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WHERE IS SASH???
Has anyone heard from Sash?? I enjoyed reading his posts. Mike
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Tonsil Cancer - 4 months post treatment
Hi all, what an awesome site, I am so happy to have found you all. I am 4 months out of treatment 35 radiation, 3 cisplatin, I had SCC right tonsil T1N1M0, 44 year old female, smoker and light drinker, although that does not seem to matter to much. I had IMRT treatment with great success and very little side effects, I…
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STAGE REVISION
I had my first post visit with my surgeon today and he kind of rocked my world. He met with the Tunor Board and the consus was to re stage my cancer. I was originally staged T2N2BM0 42A P16+ restaged T3N3M0 42B P16+. His explanation was a combination of the sizes of the tumors and the aggressive spread. he described the…
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What do you crave?
As the subject states, what are your cravings? Because of my lack of eating, drinking my food, I miss the most simplest of things. What do you or did you miss during recovery? Breakfast: Sausage biscuit with egg Lunch/Dinner: Stuffed Shrimp w/crab PB&J Sandwiches Crackers and peanut butter Cheese...good cheese German wheat…
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espohagus update
I had a barium swallow today that confirmed the stricture that has completely closed off my esophagus preventing any food or liquid from entering. The good news from this is that it pretty much ruled out a mass that's causing the problem. Also I have a new speech pathologist who *wants* to help which was encouraging. She…
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Okra
Well I've finally found the perfect food for saliva challenged survivors, okra. I know what most of you are going to say, "Yuck!". But, for those of you who like okra, lightly boiled and salted, you know it comes with its own built in saliva--some call it slime. It's what puts the "gum" in gumbo. It's also very healthy…
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Scans
I have a question about your first post treatment scan. My husband finished treatment on 6/10th and is due for a scan next month. Did you have a CT scan and a PET scan or just one? Are both of them necessary?
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BOT Biopsy Tomorrow
I am heading into the OR tomorrow for a BOT biopsy. A couple of areas of interest popped up on the PET/CT scan and though my doctor says he is not too concerned about it he thinks they should check anyways since their approach with me has been so conservative ( unknown primary, T0N1M0 and surgery only ). Nonetheless,…
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Larynx T4n1mo Squamous cell , one more time
My husband.Non Smoker -non dranker Dx Jan 2009 T4 N1 mo Larynx cancer squamous Cell Cancer. Treatment Cisplatin Chemo and radation 7 weeks March to May 2009. face got a little red He lost a little over 50 pounds When I read about chemo and radation treatments and how people lost so much weight I worried . He was not so…
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NEXT PHASE OF TREATMENT
Today was the longest amount of time I have spent away from the couch and TV. I had my first Appt. with my Radiation Oncologist. My wife and I like him allot. He is going to consult with my Surgeon and his colleagues to determine if giving radiation to the left side of my neck where there is NED is warranted. He says due…
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To all you Caregivers
Today my caregiver wife and I celebrated our 36 years anniversary; we did some little simple thing like going out and sharing an ice cream together. It was not much but just my way of saying thank you for all you have done for me. As each of us cancer survivors go through hell and back we sometimes forget the chain that…
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First PET/CT this week
Hi Everyone! Please keep my family in your prayers. My dad had his first post treatment CT and PET this week. We will see the doctor next Monday morning. I am scared to death that the cancer in his tongue is not gone. I will let you know what happens. Kathy
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New Numbness
Hey ... My husband has a new numbness on his tongue... on the side that took the hardest radiation... it seems to be getting a lttle worse. He had 2 root canals a few weeks ago... all seemed to be okay... now he has more teeth bothering him... any thoughts?... seems like everytime something comes up it worries me something…
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Going for seventh month checkup
Hi all I hope everyone is ok , Iam going for my seventh month check up in a week and im scared to death. and I go monthly how do some of you guys get through this ? it is haveck with constant thoughts of those dreadfull words you have cancer sometime the fear alone disrupt my sleep I have good days and then I have bad days…
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"The Big C" new TV series
The pop side of terminal melanoma is coming to a tv series titled "The Big C." It'll star Laura Linney--Jim Carey's tv wife in "The Truman Show". She has the cancer, and a raft of wacky neighbors and friends. She looks great in the trailers. I'm sure they'll include some over-the-top, philsophically aware moments for…
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new update
Hi all, Sorry it has been a couple of weeks but it has been rough dealing with the news of reoccurance. But on the bright side, PEG was removed and so was my trache. First time I have been trache free in 2 years. My epigilottis is laying flat across my airway so the plan is to remove it and see if it will move with the…
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I'm new and about to start radiation.
Hi everyone, I just joined not too long ago and all of your discussions have been very helpful thus far! Well I was just diagnosed in April with SCC and had surgery to remove my orange sized tumor growing out of my neck. I was 7 months pregnant during the surgery and had to wait to deliver the baby to start my radiation.…
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Back from the Biopsy
Well, here we are, back from the biopsy. Went as expected - doc sees tumor and what appears to be cancer invaded into the pharyngeal (throat) wall behind the tumor. Biopsy pathology will not officially be back until Wed or Thurs, but he is taking Bob's case to the "Tumor Review Board" for discussion on treatement, as he is…
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Sad News
Hi all: I have very sad news to report. Charlie passed away Sat. night Aug. 21. He had a gi bleed; low blood pressure, electrolyte issues, low blood counts, severely dehydrated. He was admitted Thursday afternoon and was doing better; but on Sat. began having problems breathing and they had to keep pushing fluids to keep…
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Say what ??
Went for my every four month dental check-up today, and was told/shown that I have a wisdom tooth breaking through my gum line. I know that the average age for Wisdom Tooth eruption is between 17 and 21 years. Heck, I'm 63 next month. Hygenist said they had a guy in last week, who was 80 years old, and had the same. Only…
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Tampa Bay Redfish
New photo as you see.... Just a teaser for Finz, Greg, Hondo, ChefDaddy and whomever else happens to wind up down near Tampa sometime. The weather has been extremely hot, but if you can catch the tide, weather and bait right, the bite is on. Best to all of my CSN friends and buddies, and to doing what you like and love to…
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I hope he doesn't shoot me...
...just had to post this new picture of Mark. Age: 54 Diagnosed April 13th 2010 SCC left tonsil Super sized tonsilectomy and radical neck dissection May 2010 30 Rads. 1 Cisplatin, 4 Carboplatin-Taxol He's doing great! Kim
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Laryngeal Cancer T2N0
From the staging, you know that I have a "mild" cancer. It is almost totally confined to a vocal cord. I was lucky in that severe hoarseness was the presenting symptom. I also had ear aches and an almost constant cough. I am finishing 6 weeks of radiation; I have 3 treatments left. I opted for a milder pain medicine, and…
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ANOTHER SETBACK
Last week I noticed my left foot was swollen. I went to see my Doc and had a Doppler Scan. Turns out I have DVT's in both legs. I was admitted to the hopital for 3 days on a Heparin Drip and was sent home with a 90 day supply of Lovenox injections. I also was told I have a roaring case of Thrush. Has anyone had any…
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RapidArc Radiation question
My partner Joe is having his 'simulation' tomorrow for his 7 weeks of radiation. He is having the IMRT radiation. Watching TV last night we came across a newer radiation called 'RapidArc' which claims to deliver radiation quicker with lower doses than IMRT radiation. Does anyone have any information that they could share?…
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How much medication post treatment
How long after treatments are complete do you need to stay on pain medications he is on 50 mcg patch Fenadyl and Lortab. When should you start tapering off. Beginning to think the meds are as much for the mind to cope with the change in your life as they are for the physical pain.
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Question/Help anyone?
I have 5 more radiation treatments and I am in so much pain today. I have been using liquid Tylenol but I do have liquid Vicodin at home. Is it OK to put the liquid Vicodin in the G-tube. I don't think I can swallow it and everything just burns (couldn't swallow the tylenol either). I also have a lot of pain in my ears. I…
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Larynx cancer
My husband.Non Smoker -non dranker Dx Jan 2009 T4 N1 mo Larynx cancer squamous Cell Cancer. Treatment Cisplatin Chemo and radation 7 weeks March to May 2009. (Note they told him wash your face really good with antibactrial soap just before you come in for radaition. He did this every day , his face got a little red but did…
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Good days and Bad days
Could anyone comment on recovery? My husband is 25 days since his last radiation treatment. He is still unable to taste anything and is still on the PEG. He was back in the hospital a week ago for fluids and antibiotics. His fatigue is almost debilitaing and unbearable, he has nausea, he still has large amounts of mucous.…
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Lhermitte's sign
I had a rather intense episode of Lhermitte's sign two nights ago, the first time I've experienced this. I'm now three months post rads and chemo. I was at the infamous Diamondback Grill, trying to (very slowly) eat my half order of bacon-cheddar cheeseburger with sweetpotato fries washed down with copious amounts of water…