Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for February 2021

Recovery 2nd liver surgery
Hello, My dad is already home from his 2nd liver surgery. They got it out, it was 3,5cm big and I have the high suspicion that it was there at the beginning but not visible on CT and MRI or USG. I dont know what the doctors suspect. But they are careful. My dad said that he has a highly aggressive tumory maybe because it…
Naturopathic Doctors do what ?
So my dad and his oncologist still can't get on the same page about treatment or even if my dad still has cancer . Dad doesn't seem to want to change doctors seems to be pretty okay with the wait and watch it approach as you all can guess I'm not so okay with the wait and watch approach .Since it is not my choice however…
33 treatment
Had my 33rd treatment today. Even though I handle it all well, how long does this go on? My blood works, good Cea is in normal range 3.9. There will be no liver resection thanks to the lung nodules. Have anyone else had this many treatments?
Dad and me been talking
My dad and me been talking his last pet scan showed what there calling a " highly suspicious " for malignancy mass in his pelvis . It didn't grow since last pet scan and FDG uptake actually went down slightly so the radiation oncologist was stumped . He still wanted to do radiation but he admitted he couldn't say 100…
CA-19
Good Afternoon! I am brand new to this system. I have colorectal cancer and finished with chemo. What is a good CA 19 reading?
Not News I Wanted...Plans Have Changed In A Big Way
This is not a post I ever wanted make but have to before I lose to ability. I was driving and talking with brother today and my speech slurred. I immediately pulled over, hung up on him and dialed 911 ..Long story short, after a trip to the ER, I learned I have a pretty big lesion on my brain. The swelling is causing the…
New scans? CEA and Ca19-9? What could it mean?
Hello lovelies. Sorry I don't reply to my posts but your replies mean the world to me. Can't even remember where I left off but my father had an abscess near the anastomosis after his resection so he was admitted to the hospital and put on IV antibiotics. After a few days the surgeon decided to give him a (hopefully)…
2nd liver surgery
Hello, My dad had his second liver surgery yesterday. He feels much better than with the last one. It is a good sign when he calls my mom after surgery. So he was not too exhausted. Last time he lost blood and was weak for a feww days. The surgeon cut away one liver metastases. He looked and looked but could not find the…
Newly Diagnosed, Colon, Liver Lungs
We are new to the forum. Here is a little history. My wife is 61 and pretty healthy. She is a type 2 diabetic but has her diabetes mostly controlled with metformin and diet. Her A1C was 6.0 during her last blood work. She is physically very active. She began having some pain in her right side which grew in intensity over a…
Anyone using icing of hands and feet during FOLFOX chemo to prevent neuropathy?
My cousin was just diagnosed with stage IV rectal cancer (liver mets). Will be having oxaliplatin, 5-FU, and leucovorin (FOLFOX) regimen. I've read that peripheral neuropathy is likely afterwards. I had great success with icing my hands and feet during Taxol/carboplatin chemo for uterine cancer. She's been told that this…
Depression
I don't know if I'm in the right section to post this. Have you experienced depression post chemo? I'm four months out from my last chemo session and awaiting resection. Diagnosis was stage 3 colon cancer. I've been feeling very low and spend a lot of time in bed. I know I need to get up and exercise, eat right etc but it…
Anyone ever had or heard of this ?
So we meant with the radiation oncologist and got my dad's newest pet scan results and there confusing as always. There is still something highly sususpicious for cancer in his pelvis but the confusing part is that the FDG Uptake has went down since last pet scan and the " mass" isn't getting any bigger . Anyone else ever…
Tired of hearing about Vitamin D yet?
Vitamin D for patients admitted to hospital could cut Covid deaths by 60 per cent (yahoo.com) Vitamin D: Could the ‘sunshine supplement’ cut Covid’s death rate? (yahoo.com) Vitamin D For Preventing COVID-19: Hype or Hope? : Shots - Health News : NPR
NED Again!
I had my blood work and CT Scan done this past week, and a visit with my Oncologist yesterday. He came in, beaming from ear to ear, with the good news that my scan was clear. It must be so nice, as an Oncologist, when he sees his Stage IV patients surviving. I can't comprehend how awful it must be to be in a profession…
Appetite
So my dad has been maintaining a good weight for a while now and now with his pet scan coming up monday he seems to be losing his appetite . Not totally he eats just not like he was eating usually just kind of picks at his food or eats half of it I don't know if it's scanxiety or maybe a bad sign that the cancer has spread…
Birthday celebrations for our SophDan2 on Friday
I hope your day is filled with wonderful things - all the important things in life, like family and friends and food. All the F's. Tru
A bit worried about my dad
Hello everyone. This is my first post on this forum. I usually post on behalf of my dad in the head and neck section (as he's a cancer survivor). But he's been having some issues the last few months that made me worried it's related to colorectal cancer. He has been experiencing excessive amount of burping. When I say…
My mom was diagnosed with Stage 4 Colorectal Cancer - What indicators should I be tracking?
Hello, My mom was diagnosed with stage 4 colon cancer in September. The news is still setting in and I have been doing my best to stay positive and keep it together but these last few weeks have been tough, my mom transitioned out of her previous care due to an insurance change and since then, she has had more bad days…
Good to still see some familiar names! I am now 5 years in.
I haven't checked in for a while on here, so I thought I would catch up a little. I had a couple years NED according to my PET scans, but I found out in the summer of 2019 that my cancer was just hard to detect, not gone. I had my third surgery in August that year and there are 40 some tumors that are only visible when you…
Top cancer centers in or near michigan ?
So my dad's oncologist has been all over the place from telling my dad he is stage 4 with lifelong chemo needed to telling my dad he is stage 3 with so little cancer left on his tailbone it can't be seen on a scan . It honestly just seems like the oncologist is in over his head cause of my dad's NF disease . With another…
My CEA jumped and I am panicking a little
My CEA jumped from 3.3 to 5.9 in 2 months, and I am so horribly panicked.
Vectibix and moving forward
Found this forum tonight. First post !!! Got a miraculous type result from my recurrence stage 4 non-curable cancer from Folfiri chemo and Vectibix combination. Treated from July to December. After late December PET scans, oncologist is moving forward with Vectibix every 4 weeks. There is a patient in his practice with a…
Why can't chemo cure cancer without surgery?
I am not a surgical candidate, so it makes me so sad that chemo alone can't get us to NED. I believe that one day it will be possible, and I am hopeful it will come in time for me. But it just makes me so sad that they always say you can't be "cured" without surgery. I am mostly positive, but I just found out my friend who…
There's always something new right around the corner. . .
How Scientists Shot Down Cancer's 'Death Star' (yahoo.com)
Looking for advice - radiation side effects
Hi all. I'm here looking for some advice on side effects from my radiation. I have stage 4a rectal cancer, diagnosed in August 2020 at age 49. I've completed 8 rounds of FOLFOX and am now doing radiation with Xeloda orally. I go to radiation five days a week, Monday-Friday, and take the Xeloda each radiation day (3900…
Pet was a good decision UPDATE Surgery
Hello, The PET of my dad was a good decision. It found 2 small liver tumors. We dont know if they were there at the beginning, just too small to detect, or if they are new and grew in the last weeks. So, we have no idea of it was always there or if it is a relapse. He is now 2 mpnths without chemo so I think they are…
More heartbreaking news
Just found out my dad's urologist Dr Brain Lane has terminal cancer and the news is actually heartbreaking to me even during my dad's surgery he had the cancer and was in remission but it came back and has spread . I literally have tears in my eyes he was so kind and explained everything to me after my dad's surgery . He…
New to this board.
Hi. My mother, aged 48, was recently diagnosed with stage IV colon cancer. It's been incredibly overwhelming, as I'm sure you all know. She went in for stomach bloating and they realized she has ascites and from there came more tests until we landed at this diagnosis. She has mucinous adenocarcinoma of the hepatic flexure.…
Looking for Chemo tips/tricks
My name is Emily and I am 34 years old. I was diagnosed with Stage 3 Colon Cancer in early January. I'll be starting the Cap-Ox treatment soon and am wondering if anyone has tips or tricks I should know? * Do you use any mouthwash to prevent mouth sores? * Any lotions to prevent hand/foot syndrome? * Are there any diet…
Cancer is becoming a plague on my family
First my dad then my aunt got beast cancer now my uncle has lymphoma and my other uncle the doctors are talking cancer to . All but one of my dad's relatives appears to have cancer and it's blowing my mind is this common ? Also does anyone know if this could mean my dad's family has a genetic mutation ? If so should I be…

Colorectal Cancer

Discussion List