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Merry Christmas and Happy New Year
I have taken a break from posting, but do log in on occassion and check in on everyone. I wanted to take a second and wish everyone a Merry Christmas and Happy New Year. Sirena
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Ready for Battle
I just wanted to say thank you to everyone who reads and responds to these boards. They have been a lifeline to me and when I can't get the server to let me in....I realize how much they mean to me. I have everything ready I think. We are moving to Boston for two months and start Cisplatin/Rads on 12/18. People often ask…
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MERRY CHRISTMAS
°_██_*。*./ .˛* .˛.*.★* *★ 。* ˛. (´• ̮•)*˛°*/.♫.♫*˛.* ˛_Π_____. * ˛* .°( . • . ) ˛°./• '♫ ' •.˛*./_*_*_*_/~\ *. ˛*.。˛* ˛. *。 *(...'•'.. ) *˛╬╬╬╬╬˛°.|田田 |門|╬╬╬╬ . ¯˜"*°•♥•°*"˜¯`´¯˜"*°•♥•°*"˜¯` ´¯˜"*°´¯˜"*°•♥•°*"˜¯`´¯˜"*°• MERRY CHRISTMAS -
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Monday's the day; any suggestions?
Still fairly new to the sight, but looking for some advice on how to get through the next couple of weeks. My husband's surgery to remove part of his tongue and all the lymph nodes on both sides of his neck is Monday morning. I already am having major difficultly sleeping, working, or doing much of anything except…
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heartburn
Had first chemo monday.. third radiation today for tonsil cancer. today since noon fighting horrible heartburn in spite of taking three times dose of rx for usual acid reflux. eating only helps for short time. any ideas
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An early Christmas blessing..
Hello to all, Our family received an early Christmas blessing I wanted to share with this family, my dad went for his pet-scan and has NED. Thanks be to God.. He was diagnosed 8-8-11 and finished treatment on 10-24-11 so this is our one year Scan. it is overwhelming. I wish you all a happy and healthy holiday and send My…
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LOOKING TO MAKE SOME SERIOUS LIFESTYLE CHANGES AND NEED ADVICE
Due to not only having trouble and being stressed out with trying to cope with having only "treatable cancer" combined with trying to keep my relationship with my wife as healthy as possible and also being stressed out with a job that now will have some uncertianty in 2013, I am giving serious thought to applying for SS…
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NED
I saw my onco today, my CAT scan from monday is NED, I don't have to go back to see her for another 6 months vs the 3 month visits I was having, when she sees me in June we will make a decision as to when to remove my port, I'll still continue with my ENT and rad doc visits. While I'm thrilled with the NED, I am also sad ,…
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SCAN UPDATE
Well, what a difference 6 weeks makes. 6 weks ago my first every 6 wek scan for the clinical trial I am on revealed that the tumors in my lungs had not shrunk, but did change in appearance. yesterday's result was that the tumors have all but gone away, no resolution, noting recognizable. I am in shock, and this has not yet…
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carotid artery damage from radiation treaments
i had throat cancer in 2008, after 35 radiation treatments and 9 chemo treatments i was declared to be in remission, but i was told the my carotid arteries were 80% blocked. this was from a c-scan. i was sent to the university hospital and had an Ultra sound done and it showed me to be barely 50% and 60%. this year my test…
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Trying to stay positive but I'm back for morale support and prayer
Hi guys and gals, Wasn't gonna post until after the 18th. Yeah well after todays pre-op....well I need that shove I had earlier asked for. I'm having the vats procedure/wedge resect. I have 37% lung function according to the spirometer tests they have been doing. Both my lungs are enlarged, but my heart so far is strong.…
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My CSN family
I want to thank all you head and neck people for becoming part of my family. This has been a very hard and dark place for me the past few months. Today I was doing some figuring and it has been 139 days since my husband has kissed me and 83 since our last hug. It is so hard seeing my best friend so sick and trying to…
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Good Article
This is an interesting article from one of my English newspapers it has also been on CNN and Dr Sanja Gupta, heres the link http://www.dailymail.co.uk/health/article-2246312/Girl-7-beats-leukaemia-revolutionary-treatment-using-HIV-virus-wire-immune-system.html This is the natural product what I have been talking about and…
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Getting through the days until first scan.....
Hi All, Just wondering how some of you that have been through your treatment got through your "dark days" after tx to your scan? As a caregiver, I'm finding it a hard to help get him through these dark days. And when I say dark, I literally mean the dark in the sense that he is becoming scared of the dark. Does not like to…
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Great News!
Hi all: Just wanted to let y'all know that my bff's husband's Steve's needle biopsy of the lung came back as scar tissue and inflammation! Still want him to see a pulmonolgist but the big news is it wasn't cancer! Praise the Lord! And thank y'all for your prayers! God Bless! Love y'all. Jan (Basketcase)
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Christmas is in the air~~~
I haven't been posting much lately, family in from Chicago, parties, dinners, shopping and still babysitting my 4 year old..busy, but I read your posts every day and love you all..just no time to answer every post..be kind to each other, and bless you all.. Merry Christmas and the Healthest New Year possible
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Tim6003 Heading to Seattle Cancer Care Alliance for lung scan follow-up
Hello family :) (that's me buttering you all up) I am off to Seattle for the reasons stated above. Many of you may remember my last CT w/ contrast showed "granulated glass appearance in the upper left and lower left lung as well as 3 (presumably new) nodes in my lower left lung. The largest node was 7mm. I've gotten some…
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To VivianLee
I'm going to go out on a limb here; but I hope our little group agrees with me. Vivian's love for David is the single most noticeable facet about their journey. Her love is beautiful. Her love for David lifts us all. It is the type of love that makes life worth it. We see all her pain and we respond to that pain. But…
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Rad starts tomorrow
Jeff starts his radiation tomorrow, the journey with the beast starts for real now. The last 2 weeks have just been full of readyness, but reality sets in now. God help me keep it together for him, please.
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Lung Biopsy Results
Today, Monday Dec 10, I got the results from last week's lung biopsy. Unfortunately, the biopsy was positive for lung cancer; the cancer was squamous cell meaning that it almost assuradely had spread from the neck (larynx). The recommendation from my medical oncologist was to watch it with a CT-Scan every 4 months. When it…
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Cat Scan Today
Hi all, Well my oncologist lost her peer to peer request with my insurance company to continue with a PET scan every quater. This month it's a CAT , which my insurance has approved for me to have every 4 months.It took the tech longer to find a vein, I have small ones that roll, than the entire scan lasted. I guess I…
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Anyone else have trouble getting on CSN?
I am having a time getting on CSN discussion board lately. The last few days I was not able to access it from my home or from my work computer. It's running VERY slow and just keeps saying "page not available" On the few attempts I did get in, it booted me off shortly thereafter. Just wanted to make a comment thread so…
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SCANXIETY TIME AGAIN
Hello all, and hope everyone is trying to get excited about Christmas and forget about C for a moment. Been a while since I posted any updates, as I continue to struggle with "cureable VS treatable." I did keep my appt. with the Onco. Psychiatrist who made allot of sense, and also placed me on an anti-depressant, that…
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Oral Radiation & Metal Fillings
I was diagnosed and successfully treated for a SCC on the base of my tongue and tonsil wall about 3.5 years ago. I had 33 radiation treatments. About a year later, I had two molars extracted in the "ground zero" area of the radiation and promptly developed osteoradionecrosis. The ORN has made the cancer seem like a picnic.…
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My feel good story
Over the weekend, my husband & I were out to a nice dinner. I noticed the young couple next to us ordered water and split an entree. I asked the waitress to put their meal on our ticket. When they finished dinner she asked if they wanted anything else and told them they didn't have a bill because we picked it up and said…
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trying to find words
I am trying to find something positive to report; however, all I want to do is scream . I want to yell because I am tired of crying. I don't want my husband to die.
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My anger is overwhelming
Hi All, I'm a caregiver. Lost husband to unk. primary cancer/metastasis to bones when he was 39 (about 18 years ago). Experienced subsequent cancer care situations with a friend (prostate) and my Dad, (prostate, SqC--floor of mouth 2002 and recurrence now). Tuesday is mask-fitting day. 1st time for rads. Dad is 94. So,…
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Stronger
Posting this because all of you show amazing courage and this video is a tribute to that trait. Link: http://www.youtube.com/watch?v=BaQdwTsVtCY
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Any pain after peg tube removal???
Hi to all, I am just wondering if anyone who had the peg tube removed experienced pain at the site after eating. My dad had his Mickey button removed on Tuesday (hooray) but after he eats he has pain where the Hole was for about an hour. Is this normal? By the way, to celebrate the removal of his button (as we called it),…
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Symptoms showing early
I am curious, if you don't mind sharing. Did those with treatment do better? or are my expectations way off? The Drs told us that Dan would feel great for the first two weeks of treatment, that it wouldn't get bad until the third week. Well it doesn't seem like things are 'great', after just 4 treatments and 1 chemo . His…