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Clean PET scan
Just wanted to let everyone know that Evan's first PET scan came back clean. He still can't eat, but he has seen a different Dr. & we are waiting for the appt. with the general surgeon. We will keep everyone updated. Thanks everyone for all your help & advice. We would not have been able to move forward so quickly without…
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syspthoms
can anyone tell me what the sysptoms of neck and head cancer is????? the drs found 3 bumps on me one on the throat just under the right jaw and one on the back of the tounge and one in my nose.......... going tuesday for swallow and and new ct tests....thanks just getting more and more worried
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Kent!
Hi Kent. Just a question about why you did not choose surgery. My Dr said he could remove the tumors and biopsy them for a final pathology. This would accomplish removing the only known tumors in my body, give them a lot of tissue to work with to determine type, and reduce the amount of rads I'd need because we wouldn't be…
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vocal cords
I am a teacher of 18 yrs. and have just had my 4th surgery on my vocal cords. I have carcincoma in stiu on both vocal cords. Since this last surgrey I can hardly talk-it's been a little over a month now. My vocal cords are still swollen. My dr thinks my voice will come back as the swelling goes down-as to how much-it is…
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Eating after Tongue Cancer Treatment
I was diagnosed with stage 4 tongue cancer with no mestaseses in November of 2008. My oncologist and his team gave me 2 options: have 3/4 of my tongue removed followed by radiation or have intense chemotherapy and radiation. I chose the second option and as of May, 2009 I am cancer free. Before my treatment I had trouble…
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A Good Day Vals update
So I had my appointment today at the Cross Cancer Institute, and it went fine. They gave me alot to think about, lots of info, and facts. The nice thing was the oncoligist agreed with Dr. Seikaly in that my cancer is CURABLE! From what I have read oncoligists do not like to use that word… but he did. He also said that the…
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Pet Scan Results
Just returned from appt. with the radiation oncologist and 3 month Pet Scan resutlts after radiation and chemo. We couldn't be happier, and his radiation onco also repeated this. An A+ result - no sign of cancer anywhere in my hubby's body at this time. He will, of course, continue to follow up with his ENT monthly and his…
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Spread to Lymph Nodes
We had our biopsy yesterday and the results revealed that the cancer has spread to the lymph nodes in his chest. I am guessing we will have more chemo. All the cancer was gone in the neck. SCC likes to travel. Has anyone experienced this and what do you think our treatment options will be and what are our odds. :( Thanks,…
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re: Update - Tube out today!!!
Feeding tube came out today! I am so thrilled!!! I was four weeks out yesterday and I'll have to say that every week is that much better. Taste buds not completely back yet but at least now the food doesn't taste awful, I can at least tolerate it enough to get it down. I am taking one day at a time. I know I could not have…
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TxN2b and surgery date
I have my surgery date and my Dr feels very good, but cautions that the "final pathology" will determine prognosis. I go under the knife for a selective neck dissection a week from tomorrow (Jan 15). Wish me luck! He also said I am staged at TXN2BM0, essentially stage 4. Not the greatest of news, but I am strong, young-ish…
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Waterpiks
As so many of us have problems with our teeth after radiation I got a waterpik for Christmas, model wp-450. I've got to say I'm very disappointed. It seems to have very little pressure and I expected something more along the lines of what a dentist uses. It pulses and shoots water but not with any degree of force. My…
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Anyone with experience of EBV-Specific T-Cell Therapy for NPC?
We are looking into gettting into a clinical trial of it after the Stage4 NPC relapsed 4-month afer chemo/radio therapy...In a dreadful time now...
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Radiation destroyed my teeth
Finished radiation treatments in April 2007 after surgery to remove a tumor from my left cheek. Healing has been difficult and slow but I've over come many obstacles. I find myself facing a new dilemma....my teeth. I've been seeing the same dentist for many years. I've been going every three months like my oncologist…
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Need update Kurt (doitforoj)
Kurt, I am sure I am not alone in wondering how you are doing. Hoping you are starting to feel better and making the climb back to your old self. Post if you can. As always, thinking of you and your family and hoping all is well. Mike
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Brother w/NPC IV losing it! HELP Hondo!
My 43 year old brother has been living the nightmare of recurrent Nasopharyngeal cancer since Jan. 2006. At this point, after continuous weekly chemo and re-irradiation, both the radiation oncologist and his regular onc have, within a month of each other, told him that they are disappointed in treatment progress and that…
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Cisplatin and kidney damage
The subject of kidney damage as a result of chemo by Cisplatin has been raised- I would like to know what others know of this. I had a bout with my left kidney back in 07. Cat Scan showed a stone. Specialists put two different tubes, the second larger than the first, in the tube between said kidney and bladder. He asked me…
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Prayer Request
Hi Everyone, My husband, Bob, will have his first PET scan tomorrow morning with results available to us on Friday. He has done so very well so far that we are staying positive. Prayers are the best medicine. Thanks to all of you wonderful CSN survivors. Love you, PK
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nasopharyngeal cancer
Hi Everyone, I am new to this site and reading all of the support you give one and other is amazing! I am wondering if anyone is going through or knows of anyone going through treatment for nasopharyngeal cancer. My mom was diagnosed with it about a month ago and starts treatments for it on thursday. She will be doing…
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Stages
What stage were people diagnosed and what were you told in terms of prognosis? Best, Mick
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Our Blog
I have kept a blog of our journey through this process for our friends and family and decided to share it with y'all, just in case it might help you get through another day. our site is: summharleygolfer.blogspot.com God Bless!
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Does the Frog ever jump out?
I've been wondering if I will ever get my normal voice back. I have the Quintisential sounding "Frog in the throat" which I did not prior to treatment. I just recently had a neck disection but if I recall correctly the frog was there after radiation. So how many of you have a noticeable change the way your voice sounds…
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Very Confused
I been dealing with some symptoms for awhile know. So here is the exact story 1/20/05 – Had a open sore on left lateral side of tongue removed and biopsied and came back negative 4/15/05 – Growth on the posterior left side tongue removed and biopsied and came back negative **somewhere between 4/15/05 and 5/5/05 shortly…
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other cancer forums?
Hi everyone. What other cancer forums do people visit? Is there a list posted here somewhere? Warmly, Mick
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PEGS for the Pudgy?
Hi all - got my PEG placed 12-24-2009. Experienced more pain than I'd anticipated - surgeon later explained (in a very kind fashion) that more tissue experiences trauma when you have a thicker wall to penetrate (straight-speak: fat people have more pain). OK, I can accept that. At 5'7" and just over 200 lbs, I'm fat. Have…
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Side effects - Cysplatin
I am getting discouraged, and am trying to stay positive, but the side effects are worse than the TX! Has anyone had nerve damage from the chemo? Tingling down both legs 10 weeks after treatment, and hearing loss. I have learned the hearing loss is permanent, and have come to terms with it. The nerves are, quite frankly,…
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Repost with added questions
I do not have cancer diagnosis but i am worried and looking for some answers here since I figure people here have personal experience that I can't find elsewhere. Earlier today I posted this in an old thread which was confusing (sorry). I have noticed over the past months that I have a harder time talking especially…
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PET Scan results-HELP
Happy New Year Everyone! My husband got the results from his first PET scan yesterday and they said he has something on his Lung that they need to biopsy. My sister is an RN and said it could be anything but of course we are scared and worried. I am praying that it is just scar tissue from his pneumonia back in '05. Has…
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Chondrosarcomaa
Hi, I've been diagnosed with a chondrosarcoma which is located at the bottom of my right vocal cord. I'm scheduled for surgery at University of Michigan Hospital on 1/19/10. It's been definitely a life changing diagnosis. I'm an Inside Sales Rep for a Steel company and love my job and customers and if they do a total…
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Radiation Treatment
I have written a couple of posts, but have had no replies so far :( My husband was diagnosed with mec 11/05/09. He had a partial maxillectomy on 12/21/09. His pathology report just came back that cancer was not in the bone, but was in the nerves. They are discussing whether or not radiation is worth the side effects at…
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cisplatin vs erbitux for treatment
i am newly diagnosed stage 4 r and l vocal cords and r glottic area. i am starting radiation jan 5th and chemo jan 11th. dr. will be using cisplatin and erbitux has not been mentioned. i was wondering if anyone has any thoughts on this i am female 54yrs. and in otherwise good health