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Must be the season for gift's
Last week I found out the beast is back at my door stop, it's not as bad as the first time but its there.Had B.O.T and lung cancer at stage four.Rad/chemo one year and two months has passed with clean P.E.P scans and now the scan shows activity on anterior tongue at 2cm and a value of 2.6.Yesterday M.R.I have not got…
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PET /CT versus Regular CT of H&N
Well I finally got the call a lot of you may have, after 3 PET/CT scans , the next was scheduled for Monday the 3rd, my insurance has deemed that thePET is not medically necessary for me, they will pay for a H&N CT only, and will only approve one of those every 4 months versus the PET/CT I was getting every 3. While my…
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I want good news
David has primary plasma cell leukemia. Over 40% of his white blood cells are cancerous. He is very anemic. The doctor said they bone in his hip has been significantly impacted. They are keeping him seven days and are starting a seven chemo drug regimen in the morning. No more treatment for head and neck. The doctor said…
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Lost My Voice
Hi, I am starting week 5 of treatments for tonsil cancer. I just lost my voice. I do not remember reading that this might be a sympton. I am so worried and really hope that this is just temporary. I did notice lots of throat swelling over the 4 day treatment break. Did this happen to any of you? Did you get normal voice…
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First transfusion today
The nurse came in early this morning and told us David would probably have a transfusion today. His platelets are now 12 and his hemoglobin is 6.9. I have heard this should.do a lot for him. It also appears his system is becoming very acidic. I don't know what they will do about that. I am really hoping we still get to…
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Cancer Has Returned
It has been quite some time since I have posted or been on this website. I have received much good advice and shared with others suffering head and neck cancer issues in the past on here. I was diagnosed in December of 2006 with pharyngeal cancer. I had a neck dissection and thirty five radiation treatments and chemo once…
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Scatterbrained
Hi everyone. I haven't been on for a while, I hope you all had a wonderful Thanksgiving. I have a question that I have been afraid to ask because I'm afraid nobody else has experienced this and then I'll know for sure that I'm just crazy. I finished radiation in September of 2011 of left side of head and neck. I had my…
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Lower cost nutritional supplements
It has frustrated me no end to be taken advantage of by the retail sales industry as I shop for liquid dietary supplements. The mark-up is huge, and since I am still partly dependent on liquid supplements nine months post radiation, and will continue to be so in the forseeable future, I have continued to shop for lower…
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granulation tissue at the G tube stoma
The stoma where the G tube is inserted started to develop granulation tissue a while ago, but this issue became significant just a few days ago. The tissue is forming now at a higher pace, it’s about the size of a pea and it’s very friable (bleeds easily). The reason for this is the increased friction, as the tube moves in…
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Throat pain
Sorry if this topic is repeated but i am having trouble finding info on managing sore throat pain. I even checked the HNC superthread. Maybe i overlooked it in there. The mouth pain has been somewhat manageable. I do not have a peg tube. Dr's did not recommend one because they want me to use my swallow muscles. Too lengthy…
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Stiffness & Tightness & Pulling Sensation - Post Surgery
Dear Forum Members, My dad was operated about two years back for head & neck cancer with radical neck dissection. He has been having consistent stiffness & pulling in the right side of the neck as there was reconstruction done of the muscles. I want to know if any other members or their family members are suffering from…
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Newby
Good evening, Hi, my husband of two years (although we are in our 50's) was just diagnosed with stage four tonsil cancer in October. He has had two surgeries in one day, one tonsil, one neck dissection and this coming week he.has his radiation planning session. The following week he begins 6.5 weeks of rad and chemos. This…
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Cancer Back
It has been almost six years since I was diagnosed and treated for throat cancer. I thought I was cancer free until I had my esophagus stretched about two weeks ago and my doctor saw some tissue that did not look right and had a biopsy done. It is now confirmed my cancer has returned. I had just been checked three months…
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Cancer Back
It has been almost six years since I was diagnosed and treated for throat cancer. I thought I was cancer free until I had my esophagus stretched about two weeks ago and my doctor saw some tissue that did not look right and had a biopsy done. It is now confirmed my cancer has returned. I had just been checked three months…
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question
What is it with this website. I swear I only hit the button once, but sometimes multiple posts are posted....is it me? Joan
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Post NED letdown
It's been a very emotional few days for Nelson. The news that the MRI was clear is an amazing blessing. We are so happy the treatment worked! But he has been cycling between joy that the cancer is dead and sadness because he still feels soooo bad. He cries frequently and is just a bundle of confused emotions. I also go…
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Selective neck dissection swelling problem
Anyone out there experience swelling several weeks after their surgery? I had a selective dissection 5 weeks ago, was healing well but started swelling three days ago, large obvious areas along the incision site, the left side of my neck,and under my chin. Red, warm to the touch, some areas are hard, some soft, but no…
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back in the hospital
David has been having frequent nausea again and started vomiting tonight. We came to the ER they said he was pretty dehydrated. His creatinine level is up again. They have decided to admit him. Hopefully this will be a short stay.
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Can't stand waiting
OK the wait to see the hematology oncologist on Monday is killing me. We found out Tuesday there is definitely something wrong, but with the holidays and the clinic being closed Thursday and Friday we had an appointment scheduled for Tuesday. Last night we received another call and they changed our appointment to Monday…
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Advice for neck burn
My husband completed 30 radiation treatments to right neck on this past Wednesday. Was doing pretty good but last two days his neck has become blistered, dark red and extremely painful. I knew this was going to happen but just feel so awful for him. I know some of you veterans on the site have experience with this. We are…
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vertigo help
This morning Jim awoke with sever vertigo. Can't move with out feeling like vomiting. Of course all docs are on vacation. I have noticed some hearing loss lately and he had a bout with mild dizziness a couple months ago. My question is, has anyone else experienced severe vertigo after treatment? If so, did it go away on…
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another step forward
Hi all. I am so glad I found you. My husband had his first surgery to get more diagnostic info. They scoped him under general and took 4-5 biopses....nasoph, both tonsils, BOT, and one lower down. The MD said the only suspicious one was the left tonsil. He said that depending on the path results, he recommends davinci…
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...that keeps giving...
Couple weeks ago my regular Dr informed me that Arthritis has shown between my 5-6 and 6-7 vertebrae in the Cervical section of my spine. I was telling him about the worsening spasms on the sides of my neck, and how the left Ulnar nerve issue from years ago appears to have reared it's ugly head. He was reading the CT…
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Hanging around
OK since the whole news of the second cancer our team of oncologists are pushing to get started on the MM treatment. It is almost as if the head and neck cancer is a nuisance at this point. Well I have went to the Multiple Myeloma forums and I have not found one I feel comfortable on. Everyone seems to be bitter and one…
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Turkey Day - Just Remember They Love You
If some of the folks you're gathering with today seem to be watching you and trying to not let you catch them at it, or talking quietly, and peeking your way - please try to tell yourself that they love you, and are concerned, and don't want to ask you about your cancer or treatment, because they don't want to wreck your…
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Nausea? Thick saliva?
HI all. Sorry if this is a repeat but I can't find a specific thread/post. We are in week 5 of 7 of radiation with 3 chemo cycles for tonsil cancer, Stage IVA. Steve's 2nd of 3 chemo treatments was Nov. 12th and he has barely had ANYTHING to eat or drink since due to nausea. He's gone in for IV hydration 3 times. He's…
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Stance to endure
Hey everyone, I was talking with others on how to proceed with issues I'm having. I'll tell you ....10 people will tell you 10 different things. Today I still am unsure of a darn thing. As I have told you guys my dx (adenoid cystic carcinoma) is not cureable, with few tx options. This is not to say people with this dx…
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Happy Thanksgiving
Happy Thanksgiving to each and everyone of you..love you all
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So happy!! Early test shows NED!!
Oh, what a wonderful day. Nelson (9 weeks out from chemo/rad) has been having some troublesome symptoms the last month or so. Constant cough, weakness, etc. He had a MRI of the brain and neck yesterday to rule out any neurological damage that may explain the problems. We got the results today that there is no sign of…
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Fibula Flap Recovery
My name is Rick and I was successfully treated with radiation for a squamous cell carcinoma that was located on the base of my tongue and tonsil wall in 2009. Since then, osteoradionecrosis has done a number on my jaw bone. I recently had about 4 inches of my lower left jaw resected and am now scheduled to meet with a…