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Anniversary of My Cancer
Today is my birthday . . . and the official diagnosis of my cancer. I am very fortunate to have an essay published on the website "The Good Men Project." Many of you will be able to relate. http://goodmenproject.com/featured-content/the-anniversary-of-my-cancer
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ENT Vist
Saw my ENT today for my 6 week follow-up, scoped my throat all looks good, still some risidual swelling but he said that is normal, since radiation is the gift that keeps on giving...said I looked perky and that he will see me again in 6 weeks. Thats good news to start the weekend..every one be safe be well and have a…
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Locked, Loaded & Ready to Go
After surgery, MRI's, CT's, PET Scans, mask fitting, dozens of blood draws, practice radiation session, and countless doctor visits - my husband's third battle with the beast begins on Monday. He is not able to participate in the clinical trial that we were all excited about, as they were concerned about some of his levels…
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29 years old have been diagnosed with Squamous Cell Carcinoma stage 3
Hi everybody my name is Matt i was diagnosed April 2 with Squamous Cell Carcinoma stage 3 it was a shock to us all i'm recently married with my wife of 6 years and we have a 5 month old son i have a owned a landscape company for 10 years now and with the diagnoses I have i had to hire another guy to help out with the…
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IV at home anyone?
Since this is something I hadn't heard of before, I thought I'd post it. Eating or drinking has become a nightmare as it has I'm sure with most of you. Even so, I'm drinking water and nutrition drinks as much as possible but for some reason I'll vomit hours later. There is lots of heartburn of which I'm taking Zantac for…
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PEG tube pain....
How long before the cramping ends...I'm literally laid up because every more brings on sweeping spasm in my gut...almost to my knees kind of spasm...I'm home now, but have pretty much laid half sitting up in bed today...with short walks to the kitchen and of course the car when I left the hospital... p
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Symptoms
Hoping for some help. I have noticed just in the last week food no longer taste the same and my thoart seems to have a bad taste, taste like an infection. Its harder to eat, and I just don't really enjoy eating now. Has anyone else had any of these symptoms before getting to treatment. I know during and after RADS and…
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Done with mask for now!
Well today was my last treatment of radiation for hopefully ever! On to the next step, the long one, chemo for a year (sigh), talking to the onco tommorrow to set up for the treatment. WEll I'll probably feel like crap in about two hours so i'm signin' off till morning and hope I can get a good night sleep although I doubt…
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NED at 16 months out
early morning visit my the chief oncologist, Dr. Teknos and he found my tongue to be perfect. I have gained weight, have no eating issues nor swallowing issues. Not bad for someone who was diagnosed with Stage 4 and told by my ENT this year that he thought I wouldn't make it. Dr. T said I was one of his star patients and…
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I'm Sad - Levon Helm (The Band, and Other Great Enterprises) is Dying
Dunno why this has touched me so. I've known of others who have died of head and neck cancer - people I've been acquainted with (thank you, CSN and OCF). I didn't even know this man had ever had throat cancer until today. But his imminent passing is gripping me - odd, for someone like me. Not that I'm heartless, I just…
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READY FOR THE FIGHT PART II
Well I got the biopsy report today, confirmed SCC no stage offered. dittoII took the call and after she hung up, a few tears started to fall down her cheeks. I said why you crying and she said she was just hoping it would be something else. I told her its like having your home blown away in a Tornado, you see the damage…
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GOOD READ!!!!!
Thought this was a good article! http://oralcancernews.org/wp/prognostic-significance-of-hpv-status-in-oropharyngeal-cancer/
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Hello friends!
I'm the wife of ditto1 and wanted to give you all a big THANK YOU for your positive comments and attitudes in this forum. You have been a great source of inspiration to both Doug and I as we begin our journey down this path God has placed us on. We know that He is in control and are holding tight to our faith. He has led…
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Tummy upset, acid reflux?
Ok, guys for the last four days my stomach has been a little tipsy, and i've had acid reflux building up sometimes in my esophogus, enough to make me cough a little. Is this the onset of the dreaded radiation sickness? I've only got tommorrows rad treatment and then i'm done with my cookin', but am curious as to whats…
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locals??
I was just wondering if there is any members that live near me. I read in a thread that Mrs. Sarge is in the DFW area, and Sooner79 had a photo of a TX Oncology t-shirt. I live in Commerce Tx, about 60 miles NE of Dallas. I had chemo(Dr. Teerdhala) and radiation(Dr. Caruso) at Tx Oncology in Mesquite, and my surgeon(Dr.…
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Any good recipes for "our kind"?
I am a little over a year out of finishing my treatments. All is well and my weight in life are returning to my new normal. It has been an uphill battle to gain my wieght and my strength back at the gym. however, I've gotten back. I now work out five days a week and have returned my healthy eating habits I had before this…
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Good News!
Went for my consult today and I'm not NEARLY as frightened. He said I wouldn't have most of the side effects that I read about here on these boards, because of where my cancer is and because they can pinpoint it so precisely. I have to have another MRI Friday and if that turns out clear then the treatment plan is for 28…
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repairing saliva glands??
Anybody hear anything else about this since its inception????? Dental Stem Cells to regrow and repair Salivary Glands.. by StemSave, Inc on Tuesday, January 25, 2011 at 11:20am · . By Dr. Dharmini Pathmanathan, DMD, PhD Dr. Xing Yan, has been awarded a grant from the National Natural Science Foundation of China in the…
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New To CSN
Hello CSN Members, I'm so glad to have discovered this forum. Before I posted I decided to read some of the other posts and even responded to a couple. In October of 2011 I was diagnosed with squamous cell occult cancer. In November I underwent neck dissection at Mt. Sinai hospital and my surgeon found the cancer was from…
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A Part of the Soul
Ratface (I hate that name), someone I'm sure we all respect here, asked me to repost this story that is in the Expressions area of my Profile. It was originally written post-surgery while still in a state of opiated bliss, and then cleaned up a bit, but not much, as one of my first posts on this site. I am amazed that he…
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I PROMISE NOT TO MOVE
I just have to ask, after reviewing the MASK section of the Super Thread again today am I the only one who just wanted to tell them, Look no MASK for me I PROMISE NOT TO MOVE. Seriously I know what the answer is likely to be, but I had a few XRays in my life, and they would say hold your breath and do not move, which I…
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Nerve Damage from Neck Surgery
I had surgery to remove a tumor from my neck about 6 weeks ago now (which at the time was thought to be a branchial cyst). Over the last few weeks my shoulder and arm as well as my leg all on that side seem to have a slight weakness to them, and a bit of an ache. The shoulder area is a little tender. Its nothing major,…
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"There's a speed zone ahead but, all right, I don't see a cop in sight"
(Sawyer Brown reference) The siren and the flashing lights behind us usually cause us to instinctively pull off of the road to the right so that the policeman can get to where he is going, but since I was already in the left-turn lane, and since the police car was immediately behind me, I figured out that I was the obvious…
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Proton Therapy
Wondering if anyone has received proton therapy for head and neck cancer. Husband diagnosed with adenoid cystic cancer removed parotid gland, facial nerve and ear cannel. Concerned about side affects of other radiations and read that proton therapy would have less side affects.
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Proton Therapy
Wondering if anyone has received proton therapy for head and neck cancer. Husband diagnosed with adenoid cystic cancer removed parotid gland, facial nerve and ear cannel. Concerned about side affects of other radiations and read that proton therapy would have less side affects.
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"bride to be diet" AKA feeding tube diet
Just out today, a new diet where a nose feeding tube is prescribed to patients, (brides to be), feeds 800 calories per day, promises 20lbs lost in ten days and costs $1500. I just cannot believe people would pay to use a feeding tube. Who would have known? Insanity? Never would I do this without having cancer!
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7th day of fever
My husband is a year out from treatment. He just started back to work on Monday. BAM!!!! He starts running a fever last Wednesday and is still running a fever today. The fever was at night the first 3 nights then it moved to off and on day and night. He says he has a mild headache around the top of his head. Other than…
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amifostine shot
Hi, I see lots of you have gotten the amifostine shot to protect salivary glands during treatment and I read that it protects the kidney also from damage by cisplatin. My chemo doc never offered this shot to me, did he goof up? I had stage 4 nasopharyngeal at 30yrs old.
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How do you prepare foods for someone with feeding tube?
My boyfriend was just diagnosed with squamous cell carcinoma of the oropharyngeal. He will probably have a feeding tube. I am not sure what food to prepare, juices etc.
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PEG Tube
Hi, I am new to CSN. Recently diagnosed with right tonsil cancer which travelled to 3 lymph nodes. For the last 2 months I have been through a series of doctor appointments. Just had my wisdom teeth pulled last week. Getting ready to get PEG Tube put in on Friday. was wondering what the recovery time is. Been told anywhere…