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Dental Appointment
Nearly two years post and all is good, no cavities or work to be done.....hoping it will last for a long time. Because I don't like dentists.... (nothing personal...well ya maybe kinda). Best, John
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First round of Chemo and Radiation today
My husband just finished his first round of Chemo and Radiation today. He is sleeping now. No nausea yet, just sleepy. Hope this goes smooth for my man.
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Check up Time - Of COURSE I Found a Lump
I mentioned it at my appointment Friday; my doc said it's common for us (H&N patients) to develop odd neck lumps here and there after treatment, and that it's probably nothing (lump sticks out on left side of front of throat - just next to where my "firm" area from dissection is). But I overheard the injection nurse tell…
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Bragging - Ignore If You're Feeling Sorry for Yourself at All
OK - just finished a whine, so time to focus on what's good. Couple weeks ago, I was bummed because I ordered country fried steak at a restaurant, and couldn't eat it. No shinola, Sherlock - been a long time since I could. But I had a wild hare, so I went for it - you all know how it is. I didn't even think about it before…
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Nasopharyngeal Cancer Stage IVC
My husband has had Chemo (4 Chemo with Cisplation, Taxotere, and 5FU) and then Chemoradiation (35 radiation, 4 Carboplatin) which he finished in February. He had a PET Scan before Chemoradiation began which showed NED. He had mets to liver with a lesion in each lobe. Wondering if anyone has been in remission after Chemo…
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Nasopharyngeal Cancer Stage IVC
My husband was diagnosed with Nasopharyngeal Cancer with mets to the Liver 09/10. He completed Chemo, then Radiation/Chemo in February. Going back for Pet and MRI in 2 weeks. He had a clean scan before beginning Raidation. Just wondering if there is anyone else out there who responded to just Chemo. If so, how long did…
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PET/CT Today!
Hey folks; hope all is well. Getting 2nd Pet/ct post treatment today. This will be a year out from diagnosis. Just wanted a few prayers and thoughts in my corner! Won't get results till next Monday so will be a long week to say the least!! Thanks!! Charles
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Anyone decline chemo and rad treatment?
My pet scan came back clean. I have to admit that after reading about side effects the idea has crossed my mind. Of course I will be doing the treatments, but I wondered if anyone with a clean pet scan has opted out.
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Nasopharyngeal Cancer
Anyone know any information on what causes Nasopharyngeal Cancer .. My husbands cancer is not linked to Epstein Barr Virus. He does not drink or smoke.But he did work with bulk cement for 37 years.
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An update on Ron
Sorry for not posting as the last few weeks have been a blur. Ron has been in and out of the ER and clinic for hydration and nutrition problems. He has lost 27lbs and is down to 165 this morning. We have a Joey pump and a suction machine. He is only able to do 4 cans of the isosource per day and about 2 bottles of water.…
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In praise of my wife Bobbie
I am now 2 months out from 35 rads and 3 chemos, and seemingly doing well, comparativly. on the 19th i go for lymph node extraction. But today my main reason for posting is to give thanks where thanks is due. My wife Bobbie, has been right there with me through thick and thin. And that is saying something. I know that what…
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oral shingles?
About 3 months out from the end of treatment and it really feels like we're sliding back downhill. After Doug had his neck dissection, he started having trouble eating again. First, it was just the jaw and ear pain from the operation, but then he started having mucositis-like symptoms in his mouth, mostly where the gums,…
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How long after radiation will the pain finally get easier?
My husband just finished 6 weeks of rads last week. The pain this week has gotten worse. He takes about 6 oxycodones a day, but still has moments where he literally shivers with pain when he swallows or has a bit of acid reflux. He's taking something for that, but it's not 100% working. He takes all his medicine and…
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Cancer of the Tongue
There is a friend who after fighting 6 1/2 years, has begun to go down hill. His tongue cancer is now appearing in the neck/throat area as dermicil nodules (one about the size of a golf ball). He has begun to be extremely tired, sleeping a lot while at home. Does anyone have any clues/advice as to what the family can now…
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update on mom .. tonsillectomy monday
Just wanted to post a small update. Mom is officially going for a tonsillectomy on monday. They feel this is most likely the primary and want to find it. On scope her right tonsil is visibly bigger than the left and feels nodular... mom has been scoped at least 12 times.. no one has mentioned this! first time it was on the…
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Lymphedema of the neck
So after doing some research I have Lymphedema of the neck, pretty good. Increased pain, celluitus of left ear, etc... I had a CT scan done last Wednesday and meet with a new ENT doctor this monday. What are some of the things that I can do to help this go away. I am on antibiotics for the skin infection, which hurts like…
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Cancer came back in the ear
My ENT did a biopsy in my ear because of granulations near ear drum. The result came back positive. Seems like NPC from last year has extended to ear area. I have to go see the oncologist again. Don't feel like going through another radiation and chemo which most probably will be suggested by the onco. Don't know what to…