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Weakness and pain in limbs post treatment.
Hi, My father was diagnosed with stage-3 Colo Rectal CA. He went through Radiation->Surgery->Chemotherapy and all these treatments completed in March 2021. He physically looks better after gaining muscles and strength but complains about weakness and pain in limbs and shoulder muscles. We dont have a reason for this pain…
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It’s taken me a long time, but I’m becoming an official hippie
We just spent 3 rough days in NYC at Sloan Kettering, where the original 2 appointments over 2 days became about 10 appointments over 3 days, as we added MRIs, more CT scans, labs, a myelogram and a radiation oncology “fitting/simulation.” The cancer has metastasized to my spine and definitely in my lungs as well. I’m…
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Where do I go from here?
I'm 45 and was diagnosed with stage 3 colon cancer 12/23/20. The folllowing January I had a sigmoid resection and as of today have completed 9 of 12 rounds of chemo. For the most part I have been pretty well all things considered. Lots of fatigue, cold sensitivity, and I am now starting to feel neoropathy in my fingers and…
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Surviving and looking back
While searching old posts, looking for information that will help us track down Ron, I came across a thread by our dear friend, Craig - The Lion - long gone but not forgotten. https://csn.cancer.org/node/253494 . I read MY reply, and was quite chuffed, as I was a newbie and still qutie shy. I would have just started chemo…
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Happy Father's Day to the board dads
For those of us in the US it's Father's Day. Son woke me up at 7AM to take him to his soccer game, which I guess is a father's day after all. There are some sons and daughters on the board, you guys are great showing your support for us dads (and moms) we appreciate it. Sorry for those who might be having it a little tough…
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Treating rectal tumor with Cipro antibiotic!
Don't know if anyone else has an experience with this. Prior to being diagnosed recently with my rectal tumor via colonoscopy there was a couple of surgeons and a physician who with a couple of CT scans decided I had a rectal abscess. They gave me Cipro for 2 weeks to try to see if it would have an effect, and it did.…
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Sepsis how much is to much ?
Hello all , Well we had to rush my dad to the hospital and we are still waiting for blood cultures but they are pretty sure he has sepsis his cancer is causing a blockage on his urethra . They put in a nephrostomy tube in his kidney thankfully has his feeling better so that makes three bags now my dad has why is the world…
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Acne like rash
Hello, My dad has Folfiri with Avastin now. As with Folfox at one time he developed an acne like rash. In autumn it was on his back, he got a skin desinfectant and a cream. Now it is back on his head, it hurts when he is sleeping on his back cause it presses on the acnr. For now that is only side effect and I wanted to…
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PhillieG has passed
It is sad to note that one of our long time stage 4 survivors has passed. He was a fighter as well as someone who was determined to enjoy every minute he had. He dealt with cancer for 17 years. Phil loved life. Please say a prayer or send good thoughts to his family as they deal with this sad time. Marie who loves kitties
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Happy Birthday Kim - Annalbelle
Have a wonderful Birthday on Monday 14th, with all the great things in life - family, food, friends, fun and allot more. We will all be thinking of you.
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where to test CA724 and AFP in the U.S>
Dear all, I have been having GI symptoms for over a year, with elevating CEA. The breast cancer diagnosis was about 4.5 years ago. With newly discovered H.Pylori and SIBO I have, I know I have issues. After researching here in the network and the web. I found that there are tests like buncling CEA, AFP and CA724 (among…
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Interesting article Microbiome
Frontiers | New Insights Into the Cancer–Microbiome–Immune Axis: Decrypting a Decade of Discoveries | Immunology (frontiersin.org) I found some parts of this article interesting and some I need to educate myself on more.
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Just Found Out Lonsurf Stopped Working and Cancer Growing
And to think I was bummed about the Knicks getting knocked out early or the Yankees playing horribly. Time to move on to a trial. I know the next move if the trial does not work, but want to get ready for the next move when/if the move after the trial move. Yup. I plan ahead. My doctors still have no idea how I can be…
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It's been about 17 months since Ron50 was on the chatroom
Has anyone heard from him. He always said that the ''other'' things healthwise, and fallout from his treatment, were what would get him, at some point. The hard part of these virtual connections is that so many simply fade away, some a sign of successful treatment and a ''getting back to 'regular' life''. Others just end,…
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Colon, Liver, Lungs, Part 2
Followig the good news of the scan showing good reduction in tumors, the side effects continued. Hand/Foot syndrome continued to be intense. She had some dizziness which resulted in her walking with a walking stick. It is working but it is taking it's toll on her. We had a re-exam with the holistic oncologist who discussed…
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Chemo nausea
Hi All- Just wanted to say I have had great success in quelling chemo nausea by drinking tart cherry juice the morning of chemo. I drink about 1/2 cup. The brand I use is Smart Juice Tart Cherry. Next I am going to try drinking it every morning of chemo to see if I can feel even better on the second and third days. I hope…
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Dad's Update: PVE and second opinion
Hello All, Hope all are doing well and healthy. It's been a while since my last post so wanted to keep everyone posted and especially share an experience. I've updated AboutMe page with history for detailed information but briefly, dad have colon cancer metastasized to liver (July 2019) . So far two surgeries were…
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Blood in urine
We couldnt even get just a days break from the b.s. Dad did his last round of FOLFOX, was struggling through the subsequent fatigue, cold sensitivity, and nausea. Just as he felt like he was turning the corner, just as he planned to dip his feet in the pool the next day and try a beyond burger and maybe even a bit of his…
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Necrotic tumor and radiation advice
Hello all , " Mostly Necrotic Tumor consistant with recurrent adenocarcinoma " that was the biopsy results which stopping at the first three words I thought was a good thing . Until I read the rest and my dad's oncologist explained dead cells in a tumor often are around cancer . I always assumed dead cells in a tumor was a…
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Happy Birthday Danker!
June is the Birthday month, of our friend, and oldest forum member, Danker. Everybody join with me in celebration of this very special forum member. Whose wisdom of years is combined with excellent advice of a long-term survivor.
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Hair? Where?
So the anticipated alopecia has begun. That's nearly 20 yrs as a dread down the (shower) drain. I actually made it to the end of FOLFOX before they started falling out, but I still had hair on my head. While I'm rapidly losing the skull cap, the hair elsewhere remains. I mean, I could really stand to lose some ear hair,…
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Anyone know the difference ?
Between a oncologist and a hematologist ? reason I ask I just found out my dad's doctor is a hematologist not a oncologist does this matter ?
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thoughts on stivarga/regorafenib
Anyone on this? Are the results good? Are the side effects bad?
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Update on Treatments But CEA not normal
I have finally finished with my 12 Treatment of Folfox after having a Hemicolectomy back in November. I was excited to finally be done with the treatments, since my PET Scan before showed no evidence of the diseese. I have some nueropathy and some other minor side effects, but nothing too severe at this point. I had blood…