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Head and Neck Cancer

Archives for September 2010

2nd post radiation pet scan
My first pet 2 months after rads ( and 2 months ago), showed a remaining lit up lymph node and a spot on my thyroid. Just got back from the Med oncologist and my 2nd pet (now 4 months from radiation) showed no activity in my lymph nodes, the thyroid clear, and the main tumor in my nasopharynx was still clean. I am…
NPC survival side effect
I am from Malaysia. Detected NPC stage 3(T3N0M0) on June 2009. Already finished 35 radiation n 6 round of chemo since last August 2009. My side effect now is lack of saliva, fatigue and alot of phlegm. Recently, i encouter blood stain in my phlegm especially waking up in the morning. Check with ENT doctor, he give me 2…
Sorry about the previous post
Sorry about venting,I have no reason to complain, i have had it easier than most of you here, and i want to thank you for not biting my head off. I will stick around here for what i am worth cant help much, but can share my experiences. The one thing i know is i have cancer it doesent own me. Thanks again Don
In the middle of the storm
Thanks to whoever is reading this. Any words on the subjects are appreciated. Olfactory Neuroblastoma diagnosed June 2010 after sinus surgery, sent to Dana Farber, 2nd surgery to remove more cancer Aug 20, 2010, healing now and waiting for Proton Radiation starting Oct 5, 2010. I have a few questions and I am looking for…
Glossectomy surgery
My new ENT Doc just called to inform me that they would like to do a partial to full tounge removal or I could go through more chemo with no radiation to hold if off. I called my Oncologiest and he agreed with me that the glossectomy would be his last choice. So now I wait for the doc's to have a pow wow and discuss…
Sleeping at night
When i try to sleep at night I get really dry in the roof of my mouth. It feels weird and i still have the stuffy nose and have to blow it often. The stuffy nose at night goes away sometime, but that feeling in the roof of my mouth does not. Does that change or am i the only one with that? Thanks, James P.S. Good Morning…
Pet Scan - 1 yr. out
Haven't posted for a long long time, nor have I checked in very often. We have had much sadness in our family this spring and summer with the sudden death of my nephew who was like a son to us. I needed to take a break from cancer talk. However, Bob had his P.S. which marks his one year anniversary upon finishing…
SKIN CARE AND DENTAL CARE PREVENTION
I just completed my first Radiaition today and start my first Chemo next Monday. I am looking for advice on products to use to keep the radiaited skin as soft as possible, I am using Caphosol mouth rinse 3 times a day to guard against or to minimize the mouthsores. Would it also be good to get a prescription high flouride…
TIPS AND ADVICE FOR NOT FREAKING OUT WITH THE MASK
Hello all, I had my first Rad treatment this morning. about the same time they finished my scan they pulled me out and I said I felt like I was hyperventilating. I finally calmed down and slowed down my breathing. Where the front of the mask comes down, it feels like it keeps my accessory muscles around my collar bone from…
Pet scan
I had a 6 month PET scan and the doctor called and said everything looks good. Nothing to be concerned about. It was a relief. I wish everyone the best and continue to pray for us all.
Will i ever stop using Kleenex?
Does the stuffy nose and having to blow it all the time go away. The having to use the spit cup did, but this seems never ending. I guess i am feeling a little frustrated with it today. I hope the other 3 rounds of chemo don't make it worse. I am feeling better now that i am 6 weeks done with the radiation, but this nose…
Hallways, and marathons.
My wife had a 3 month PET in late June 2010. The results were good, no trace of tumor in throat and only a small spot on the lung which is beneath the PET reolution. Next PET in October. A few days ago we saw a lump on the side of her neck, so we had an ultrasound which saw "a growth like mass") and on monday next week…
My biopsy came back positive
The initial result from during the biopsy were all negative, so they did one last biopsy and today I get the call that it came back positive. It really rocked me, I have been flying because I thought there was a good chance that I had beat it. The doc tells me to look at it in a good sense that they found it and if they…
Swollen Jaw, All of a Sudden?
Has anyone experienced sudden swelling of the jaw after finishing up radiation and chemo for SCC of the neck? I read a little about infections in bone and salivary glands, but I'm a little worried about the suddeness of the whole thing and I know my dad is too! Dad looks like someone socked him in the jaw real good, it's…
Weird Pain in the back
Hey everyone, i have not been on here to long but wonder if anyone has experienced back pains that feel like sunburns. It's not over bearing, just really annoying. I am trying to figure out if it's from Rad. or Chemo. Then again it may be from the fact that i have lost 53 pounds and now that i am putting weight back on, my…
nasopharyngeal treatment without radiation
I was hoping to find info from anyone who received successful treatment for NPC using chemo only. I was diagnosed with stage 4 NPC in May that had spread to my spine and other bones. After much consultation we decided to go ahead with Cisplatin and Gemzar as opposed to chemo and radiation concurrent or radiation only.…
**Updated ~ Pet Photo Week.... Buster**
Morning, thought it was time for a week dedicated to our Pet care givers.... I have two chocolate labs (sisters), Kali & Jasmine...they were there with me through thick and thin. So this week is dedicated to them. Buster was my daughters bull dog, a female of only 7 years.... Love you guys & gals, John
HERE WE GO!
SURGERY SCHEDULED FOR THURSDAY NOON, TOMORROW? yEAH... BIOPSY,NO DEBULKING OF BOT TUMOR,TRACHE INSERTION, PORTACATH. PREOPS TODAY. SO MANY CALLS TO MAKE... GOING THROUGH THE MOTIONS. SURREAL. HAVE TO REMIND MYSELF I'M NOT PLANNING A PARTY. BUT I DIGRESS!!! NOW THE REAL QUESTION IS MY HUSBANDS COMING HOME WITH A TRACHE.…
Hope
Hi all. Haven't visited in a while. Can't sleep tonight and got the urge to share my experience/advice for those just starting into the adventure of Head & Neck. Wish I knew then what I know now....... With the exception of this site - don't research on the internet. Most of the stuff is wrong and your cancer is unique.…
Chefdaddy-Mike Hopefully at Disneyland with the kids?
I pray for all of you each day and am sending cyber-hugs as well. I really miss Chefdaddy Mike and find myself concerned if no news is received for more than a couple of weeks. Has anyone heard from or spoken to him recently? If someone has I would really love to hear how he and the kids are. Peace to All Ella
Checking In
Hi all: Basketcase here. I just returned home from a long Labor Day weekend with my best friend and her family on the lake. It was good. It's just so hard to adjust not hearing my phone ring and Charlie calling me to check in with me or just to talk. I am doing pretty good about trying to go on with things as Charlie would…
swallow test
have to go in & have a barrium swallow test tomorrow. first on since surgery in april. anyone else had to do this after treatment. p.s. still have the trech in
Voice Problems
I finished 6 weeks of rads for a tumor that was almost totally confined to one vocal cord. On the last 3 days, the vocal cord got blasted, and my voice has become very weak and almost useless. My wife needs to stand right next to me in order to understand what I say. I am just one week, post treatment. All other effects of…
Constant fatigue
It's been 9 yrs. for me since I have dealt with radiation and chemo. However since then, I am so fatigued to this day all I want to do is sleep. I can take a dozen naps and still don't feel refreshed. Is this normal? Is anyone else going through this? If so, what can I do about it? It's making me crazy!!!
surface peeling on tongue flap
hi, my husband & i are new to the group..wish we knew about it sooner. mike had a complete dissection of the tongue in april with a free flap made from back muscle & skin.lately when he rinses, he's noticed some of the surface peeling off, nothing major. we think it may be scar tissue from the rad. fyi, he had his last…
Mucus is not white or clear. Help anyone?
It has been a week since I ended my 33 radiations (also had four rounds of chemo) and the mucus is really bad. My question is that the first few days the mucus was clear or white and then it became yellow and eventually turned green. I went to the doctor and they ordered a chest ray to rule out pnuemonia (I have a cough…
Still Have Pain! :(
Hi, Folks! Happy labor Day! I wish I could be celebrating with a nice cold beer! But I will have one next year. Anyway, as some of you may know I am about 10 weeks post treatment today! 1) Energy level is getting there I ride my bike near the beach; haven't been going to the gym as much. 2) Taste is great I would say I am…
cancer treatment centers of america
anyone have experience with these hospitals
NEW TO ALL OF THIS!!!!
My husband was just diagnosed last week with BOT cancer. I guess that's what it's called based on what I seen on line.Base of tongue?cancer stage four. We go to see the head and neck surgeon this week. Started with ENT. Have seen oncologist and oral maxillary surgeon friend of family.Other then Where do I start? What do I…
Pet Scan
Now beginning to get really antsy. I have a Pet scan coming coming up on the 20th of September. I had my treatment for laryngeal cancer last year ending on the 21st of June 2009. have had little problem since, for which I am really thankful, but now things that did not bother me 3 months ago now make me think, I had a…

Head and Neck Cancer

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