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Head and Neck Cancer

Archives for July 2010

relief
well I knew it was coming.... I have been in chemo and rad treatment for BOT primary w/lymph mets for a little under 3 weeks.I was told to expect some adverse side effects.well friday it started with what felt like a lump in my throat.That became what felt like trying to swallow shrapnel every time I drank or ate. I has 20…
first scan after treatments
Finshed treaments 9 weeks ag and my first scan are coming uo...i am a nrevous wreck .does everyone go through this - any help on hoe to deal and if it does get easie. I wrry constantly about cancer returning. Leanne
Don't know what to expect
My husband was diagnosis last month with cancer at the base of his tongue, he is also a diabetic which he controls with insulin daily. He starts his chemo tomorrow and radiation,we were told chemo once a week for 6 1/2 weeks for 4 hours and radiation for daily about 20 to 25 minutes. He has never been sick a day, and is…
Don't know what to expect
My husband was diagnostic last month with cancer at the base of his tongue, he is also a diabetic with he controls with insulin daily. He starts his chemo tomorrow and radiation,we were told chemo once a week for 6 1/2 weeks for 4 hours and radiation for about 20 to 25 minutes. He has never been sick a day, and is the…
Physical therapy
Has anyone gone though phsical therapy after they finished treatment, I have lost just over 90 pounds and I think that now that I am eating solid food I will be able to maintain weight. I have lost so much muscle mass that just standing or walking for over 15 minutes and I get terable back pain. Some friends sugested that…
Update on Tim
Tim passed this morning at 5:40 am. He is whole again and free of cancer. Cathy
Tattoos....
I posted another in my expressions that I like...FAITH.
1st pet scan 2 months post radiation
Just got the results of my pet scan. Finished radiation 2 months ago for NPC. Had several lymphnodes enlarged and metabolicly active and a spot on my thyroid. The new results are: The nasopharyngeal mass is no longer identified as a discrete structure. Metabolic activity now appears normal. Of the lymph nodes,the ones on…
5 months... tests are good
CT and Scope are both good!.. teeth problems but after cancer..that's hard to complain about!... peg tube can come out!...
Mouth Ulcers
It seems as though I spend half my day cleansing my mouth: flossing, brushing, flouride trays, salt water and baking soda gargles, L-Glutamine and then do it all again. But hey, its been pretty effective so far, I have had only minor problems with mouth/tongue ulcers. I do the salt water and baking soda gargle through-out…
Heading for the finish line
Glenn has 6 more radiation treatments and 1 more chemo to go. He's experiencing every side effect they told us about but the real help in preparing for this stage came from this forum. I don't even know how to describe how much the knowledge and experience posted here has helped us. It's certainly kept me from panicking…
Soccerfreaks MIA?
Has anyone heard from Joe? Best, Mick
Gentle massage and stretching exercises for the face and neck
In a post by Irishgypsie about Facial Swelling, I replied and said I would find a little information I posted about 1 1/2 years ago on another site. It is a gentle massage and stretch that a Physical Therapist taught me for the swelling of my face and neck. A simple neck stretch exercise the Cancer Therapist taught me was…
PET/CT during treatment
Hi Folks, I've just completed completed my 25th rad, only 10 more to go!!! This week they also did a PET/CT. The rad doc was quite upbeat with the result which showed a roughly 60-70% reduction of the cancerous area on my BOT. He said normally they would see about 30-40% reduction at this point in the treatment. So, yes…
Update on Tim
Hello everyone Tim has had several scans since he has been in the hospital with pneumonia, this is week 3 in the hospital. Yesterday we got the word that the cancer has spread to his brain and no options where left. Tim has excepted this and has chosen to go home with the help of Hopsice. He is currently getting radiation…
Hondo
Anybody notice that our emcee Hondo's seems AWOL? and Sweetblood
Scam...Cathy's Tim
You okay? Haven't heard much from you, it seems, lately. PM. Tim's left the hospital, still somewhat ailing, people. Beckon Call Time for Prayers directed towards Tim, and Cathy. kcass
My Dad
First of all, I would like to say thanks to all of you. This site has been a place of comfort, hope, and encouragement for me. My dad started his fight with this monster last October and his fight ended last Sunday. I just wanted to come here once more to say thank you to anyone who responded to my posts with information…
INSURANCE/DRUG CO TRUMPH AGAIN!
I posted about a month ago, that I was stage 3 tonsil with right lymph node. The alternative doctor i seen called about proton thearpy. To make a long story short, the Ok facility approved me for the trearpy after about a week. However, after about 4 days the insurance co said NOT. Even though it FDA approved, they said no…
Facial Swelling
Hello, Everyone, Almost 2 weeks now post treatment. Doctors say things are healing well. Able to get some water down; but still not taking shakes or anything. I have question about facial swelling and dry skin. Throughout treatment my right side of made face got swollen and my face got really dry. The swelling has gone…
Still Fighting
It has been over a year since my husbands diagnosis and he is still fighting. He started out with stage IV tonsil cancer and did 35 rads with three cisplatin. Finished last Sept. Then on New Years Eve found out more "spots" showed up on PET in lymph nodes in the chest and started more chemo in Jan. Finished that on June…
Port
Hi All, Sorry I have not been been posting, but I returned to work last week and have been pretty busy. Sure have missed all of you guys and gals. The reason for this post is that right now I am feeling pretty dumb. I had not seen my med onco since the 1st part of April so I called her the other day because I was…
cisplatin taxol combo therapy. help
my insurance company is saying that cisplatin and taxol combo therapy falls into an experimental category and they will not pay. My tx is now being postponed. I need a link to prove otherwise. Why I need to do this and they are not listening to my med. oncologist is beyond me. Can anyone help?
HAVE YOU EVER HEARD of stage 5 cancer
has anyone ever heard of a stage 5 cancer? debbie
Update on Hubby Day 2 and question
Hi all! Basketcase here again. Charlie did well with the taxotere today so next Tues. he'll get the erbitux, taxotere. We have a question. I think I told y'all I lost my teaching job. I carry the ins. on both of us which is in effect through Sept. and then we'd have to COBRA it to the tune of $952/month! Don't know that…
update
Saw my ENT today (Dr G). He walks in and says, "Hey, good to see you! You're looking great! Hey that PET scan, you know when I see one like yours I've never seen a patient get a recurrence so I think it's safe to say you're cured. There is the 5-year rule, but in my experience I think it's safe to say you are out of the…
Picking a spot under the radar.
Mark is in his last full week of treatments. He has 2 days next week (last chemo on Monday and last rad on Tuesday). While he is doing remarkably well, he has psychologically defined this week as, "going to be rough". He is burned out by the treatments, by not being able to taste food, by having a tube hanging out of his…
sixth month check up scared to death
Hi all my sixth month check up is coming up im going see the same docter who dignose me with cancer and right about now I keep reliving the moment he said You have cancer and still havent gottten used to that endoscope going in my nose no matter how much numbing meds he puts in there that crap hurts ! dose anyone have tips…
alcohol
What's the real deal with drinking and cancer? I think that it's the sugar? since we are there how about the consumption of my favorite. Cookies! I like a few beers. Not had this discussion with anyone.
First subway sandwich post rads-YUMMY!!
A celebration- 4 months post rads--my first subway sandwich...mmmm..yummy Lots of mayo and sweet onion dressing..munch munch munch.

Head and Neck Cancer

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