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Head and Neck Cancer

Archives for September 2010

Go through chemo again, even if it may not help?
Once again, bad news for my family. My dad met with his ENT today who read his PET scan again. While his most recent round of chemo/rads did have some affect on the cancer, it has spread. The doctor has already said no more radiation, and thinks that more chemo would be futile. I keep trying to think positively, but it has…
pet Scan
Hi everyone, hope this is a good day for all. Just geeling really scared, as Tuesday is the Pet Scan, the more I read, the more I worry. My understanding is this scan shows them if cancer is anywhere else in the body..correct? They are doing it as they all believe that the sort of cancer I have on the voice box, which is…
Thick mucous
Does anyone have suggestions for thicking mucous. Have been doing mucinex D but doesn't seem to be helping as much! Know of anything else we could try? Terry
TASTE - MOUCOUS - JUST GROSS MOUTH
Hello all, hope you are having a nice weekend. I am 8 days into Radiation, and 6 days post first Cisplatin. Nausea is controlled and no fevers. Seems like every other day is a good or a best day. Food already is tasting bland and the texture of food I can tolerate seems to change by the day. My Oral regiment is to breush…
Hallucinating one moment, totally fine the next
Spent all day yesterday at the ER with my dad. A couple of days ago he started seeing things, talking out of his head. We didn't get a real answer to why his was happening...maybe low sodium?! It was a frustrating day that ended with learning that the cancer in his neck was dying, but it reappeared in his jaw Everything…
After getting chemo...
Last week when I got my first bout of chemo the nurse told me she didn't reccomend I be around anyone who was sick after the first week b/c your white blood cell count is really low. She said she would go as far as avoiding restaurants, movie theatres, stores etc. I just want to know how many of you actually caught an…
Funny little things we have learned to do...
Pumakitty's post about changing the light fixture made me think of starting this thread. I am including her story and my response as a start. The question is: What "funny little thing" have you learned or changed as a result of H&N cancer and treatment? Puma's story: I have gotten a lesson in what the new normal means. My…
Conditions and Treatments?
I have NPC stage 3, they have treated me so far with 33 radiation, which is done and 4 chemo, 3 of which were concurrent with radiation. I have done 1 since radiation and they want to do 2 more. Is this extreme or are there others who have had the same treatments? Also i have read that the other chemo after radiation has…
New Normal- kinda funny
First I want to thank everyone for help with the ENT issue, it has made my family feel a lot better. I have gotten a lesson in what the new normal means. My dad is very good at doing any type of home improvement. Last weekend I bought new porch lights for my house. Well, when we went to put of the light my dad could not…
spasms on both side of jaws
Hi all I hope all is well I have a ? lately ive been having what feel like musle spasms in the back on both sides of the mouth like were the back teeth are it dose not hurt but feels very weired have any of you heard or experience this?
Conference in Amsterdam coming up on HPV cancers!!!!!!!!
Listen to web-site speakers on right! Will be interesting to see what studies come out over the next several years!!!!! http://www.thelancetconferences.com/hpv-and-cancer/index.html
Does your nose leak? I am new here.
I had surgery to remove a large MEC from my palate on Aug 10, 2010. It was touching my jaw and caused a decalcification of my septum. I have a temp obturator, but it is not big enough. We do not know if I will be able to get one that will fit, if not I will work with it. Food goes up into the hole and can hurt, sometimes…
Ginger ale
Have heard it helps with the nausea? Is it supposed to be instant relief or does it take several days of ingestion to feel the effects? Have given David about 1/2 cup yesterday and another 1/2 cup tonight through his peg and he said he feels no better! His peg is only nourishment he is getting at this point. We talked with…
I would make a LOUSY cannibal!
What is up with this horrible bile taste in the back of my throat?! It's not acid reflux and is seriously NASTY! So I asked my doc this morning and he responded, "sucks, don't it? Yeah. You're tasting dead burned tissue combined with extra mucous as a result of the inflamation from the radiation. It's totally normal." OK.…
No Worries
I put this link in another post but thought I would just put it out for everyone. Disregard it if you have already seen it. Worth watching IMHO Copy and Paste this to your Address bar: http://www.youtube.com/watch?v=ciYk-UwqFKA
It's gone!!!! Finally got my PEG removed today!
Hi guys. Hope you are all doing ok. Haven't been by in a while. I have been doing a little better with my eating. Swallowing is still a challenge but I've not used my peg since July and my weight has been stable. I am still tiny. Like 96 pounds, but I have an actual appetite. I have been able to eat some good stuff. I live…
Not doing good.
Hey everyone, I am not doing to hot. I am doing chemo again and it's taking it's toll on me. I had a month and a half break and got a lot better. I had Cisplatin last Thursday and they gave me the 5FU in pill form to take home. I am finding it hard to make myself take the pill. I am, but it is hard to put something in your…
9/15 Surgery - Good News!
Bob's surgery was yesterday - lasted about 8.5 hours. Docs got all cancer - clean margins, lymph nodes on right side, put in flap, fixed arm, skin graft from thigh, put in trache, etc. etc.! It was a long day (well not for him), but everything went exactly as planned. Today he is resting in ICU, coughing up alot of mucous…
Parathyroid Cancer
Does anyone know where to search, discuss, explore options for individuals with parathyroid carcinoma that has now metasis to the liver and bone. I know its rare and its definitely cancer. Thanks!
Hi all! eighth month check up still Ned
Hi everyone I hope everyone is well I went to my eight month check up and still no sign of cancer praise God , I seen my ent thats the only doc im seeing now when I told him of the pain Im still having in my joints and feet he said if the problem is not from the neck up it is out of is hands and to make and appt with my…
Best tip for chemo side effects
Hi Guys, Reading through each day I find real gems, often home remedies for managing the side effects of chemo and radiation. I thought it would be interesting to pile them all up and take a look at them together. Anything is welcome, no matter how bizarre or controversial. Here's mine for today: 1. Coffee Enemas: 32 oz.…
any new treatments for dry mouth
I keep asking my doctors but no one really gives me any ideas. Anything new or something that is working for someone for dry mouth. I've been living with this for 10 years and I can't believe they can't find anything that works. Thanks
FYI - The cancer treatments only kills cancer cells; not hpv!!!!!
I strongly feel now that HPV is the culprit. My question is how fast did the cells proliferate and develop into cancer. I'm a nurse and some of my medical friends say that it couldn't have developed over 6 months; it had to develop over years. Look at cervical cancer statistics; it's the same thing. Tumors don't grossly…
IS IT JUST ME
Is it just me,or did anyone else have trouble with the mask the more their treatment went on. I was told last week they were goning to cut it short, instead of the 35 i was done after 33, but today i was told i would get the original 35 and for some reason the mask choked me and i almost stopped it. I know its only its…
throat dilations and other problems
I recently had my second dilation done and a week later I still could not eat. So after going back to the doctor I now have a fungus in my throat that is making it difficult to swallow. has this ever happened to anyone? And if so how long before you could eat? I love losing the weight but I'm dying for some real food.…
DAY 2 AFTER CISPLATIN TREATMENT - HOW SHOULD I FEEL???
Let me start at the beginning, my Cisplatin treatment was actually the 4th bag they hung on me with a totalof 6 infused. it all started with a one Liter bag eash of NS w/ Magnesium and Potassium. Then a drug called Ethyol was given with me laying flat on my back with my legs raised and my BP was monitored every 3 min. As…
Confused and Very Upset
Hey Guys, The ENT visit on Tuesday was horrible. I left the office in tears and stayed that way all day. The ENT wants to do major surgery on my dad, just to take biopsies. He wants to take 6-9 biopies and then do a scoope down his throat just to look around. When he had his scans on the 30th of August they were clear…
Blood Clots
Hi Guys, I have been getting blood clots in my arms since starting chemo with Cisplatin and Gemzar 2 months ago. For the most part they have just been uncomfortable and gone away shortly. I have started giving myself Lovenox shots twice daily to prevent future clots but have one really big one lingering at the bend in my…
Any suggestions for hoarseness?
Thanks much!
Hydration worked (Thanks all)
I want to thank each and every one of you for your reply and support! It means so much to Dave and myself. (and all that have questions to be able to come here and get help from people with experience). The Hydration was the problem with Dave not wanting to feed as he was very sick to his stomach from the cisplatin chemo…

Head and Neck Cancer

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