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Head and Neck Cancer

Archives for January 2013

'I've looked at life from both sides now...' - Joni Mitchell
Feeling sad. My mom, who lives in Kingman, AZ, was rushed to the emergency room last Wednesday with extreme breathing difficulties. She is 80, and a lifelong smoker. The doctors discovered by X-Ray and CT scan that she has a mass in one lung that has spread and is wrapped around her trachea, and that her lung is collapsed.…
Dear Saliva........
You've been away for far too long and I really miss you! Its been since July 2012 that i finished rads and still no sign of any new saliva. Is it still too soon for me to be whining about this? Its not like me to be negative, I'm usually a glass half full kind of girl but this is making me nuts. I have bad days with the no…
Dear Saliva........
You've been away for far too long and I really miss you! Its been since July 2012 that i finished rads and still no sign of any new saliva. Is it still too soon for me to be whining about this? Its not like me to be negative, I'm usually a glass half full kind of girl but this is making me nuts. I have bad days with the no…
Just some additional venting.....again
Tomorrow is my husbands last chemo (20mg cisplatin/30mgs pacitaxol x 6 weeks) - so we are very happy at least one half of the treatment is coming to a close. Then there are only 5 more rads, done next Tuesday. His issues are with nausea. He's throwing up several times a day... In the morning lots of mucous and it's bloody…
PMs?
Hi All, I wanted to look at my personal messages - specifically from BarefootBob - and it seems they are GONE. I do hope there is a way to retrieve them because each and every one of them have special meaning to me. Have I missed something with this update? Thank you. Lynda
G tube removed. Finally!
I am glad to report that after 5.5 months I’ve got rid of the G tube. Mine was the type with a small hemisphere (mushroom shaped) end. They pulled it, I felt a kind of quick pain similar with a strong gastric contraction and it was out (with a pop sound). It was kind of painful for the first few minutes, but mainly because…
only 15 years late
This morning I went for my first ever colonoscopy, the nurse made the comment, I was only 15 years late..really! Anyway, they had to remove lots of polps and I go back to the Dr in 2 weeks for results. For some reason, I'm not afraid or worried,I've put in all in God's hands
trental and scar tissue
my new radiation oncologist just gave me a script for Trental (Pentoxifylline), and instructed taking it with Vitamin E to break up scar tissue in the throat. getting home and looking this stuff up, I started wondering. I don't suffer from the common usages listed: obstructed arteries in the limbs, neuropathy, vascular…
HPV H&N on the Today Show
Wow, the Today show just had a segment on the progress of Cancer treatment and spoke about how many cancer cure rates are going up. Dr. Nancy though brought up the "alarming" rise in HPV Head & Neck cancer and was pushing for all children to get the vaccine. Joe Cortney Dallas, TX
What do you think of this poster?
A few months ago I started a Head and Neck cancer support group. There are not many of us out here and I felt really isolated when I went through treatment. I all but stalked Phrannie, when I found out she was local. In any case, here is a draft poster...What do you like and what should I change?
Change in staging"depending on which doctor you talk to?
Hi my name is Claude,Ive been following u guys on here for a few months,Ive got more info on here than at the VA I go to..Im greatful for my treatment,but feel doctors are "rushed"....Im experiencing MUCH fear on some days,and peace on other days.....The unknown is SCARY..
Back at Markey
Well today starts David's next round of 96 hours of continuous chemo. They drew blood and found his hemoglobin is 7.2, which means yr has to have two pints of blood before they can start chemo so start time change from 5 to probably 11 tonight. I am hoping this round goes better. They want to try to do this without another…
BarefootBob Robert RIP
Its with a sad heart that I just read on Caring Bridge that we lost Robert this morning. Our prayers go out to his family at this sad time in their life. He was blessed to have them and visa versa. Losing one of our own hurts and for the CSN family we want you all to know you are in our prayers and may God continue to…
Back Pain
Things are not well in our household. My wife burned her mouth badly (by eating soup). And it might have gotten infected. She is running a low fever. My back has been hurting. Originally, I thought it was muscle strain; but it has not gotten better. In fact, it has become a magnitude more painful. I am in the middle of…
NPC Tongue Paralysis
Hello everybody!! I was just wondering if anyone has had tongue paralisys post NPC treatment? And if yes, is there anything that can be done? I am almost 5 years post NPC treatment and last February the left side of my tongue paralyzed and now it is the right side. Also have vocal cord paralysis (mostly left sided), dry…
MD ANDERSON IN AUSTIN TX AND AUSTIN INFORMATION
My wife is being recruited for a big job at Dell Children's Hospital, University of Texas Medical Center and if she accepts, I would need to be able to continue my treatment. I do know MD Anderson has a facility in Austin. Can anyone comment on their experience there, and even recommend an Oncologist who specializes in H&N…
cancer of the epiglottis
I was wondering if there is anyone whom had/has cancer of the epiglottis. I have been searching symptoms of cancer of the epiglottis to see if spitting is a symptom. I have been unsuccessful. One of my husbands symptoms that brought us to the dr in the first place was constant need to spit. He is 1o weeks post treatment…
Clarification received from the surgeon
Hello, I'm 35 years old man with nasopharyngeal carcinoma. I just finish my treatment,35 radiation and 5 chemo+5 FU. I just receive my MRI report and it is very confusing,looks like there is some cancer cell left or other part of my left side of my nose. Now i have no idea what will be next since i finish the regular…
Pet Photos..
We have done a spin of this in the past, changing out avatars to our pets for a week. Once even changing our avatar to our caregiver or spouse...kinda fun, but a little weird, LOL. Anyways, with Rick's golden, Matt's calico (I believe), and I know Phrannie will post up her new boy and maybe her bestest sheppard...Maybe…
Lympho Vascular Invasion after complete removal of tonsil with ample negative margins
My wife age 64 was diagnosed with stage 2 SCC of the left tonsil and has had a radical neck dissection (biopsy of 33 lympth nodes all negative) and robotic surgery which removed the tonsil and surrounding tissue with ample negative margins. Surgeon indicated that she might be able to avoid Rads due to the success of the…
colds or flu?
Have any of you had the flu since completing treatment? Did you get the flu shot vaccine?
Week 5 Post Tx....Food not appealing, but must swallow.
We are at 5 weeks post and have the liquid swallowing down pretty darn good, but food is a bit of a struggle. He says nothing seems appealing. Kind of has a funny taste in his mouth. Has tried some strawberry jello and can taste the strawberry and not too bad tasting. Drinking his Ensure/Boost by mouth now and the…
trial phases
just curious, can anybody shed light on the difference in phases? I'm in a 5-year phase-3 erbitux trial--although I didn't catch the phase part until today. there's also a phase-2 erbitux trial going on. thanks!
What happened???
Something is different. Nothing is in the same order. Not that i'm OCD but you get used to things right?
acid reflux
Just a short story of treatment for acid reflux and stomache burning after eating.TX. stage 4 lung and B.O.T ( chemo & rad ) Tried about everything on the market for stomache burning and acid reflux--to include bed raised. Apple cider Vinegar cured, mixed with half water and half Vinegar. Not a very good taste but it shure…
Who is shanghai?
And why is it at the bottom of so many posts..old and new?
Update on best friend's husband
Hi all: Hope everyone had a wonderful holiday season. I went to Charlie's folks for Christmas as usual. Shorter time though since I'm now working. (DAMN, that working does get in the way doesn't it?) My sister came down Thurs after Christmas and stayed till Sunday. I spent a quiet New Year's Eve with my boys and watching…
Mouth Pain
Hello, I just joined the site tonight. This is my first post. I had cancer of the tongue that spread to my lymph nodes. August 2012 I had surgery to remove 1/3 of my tongue and the tumor with surrounding lymph nodes. I had 33 radiation treatments and 3 two-part chemo treatments. It was extremely rough to get through. I am…
Officially NED !
Well just received the phone call.....and after one year I AM DEEMED NED ! I will still be going in every three months for scans because of the dx I have and staging of. But '13 seems to be a very lucky number for me. I hope to soon go out and celebrate.....and P I am doing the kitchen dance with just a bit of trouble…
No longer employed
I sent my letter of resignation and it will be accepted as of January 7. Today I get emails shocked my husband is so sick. WTH? Now they are going to pretend they didn't know what I was going through (am going through). I know I am ranting, but don't add insult to injury. The truth is they knew and either didn't care or…

Head and Neck Cancer

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