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Head and Neck Cancer

Archives for May 2010

OT: Happy Mother's Day
I hope you guys don't mind, but I just wanted to wish all the mommies on the board Happy Mother's Day. Those of you with children have my utmost respect. I don't know how you do it. Especially the ladies that work full time outside the home as well. That's two full time jobs! You are amazing. Thanks for all you do!
Pain meds
My husband has laryngeal cancer stage 2, no nodes, no cartilage, no cord involvement. However, the reason we even discovered it was because he started having ear ache and sore throat. He has had pain level 3 to 8 for 4 months now. After going to a pain clinic he was put on long acting morpheme, short acting morpheme and…
larynx cancer
is there any body out there that has larynx cancer like I do? If you do please let me know so we will not be alone. I know some of the problem we go through and maybe I could help or you could help me. It is a diffucult life that others do not understand, but together we can help each other out. a friend steve
PET Results
I finished radiation about 10 weeks ago for a malignant paraganglioma in the right side of my neck, it had also spread to 4 lymphs. I just had my first follow up PET scan and it showed two 6mm nodules on my right lung. They did a chest CT to make sure the spot were really there and sure enough they showed up on the CT…
Heading to Moffitt
Thank you all for your input on Radiation plans. We met with second radiation oncologist and got a very different plan of action than that of the first doc. This all makes us very confused. I called Moffitt and have an appointment next Friday to get a third opinion. We will go with what Moffitt says. One doc wants to…
SCC Unknown Primary
Hello everyone my name is Joel and I live in Rochester NY. I am 39 years old and married to a wonderful angel of a wife and we have two young children. One month ago I was diagnosed with SCC unknown primary after a biopsy was performed on a swollen lymph node I noticed on my left neck. A PET scan showed activity in my…
FIRST WEEK OF RADIATION FOR DAD
hi, dad started his first week of radiation this past monday.. monday he had chemo for 3 hours and then followed by radiation... he did have two rounds of the induction chemo in the hospital before this... he is now on his 4th day of radiation, he will get chemo every 21 days.. he is completely wiped out! i feel so…
ORDER PLEASE!!
Reading Skiffin's response to the "blood count" string has prompted me to open this post. 1. Can you or anyone else give me some ideas as how i should organize my filing system which in itself is supposed to be organised,right? THIS would transform my life. I have a hard copy binder/file/ simply because everything is…
Another GREAT source for oral, head and neck cancer
The Oral Cancer Foundation is a great source for information! OCF also operates a forum, specifically for oral head and neck cancer patiets, survivors and care givers. I have personally benefited from all the information they offer on their website: www.oralcancer.org OCF is always looking for volunteer's as well. They are…
First Chemo
Hi, My dad will have his first Chem Friday morning. It is a 2 hour session with the Cisplatin(?), I think. Could someone tell me what I should expect to happen and how he will be feeling. The doctors said we should not have to worry to much about the blood count issue, is this true. Also, does anyone have any tips for…
mouth and throat "sunburn"
Hi. I just joined in. I am so scared for my brother. You can read in my profile the details of his cancer, but in short it was/is in his left upper sinus. Had chemo, surgery, now doing chemo and rad. Has only had one week of post op-rad and chemo. Serious problem with "sunburn" in his mouth and throat. Can barely talk let…
Transcript of Online Chat about Cancer/HPV
For those of us having the discussion under the "alcohol" thread and others who want to know more about HPV, here is a link to a transcript of an online chat with a Radiology oncologist about HPV. http://www.oncolink.org/blogs/index.php/2010/01/how-much-do-you-know-about-hpv/ I have not read it yet...but in my downtime…
Another big step...
Today is the day my Medi-Port is taken out. I asked my Oncoman last Monday about the time element of keeping it, he informed me that they have no new reason to use it and unless I want to used it for "recreational purposes"....then hey, take it out. It's removed on an out-patient basis, whereas they numb the area....cut a…
IMRT vs standard Radiation questions
Hi All, My husband is healing well from his neck dissection. Nerves are starting to come back one week post surgery. He feels a bit like his skin is crawling. Our next big decision is what type of radiation treatments. Our medical oncologist doesn't feel he needs chemo and has a great radiation oncologist that works with…
Mucus Build-Up Solutions
Hello. New guy here. I've been checking out this site for a few days to see if I could learn anything to help with some of the post-treatment issues I'm dealing with. The most important thing I learned is that this is a great resource to get knowledge of how to deal with some these issues "straight from the horse's mouth"…
Sperm Banking?
My Doctors said that since the treatments are being directed towards the neck the sperm banking isn't; necessary but should avoid getting someone pregnant during and after six months of tx. Has anyone had these same concerns? Anyone have kids after being tx for cancer! Since I'm in the military I can get 1 year storage for…
Cataracts
Hi all: About a month ago I told y'all Charlie had developed cataracts probably due to chemo according to the eye doctor. Well, he had his first eye done Monday and we went yesterday for his 1 day post op check and he is 20/20 in that eye. He thinks (and I agree with him) this is nothing short of another miracle.…
WISH ME LUCK<GOT MY SECOND CT AT 8:30 am today
Hey guys, just looking for some more prayers and well wishes today, Im going for my second CT, the 3 month PET/CT was clear but they said they saw some pixelation on one of my lungs, which is why Im having the CT today, to verify that it is nothing. They never, with all the testing I had before, said anything about a lung…
New, Need Answers, Afraid
Hi everyone and thank you for all of your help. I've been lurking here for about two months and the info. you all provide is so great. We've been going through this pretty much on our own and I'm at a loss at how to handle it all. Any advice would be so appreciated. My dad was diagosed in Oct. 2009 with squamous cell…
scared and confused in Rochester :(!!!
Hello, Unfortunately I'm a new winner for the head and neck cancer lottery. I'm only 38 years old (too young for this crap in my opinion! Non-smoker moderate weekend drinker. Yes it was HPV + so I assume that was the culprit! :( Was dx Mar 29th with IVA SCC Tonsil primary with 1 Right lymph node involvement. T2N2M0. Had…
PEG Removal
Got the PEG I've had for over 15-months out this morning. Surgeon who installed was the one who yanked it out, along with little advice: 1) Can eat and drink as I normally would, but in less quantity for a few days. 2) There will be seepage, so keep the hole covered w/gauze, and apply Bacitracin during the gauze changes.…
Blood Counts
My husband was recently diagnosed with stage 3 base of tongue HPV cancer. His course of treatment is 1 day each week chemo (cisplatin and erbutux) and 5 days radiation for 7 weeks. He just finished his 2nd round of chemo. I'm concerned about his blood counts since his white, red and platelet counts went down considerably…
Please need advice, help, questions about tonsil cancer...feel very alone and scared
I really need advice and guidance from anyone who has or had tonsil cancer. I am 38 year female, never smoked, not HPV positive, and rarely drink...and I am currently 5 months pregnant. I had my left tonsil removed last week after being inflammed and non responsive to antibiotics. Bioposy indicaticated Squamous Cell…
New to Nasapharyngeal Cancer
My husband is 47 years old and was diagnosed February 5th, 2010 with stage IVa cancer. He has completed 33 rad treatments and 3 doses of cysplatin. His doctor is scheduling him for at least 2 more doses of cysplatin with 5FU. His worst time was 2 weeks after treatment, he had nausea and vomiting. Thank God for the chemo…
Numoisyn™ Lozenges- Has anyone tried these?
Has anyone ever heard of this? Tried it? Below is the ad copy.. I have tried gum and mints without success at this point. Numoisyn™ Lozenges are formulated to increase salivary secretion by stimulating gustatory (taste) pathways. They contain sorbitol and flavorings to stimulate normal salivation and provide temporary…
SPOHNC (Support for people with Head and Neck Cancer)
SPOHNC NEEDS YOU! I have been cruising around this website,and they are looking for volunteers. So I am forwarding the info; Below is the link http://www.spohnc.org/nsvn.php Become part of SPOHNC's NATIONAL SURVIVOR VOLUNTEER NETWORK (NSVN) If you are a survivor of oral and head and neck cancer you know the importance of…
Surgery vs. No Surgery Please Weigh-In
Hello everyone, Mark had his diagnostic endoscopy/biopsy today...and the good news is nothing was found that wasn't expected to be found. The other good news is he is HPV16 and has two very good treatment options: 1. Surgery to remove primary in the left tonsil (robotic - very precise, and less envasive) with lymph nodes…
Recurrent Cancer
My father finished his initial treatment two month ago. Apparently, everything was going well til three weeks ago. The radiotion oncologist noticed a 2 to 3 cemtimeter mass on the same location, which is on the base of the neck. My dad was scheduled for a Pet scan; however, he ended up in the hospital due to an infection…
Erbitux anyone?
Hi, I am a 30 y.o. female with a diagnosis of stage 4, metastic squamous cell carcinoma with occult primary. Although there has been no luck with finding the primary, we are fairly confident that it is most likely head/neck cancer. So far, I have gone through 6 rounds of chemo (cisplatin, taxotere and 5-fu combo) and now…
DRY MOUTH
Finished radiation 8 weeks ago to neck. Dry Mouth very bad at night can't sleep more than 1 hour at a time. Many products on the market, nothing working so far. Anyone have a good product ? Just need to sleep

Head and Neck Cancer

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