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Head and Neck Cancer

Archives for January 2013

Pain Level 8
Since a week ago Friday (Jan 4), I've been experiencing an ever increasing level of pain. There are actually two pain areas/levels. About half of my back is at a Level 4, and there are at least two pencil-sized spots that average about a Level-8. Touching the Level-8 area always triggers that high level of pain. The…
tattoo
I thought I'd show you guys the cool tattoo that my husband got in support of H&N cancer. I go to USC for my surgeon/ENT and their H&N unit has declared the giraffe the official H&N cancer animal. They've taken his long neck and created the cancer ribbon out of it. I think it is so awesome and such a clever idea. This…
My Bell
I think I mentioned that as a surprise my husband had this bell and plaque made for me as a finishing radiation gift. When he saw the bell at the oncology office he wanted me to have my very own at home that could be rung on special occasions and milestones. I rang it for the first time after I got the news that my PET/CT…
Erbitux?
Jeff was switched to Erbitux for his last 3 chemo's since he had the ringing in the ears from cisplatin. Before they gave him Erbitux, they infussed him with benadyl. He had it at 9:30 in the morning and slept most of the day. Then from 4 til 5 in the morning he could not pee. Anybody else have this issue? I know morphine…
Vitamins
I checked the Superthread (thanks Sweetblood!) but didn't find this particular topic. Doug hasn't had a Boost nutrition drink for months (during treatment he was doing 4 daily and later would have one or two on busy days or after playing hockey). I'm thinking I'd like to make sure he's getting enough of the important…
BOT BIOPSY
Recently I have posted about the possiblity of a deck dissection, but backed off that until it becomes a reality, and I appreciated the many responses I got. I will be having a biopsy under anestesia next week, for BOT review. Im told I will be put under out why they run the tubes and send in the equipment to slice…
Stage 4 Tonsil Cancer-It's back?
My husband just informed me that he feels another lump in his neck. His last treatment was 2/28/12 and his last doctor appt was 10/12 where he was NED. He did Chemo and rads but no surgery. If this is back, what are the next steps????? I'm so confused.
Positive margins
Has anybody had a positive survival outcome after having positive bone margins after mandibulectomy for stage 4 ssc? If so, can you tell me what treatment protocal was used? for example, rads/erbitux, rads/chemo? Thanks, P.
At wits end... What wit?
Today, er yesterday was a new low for me as a caregiver. After not being able to take meds recently, and being up all night wretching for two nights straight, after losing 3 lbs over night, we walked into the doctors office, where some being who took over my husbands body snapped at me and said 'you better not get me…
Very stressed
I have found myself very stressed today. I have had many days where I actually believe David will miraculously come through. Today hasn't been one of those days. We finally heard back from Wells Fargo. They want to see if he can find work in six months so they are doing some sort payment plan. If he doesn't find a job in…
"On The Road Again"
Just not sure of the direction we'll be taking. Hubby has been to Wound Clinic and now has a special $50 shoe to wear to relieve pressure on a foot ulcer. Next stop was the Nephrologist. His kidneys are slowly improving, but due to damage done in Emg. room while the idiots tried to insert a catheter, he must now see a…
Muguard-"NOT MEDICALLY NECESSARY!"
Our health insurance denied covering the muguard because they said it was not medically necessary. If I wa a mean spirited person I would like that clinical pharmadist who made that decission find out one day what is like having your mouth and throat nuked. I sure than it would be "medically necessary" At least the cancer…
What Can We Expect?
Dear Survivors: I hope that I will be saying that about my fiance in time, but right now we are facing T3N2 of the larynx. The "tumor board" has recommended to try chemo and see if the tumor responds. Can anyone tell me what that really means? And if you've been through something similar? Thanks Colleen
Dear cancer,
Dear cancer, I hope you get cancer and die! ~Cureitall ~~ just one of those days, needed to vent. Feel free to address the beast if you wish here~~
CareBridge
Can someone post a link to David's page? I can't find it
5 months AFTER surg
yes 5 months after surgery and radation, my site, the jaw is still sore, is this normal,tired of pain pills?
My Randy...
With the heaviest heart, I share that my husband lost his battle with the beast this evening. With the happiest heart, I share that he is no longer suffering! Thank you from the bottom of my heart for all of the support, kindness and prayers relayed to us over the past 22 months. I wish only NED for everyone. With love,…
Can someone recommend a toothpaste
Anything with any mint or other flavoring is burning the crap out of my mouth. Trips to the drug or grocery store has yielded nothing that will work. Suggestions please!! Thanks, Joe Cortney Dallas, TX
Honest....I'm not ignoring
all the new posts. I'm just having a hard time getting on here, and having the site work for more than the time it takes to answer one post...then goes into it's 90 minute spin....CSN, for all it's old problems did used to work better....it'd go offline for a day every now and then...but that was it. This has been going on…
more than half way
20 rads down 15 to go. Insurance denuied the Muguard but the hospital gave some bottles, thank goodness. Jeff does,'t mind taking it anymore since he can't taste it:_ But hard not to drink for an hour. So he drinks his bottle water that tastes like salt water. Everything tastes salty. And just takes the Muguard more often.…
more than half way
20 rads down 15 to go. Insurance denuied the Muguard but the hospital gave some bottles, thank goodness. Jeff does,'t mind taking it anymore since he can't taste it:_ But hard not to drink for an hour. So he drinks his bottle water that tastes like salt water. Everything tastes salty. And just takes the Muguard more often.…
Just checking in to say "Hello"
Hello Everyone, I just wanted to let you know Connie is still NED after almost 2 years. I hope everyone that helped us is doing good health wise and otherwise. Everything I was told on this site came true, my wife is doing better all the time, feeding tube removed and eating just about everything she wants to eat. She…
Mom comes home tomorrow!
I'm definitely excited and a little nervous. I know she's so excited to finally be home, even if it'll be at my house instead of her home... she's just happy to be getting out of the hospital. Despite both of her 'scares' due to an idiot nurse, she passed today's 'pop quizzes' (swallowing, etc) as her doctor called them…
1 Year NED!
Happy to say that I had CT w/contrast this morning and results showed NED! God is Good :-) During my journey and the dark days of radiation and chemo I lost sight of the goal and everytime I hear NED it reminds me of why I went through it all. To those beginning or in the middle of the journey, don't lose sight of the…
15 down 18 to go
Well it's official. Can't taste a thing. This morning was the first time I couldn't taste my coffee and my French vanilla creamer . Food, pop, even water tastes funny. So far side effects include; mild soar throat, no taste, fatigue and skin is a little red in area radiating. Did I mention no taste. Yuk Luke P.S. I had…
January 21st - Tooth extraction
My husband went to see an oral surgeon and they will be extracting #10 and whats left of number 11th (tooth broke off and was infected). At this time, there has been no metion of HBO treatments. I will update his progress. I know a few people have been asking about tooth extractions. Well. my husband will be your guinea…
Continued Throat soreness
Hello all I have been around this site since my diagnosis in Oct 2011. Not much of a writer, but found so much info on this site sorry I have not chimed in before. I was diagnosed with Stage 3 BOT with minor involvement of 1 node on the same side. Was scheduled for 3 rounds of Chemo, but hearing loss after the second was…
ALKALINE WATER
Hello,guys (and gals)...I was wondering if anyone belives in the drinking of alkaline water to put cancer at bay?.....also this "Zesting"..which is grading outer layers of lemons and limes,then sprinkling it on a salad....I relize sick folks will try ANYTHING to feel better,I just dont want to spin my wheels.....I heard…
Miracle, Mom is NED!!!!
Hello Friends, although I don't post that often I read everyday and I follow everyone's journey, this is the place of piece and enouragament for me. For those of you who know my mom's story she had 2 head and neck cancer recurrances since her diagnosis in 2010. After the last surgery in March of 2012 she had scans done and…
Still around C hasn't got me yet
Wanted to post & let everyone know that I am still alive and kicking. I actually have been getting along very well with hospice care being extremely helpful, and I would recommend it to anyone in a heartbeat. My pain medicine was changed to methadone with oxycodone used for breakthrough pain, I am also on an antibiotic as…

Head and Neck Cancer

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