle with the beast again. Not a recurrence, different issue, different area, but still SCC. From what I gather, surgery is on the agenda and if all works out after scans that could be it. If not, then additional…
-
NO DOOM & GLOOM ~ Speckled Perch ~ Crappie Fishing
Camp Mack ~ Lake Kissimmee John Karen These were from this past week-end... Karen is a friend of Shelley my wife. Karen likes to fish, where Shelley is more a girly girl...LOL. Hurry up, get through with your treatments, or just a visit to Florida and look me up. Even a Bad Day of Fishing, is better than a Good Day at…
-
Fatigue or Depression?
I am exactly two months from my last radiation and chemo. Neck cancer, neck dissection, unknown primary. I find I am still sleeping what I consider too much. About 8 to 9 hours at night (awake about 4 times to drink a little water), then two naps a day. Some days the naps last an hour or two sometimes 3 hours each. I do…
-
Not sure if saliva or
m ucus, during the day the left side of my mouth and tongue seem to be constantly wet with either saliva or mucus, likely mucus. Its not really a problem physically but seems to be on the left side but not so much on the right side. The left side of my tongue still has some discomfort but I would not call it pain, more…
-
One of Us!?
(Please don't read anything political in this at all) Last night I was listening to the State of the Union address. (I am a radio guy and, besides, I was fixing the microwave) At one pojnt I went to the basement where my son was watching the response on tv (school assignment) and just as I looked at it, Rubio reaches off…
-
One of Us!?
(Please don't read anything political in this at all) Last night I was listening to the State of the Union address. (I am a radio guy and, besides, I was fixing the microwave) At one pojnt I went to the basement where my son was watching the response on tv (school assignment) and just as I looked at it, Rubio reaches off…