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Got some good news today
Having something positive to say is so rare for me that I thought i'd share. As an update I'm SQT1 N2C and finished my third round of Induction Chemo (may you never have to go through it). I went to see my ENT today for him to take a look before we begin Chemo/Rads. After scoping me out and a thorough exam he could find no…
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WHAT IM THANKFUL FOR THIS THANKSGIVING
Im Thankful for Gods gift of Life that I am here. Im Thankful for Diane my wife and caretaker who I am so blessed to have in my life. Im Thankful for all the Doctors that took good care of me. Im Thankful for the nurses and others that treated me so well, with care and dignity. Im Thankful for my family and so many friends…
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Another NED - me!
Woo Hoo! Just got NED after my last PET scan in July. The onc. was a little concerned about an area in my neck but he thinks that was just me swallowing during the exam. Let's hope for another NED on at my follow up in March. It may sound small but going from a 3 month PET follow up to a 4 month PET is big to me! 2 year…
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I am still NED FREE ppl.
Hey Guys sorry that I havent been posting here lately its just been busy here with all the stuff I been dealing with but I had my PET scan last thursday and met with the chemo doctor yesterday and he said I am still NED aka cancer free so I been cancer free now for 2 years since nov 2010 and also I just wanted to pass…
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Tomorrow we ring the bell
Well, tomorrow we ring the bell. We met with the oncologist today and the last Cisplatin was cancelled due to hearing issues and tinnitus. He received 2 out of 3 doses and if he received a third treatment it would be a decreased dose and dr explained that the decreased dose has not been shown to make much difference. He…
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UPDATE ON MY METS TO MEDIASTYNUM AND LUNG
Hi and hope you are all well and ready to celebrate Thanksgiving. I am just about half way through my second battle and I must say I am having a very hard time coping with the whole "treatable but not cureable" diagnosis. My first scan at 6 weeks revealed that the tumors in my lung had not shrunk, but have changed in…
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10 weeks post tx - meeting a doctor tomorrow
Hey everybody! My dad is having his first check-up tomorrow afternoon. It will not be PET or CT yet because it will probably be next month. Now he is 10 weeks post chemoradiation. Tomorrow he is having an appointment with ENT and probably his onco doctor, and dietitian. I hope that everything will be ok and ENT will give…
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Thanksgiving with NED
Greetings! I don't make it back here as often as I should. As the months turned into years after the end of treatment in late spring in 2010, I kind of got wrapped up in living the "new" normal. All-in-all the new normal has been pretty good. Anyway, I just got the results back from my annual CT Scan of the neck / chest. I…
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Need a couple of more prayers
Hey guys. Dad will have another CT scan tomorrow and get the results on the 30th. I have a very strong feeling we will be back in treatment. He is starting to have some mild ear and jaw pain. Please pray that we caught it and time and the chemo works as well has it has before. Also, my boyfriend just found out the he needs…
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Prayers please!
My husband Nelson is having a sedation MRI today to check for brain/spinal swelling effects from his radiation and chemo treatments. Please send your vibes that they actually find something easily fixed to explain his symptoms. We are at our wits end. Love and healing for all!!
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Wow, my body really did not like Miracle Mouthwash
Got some this morning and swished a bit, tasted like crap and numbed my whole mouth. Two hours later, violent vomiting followed by severe diarrhea. Guess that means no more of this stuff for me. Amazing, first time in all three sessions of my Induction I was sick enough to vomit. Eeesh. Joe
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Multiple Myeloma
OK so now we have another surprise. David was diagnosed with multiple myeloma today. We go have a bone scan tomorrow and see a hematolgy oncologist next week. I guess I get to be at to cancer sites. Lucky me. OK so yeah I am a little depressed this evening.
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Taste buds
I was wondering how come I can taste the first few bites of food and then it's gone. Will my taste ever come back? I know I need to be patient but it's so frustrating some days.
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8 weeks out and I think I need to call my doctor!
I finished chemo and radiation for tonsil cancer in August. For the last two weeks I have been experiencing dizzy spells, on standing, confusion during these episodes and I am off balance when I walk sometimes. I keep thinking it will get better but it seemed worse today. Any idea what the problem could be?
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Getting pregnant after high dose of Cisplatin
Is this even possible? I am still in my early 30s and my period is back to normal on the 2nd month completing the chemo treatment. Did some web searchings and it seems 2 yrs after the treatment is safe but also seen 5 yrs. I am afraid pregnancy will bring back cancer. I was pregnant when I was diagnosed NPC and had to…
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So recovery off to a rough start need advice from veterans
So about the last 4 days I have started to loose the balance, and back on the nausea train. Around the end of week 5 I lost tolerance for medical formula, and was loosing weight fast, I placed myself on a malt o meal gruel and was able to stabilize, not great but not 2 pounds a day gone either, was only taking an…
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Our caregivers
Our caregivers have it hard, at times I think much harder than we do. Sure, we deal with our disease and all of the ‘wonderful’ impacts from treatments, but I honestly think that they have it worse. They take such good care of us, and they have the additional burden of worrying about our and their futures. My wife was…
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Introduction and chemo/Erbitux question?
Hi Everyone, My mom is 66 yrs old and has been diagnosed for a 3rd time with Head and neck cancer. She was first diagnosed in 1994. Had neck disection, part of tongue removed, and radiation. She did great (was able to talk again eat etc)and was cancer free until July 2012! We are lucky we had 18 yrs with no cancer!! July…
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Year Since Total Laryngectomy
Sunday November 18, is one year since my vocal cords were removed (a total laryngectomy). I thought I will mark the anniversary by posting some of the things I learned during the year. The operation and my week-long stay in the ICU was virtually pain free. I think a laryngectomy is harder on the caregiver than the patient.…
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Increased anxiety
It's so odd but now that my husband is nearing treatment my anxiety level is at an all time high. The dr scheduled his first post treatment head/neck ct in January and since then I am more anxious and emotional then ever. I guess it's the realization that nothing, not even all this treatment including surgeries x 2,…
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We might be going here again
My mother was diagnosed with Stage IV cancer behind the tongue in July 2010. After finally getting her some medical coverage they were able to start treatment. They tried a combo of erbitux and radiation but due to complications with the erbitux and other chemos she was only able to complete the radiation. After all the…
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PEG tube issues?? Here is what worked for me
As most of you know I struggled with nutrition most of my treatment. I was able to use the medical food / formula then all the sudden became intolerant, same with milk, lots of nausea. So I started making gruel out f malt o meal, and it actualy helped, I am now moving to baby food, and although I have to push it through…
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Terrible smell toward end of Tx....Is it from the Radiation?
Hi Everyone... So now he says he keeps smelling something terrible...like a sulfur smell...just terrible. Is this just the effects from radiation? Or could it be from the prescription cream they have him putting on his neck. He says no matter where he goes he smells it and it's making him sick to his stomach. He even kind…
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(Sick) PUN
My job in otolaryngology is cut throat. (I told you it was sick.)
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First time in 24 yrs I forgot our anniversary
Hey everyone ! I can't believe it, but my husband pointed out that this Sunday will be our 24th year together. So much stress, I just started apologizing then crying, then laughing. We will be spending the day at home, with a nice dinner and rent a movie. I just want to hold him....and realize today is good. He is my…
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This is an article I wanted to share. HPV Head and Neck Cancers get a 2nd look
http://www.curetoday.com/index.cfm/fuseaction/article.showByTumorType/id/814/tumorCategory/Head and neck I just can't seem to do a link. If someone wants to make this a link be my guest. I found the article interesting. Not being one who wants to spread bad information I ran this article through a well known H&N fellow…
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What food should I try?
I am four weeks post treatment with a peg tube and trying broths, cream soups, milk products are bothering the sores in my mouth so staying away from them for the time being. Should I try soups like vegetable need and see if I can chew and swallow? Or something else, I'm scared. I swallow fine but what if it gets stuck.
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NED Thank God as of Nov 14
HI everybody just checking i got the all clear on Wednesday Ned my next scan isn't until Jan 24 ct scan and chest xray so now its on to getting my dental work done and getting back to normal as i can be.Thank you for all the well wishes and prayers
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rad/chemo possible at local hospital and follow by major cancer cancer?
I am wondering if we choose to go with Dana Farber, can we get daily rad/chemo locally or do we need to travel each day for that? I'll ask the MD's but figured someone here would know. Thanks.
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Bleeding?
I haven't seen this addressed on here just wondering if it's abnormal. Just finished Tx #12 of 35. Occasionally at night I'll wake up with a blood soaked pillow or hack up some blood during the evening. Discussed it with my Rad Dr and she says it's normal. I just haven't seen any one address that on here and was curious to…