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Head and Neck Cancer

Archives for April 2012

Upper Tampa Bay ~ Trout and Cheese Grits
I know there are several of you going through tough times concerning saliva and taste. I went through those same issues.... Just know that more than likely it will get better for you, actually much better. So when it does, and you are pretty much eating good again....you'll appreciate this photo much more than you might at…
Tonsil Cancer
I just found this board and I am so grateful! Mu husband was diagnosed with tonsil cancer late fall of 2011. He finished his treatment of 35 rounds of radiation and 2 chemo treatments. It was tough but he made it through - ct scan was clear in February and first PET scan was clear in early April. Last week he developed a…
Fungus party at my place!
Over the past few days, I noticed my mouth and throat getting super cottony, oddly painful and stiff. It was actually making my throat feel really full. I figured the treatments were finally catching up to me even though based on everything I read, it seemed a little early for that. Last night, I noticed a red patch on my…
Anyone tried or has heard of electrically regeneration nerve cells to saliva ducts
http://www.saliwell.com/download/GenNarino_User_Manual_ENG.pdf this looks real interesting my tens used on depleted batteries with no pads has worked on a one off experiment
Salagen ( Pilocarpine) 5 mg TABS
Anyone tried ,used, these. As they are not available in tab form in Australia I have ordered them from overseas.I have tried the eye drop solution (rinsed in mouth) it worked but I seated like a pig for the 8 hrs it was effective for. What frequency do you take tab.,does it take any time period before it starts working…
Sinunasal unadifferential carcinoma
hi My younger sister has been diagnosed with SNUC. Begins chemo tomorrow, followed by radiography. Anyone offer any insight into what we can expect or hope for please thanks bigbruv
Grateful for the Small Stuff
A very wise friend of mine gave me some great advice: "Don't sweat the small stuff." Then he said: "It's mostly all small stuff." May 15th will be the two-year anniversary of my completing treatment for stage 4 T1N2cM0 +HPV base of tongue. I've got all kinds of annoying residual effects that you've all heard me whining…
Anybody want a brand new PEG Tube belt?.....FREE
I got the one I ordered, and it appears I'm going to have to do my shopping in the pediatric ward :) . This one fits 30" to 34" (they didn't mention that part in the ad). I can see what a handy-dandy thing it is, just that I can't keep it up where it belongs. PM me, and I'll get it into the mail. p
Nausea what to do?
Okay I'm rads only 2 away from the end and about 3 weeks ago started this vomiting thing I think from epiglottis damage - maybe the flap did not close properly preventing me from getting proper nutrition and hydration. So I've started hydrotherapy at the cancer center with pepcid in the IV. At home I'm taking protonics…
Swelling under the chin
I have been carrying quite a gobble since radiation to treat my throat cancer damaged the lymphatic system in my neck area. My drs. tell me it will go away but if has been 14.5 months and it is still there. At times it is smaller and soft. Other times it is larger and hard. It bugs me when I look down and acts like a…
PEG TUBE
THIS IS EMBATASSING FOR ME TO TALK ABOUT, BUT I'M SURE THERE IS SOMEONE THAT HAD THE SAME PROBLEM I;M HAVING. THIS MAKES MY SECOND PEG TUBE IN A YEAR AND I TAKE JEVITY THROUGH MY TUBE AND I HAVE THE WORST SMELL WHEN I PASS GAS AND IT STINKS.
Headrush when standing up fast
After my surgery (removed tumor from tongue (and reconstruction) + a few lymph nodes on the right side of my troat/neck), I had some random headrushes when standing up fast during the first 10 or so days. It was gone for a while, but now after radiation and chemo is done, it's started again, but now it's every time I stand…
Feeling a little down
The last couple days, I've found myself feeling blue..tried to talk myself out of the funks, exercised, just not working. Wednesday May 2, 2012 will be 6 months since I had my epiglottis removed by robot, at the James in Columbus, Ohio. I'm getting along well, but somehow saw myself back to my old self by now....now I see…
Need some more prayers
This time it is for my mom. She had her blood work done the other day. It has been 9 months since she was in the hospitol with a blood clot in leg and lung. While she was in there she needed a blood transfusion because she was really anemic. Well, yesterday the doctor called to tell her her blood is low again. She has an…
FOOD BUCKET LIST (the lighter side)
When I was 1st dx with H&NC and learning what the future would hold for taste buds and eating that I was going to have a Food Bucket List as long as I could until treatment started. I know some on this website have not started treatment so eating is likely / others who are in treatment so looking forward to their favorite…
My first RFL
So tomorrow night is my very first Relay For Life. I just want you all to know that I will be carrying all of you with me. I didn't reach my fundraising goal but I know every dollar counts and frankly, I'm walking because I am blessed to be able to do so :) . Let you all know how it goes!
I kinda disappeared here for the last couple of days...
Just want y'all to know that I'm doing well, just hyper sleepy....those anti-nausea meds knock me for a loop :) . Tomorrow I'll have 1 chemo down, 4 amifostines, and 4 rads in the bucket....yeah...and counting down. Now I'll go curl up under my blanket. Can hardly wait till this weekend to see how I really feel...no…
Need guidance with laryngectomy decision
Saw my head and neck ENT surgeon yesterday. Let me lay a little foundation for this topic. I was treated back in 2004 for BOT SCC. I had 5 sessions of chemo and 38 radiation treatments. I've been clear of cancer ever since. The consequences of radiation however, have given me a fit. I started having to have dilations for…
mucositis snot whatever it is..
I know this doesnt sound to pretty but as i am 1 week finished with the radiation, I know that i will have mucus. However why is it coming so much out of my nose? I Forever have a snotty nose that makes me cough..I am so backwards with all this.. I didnt loose weight I gained it. I didnt loose my sour or sweet taste I ate…
Phew...CT/PET results N0M0
It is a relief to know that the SCC in my tongue has not spread! The CT/PET scan I had yesterday went quite well... The tech who looked to be about 18 turned out to be very competent. My back and shoulders were a bit sore after staying still for so long, but otherwise it was apiece of cake! I really appreciate all the…
Sourpuss
I've done 17/33 radiation sessions for thyroid cancer and everything tastes sour except ice cream and eggs. It's absolutely revolting -_-. Did anyone else have this strange side effect? When will it return to normal?
Human Papilloma Virus
I have read that performing oral sex on females increases the risk of getting HPV induced cancer. Alcohol is also a risk factor. Guess smoking is also although that is something I never did. Is there any significance to having had a P-16 or HPV+ cancer other than the fact that these cancers seem to respond well to…
helpful mouth care hints for H&N patients undergoing radiation therapy
Hi all, I wanted to post this link again... it talks about what i (and other patients on this list) found helpful during radiation treatments in 2009. Glad to say I am 2+ years out and all is looking good so far. the tongue hurts occasionally, a few things still don't taste good, or feel good in my mouth, and I still carry…
Sharing some good news!
I have a couple pieces of good news, and I thought I'd share in case it can help brighten up some folks who are just starting treatment. I'm through the first week of treatment and into the second. When they checked my blood before my second chemo treatment, the platelets, white blood cell count and kidney function all…
PET/CT Scan Results
The scans for my hubby were clean!! NED!! Next appt. is another PET Scan in 3 months. He does have a PEG tube in and started therapy for swallowing last month. That is our next hurdle...to get him eating again. Thanks everyone for your kind support the other day when I was scared out of my mind. This is an example of why…
SCAN schedules ???
They picked my cancer up with a pet scan but have had only one scan since Rad finished and I am suspicious I read the report before I saw my ENT. and it said due to teeth fillings they could not get a clear pic the ENT had a quick look and said oh that's all fine. HHHmmmm and it was not a PET scan I am going to do some…
weening myself off the tube...
Im only about three weeks post treatment for rads and a little longer for chemo. This is my second go round with SCC. This time base of tongue tumor, right side neck, Stage 4 BIG, 9 week Chemo Cisplatin and 35 rads. In 2006, Stage 1 left side neck w/radiation only.and at that time I did not use a tube. I remember the lost…
Please wish me luck!
I'm new and have gotten so much from what everyone has been saying. THANK YOU! It's fantastic to have a place where people with similar issues have posted their thoughts about this adventure we are on... I have my first CT/PET scan in 2 1/2 hours... I'm trying to stay positive, but of course I'm concerned about what it…
Update on tongue biopsy and good news!
Well we took off for a much needed trip to our RV property on the coast that has flooded TWICE now, so just getting back here. Replacing float barrels under a wooden dock is no fun, I tell you, but we also relaxed a lot. We so wanted to stay another day as we had unprecedented high temps for this time of year and full…
dj12....how is your PEG doing today?
As well as how did your first radiation go you today. Hoping to hear the PEG is being kinder to you. Mine actually didn't give me any trouble today at all, except where to keep it. Had to lose my bra to go to chemo...that was my fave storage place for it...ended up tucking it into my pants...LOL Just wishing you the best…

Head and Neck Cancer

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