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Colorectal Cancer

Archives for January 2021

9 Years NED Today
To All, Today is my 9 year NED from stage 3 signet cell colon cancer. Also known as my "other" birthday. There are no words to express how I truly feel. Lucky doesn't do it, blessed doesn't even do it, if I can give hope to someone currently going through this difficult time then I will take that. I remember when I was…
Chasing Sunrises
Happy Sunday! I stay in the shadows and look in to see where everybody is often. For the new ones here, I was diagnosed Stage IV in 2018..sigmoid tumor and 2 huge tumors on my liver. I went thru chemo, lost half of my liver,gallbladder and part of my colon. I refused mop-up chemo and my oncologist found spots scattered…
Sharing the strangeness in this new covid world .
My dad has struggled with body image issues ever since he had his ostomy and urostomy bags something happened that made him happier then I have seen him in a long time . He run into a old friend who he hasn't seen in a while and she gave him a hug . Now a hug from a woman made him feel like a man again his words not mine…
AHHHHHHHSTOMY
Well, my dad did have a leak. Some type of special contrast confirmed it. Why they didn't do that contrast before as he sat in the hospital for days I don't know. Can anyone share their experience with ostomy and reversal. I searched a little on here but all I see are problems that people posted. Maybe it's just not that…
Covid Vaccine for MSK patients age 65+
Through MSK, as an active patient, I was able to schedule my Covid vaccine for Monday, Feb. 1. If you are in Active treatment (i.e. seen an MSK provider recently) and over 65, you might be eligible. I'm getting mine at the Westchester site. Go through the portal to get info.
1 year after colonoscopy
Hello, It seems not so long ago but 27th of January, one year ago, my dad had his colonoscopy that diagnosed him with cancer. I remember that day. I couldnt sleep because I wanted to do my neurology exam to go well (at the end I failed by one point my favorite subject). I was not worried. Yes the previous treatments were…
Leak at the anastomosis? So lost and scared
Im sorry I havent replied to anyones posts yet, I read them but we are on a roller coaster now with my dad. Has anyone had a problem with a leak at the anastomosis after their resection? My dad has been back in the hosptial for 4 days now. His bowel resection was on 1/20, came home on 1/22, went to the ER on 1/24 because…
Stage III, what now?
Dad just called and said they told him "T2 stage 3, it was in 1 lymph node". I don't know how many lymph nodes they took. Does it matter? I'm so shocked and scared now, we hoped so much it was stage 2. He is devastated. He didn't do the Nagourney (functional profile assay) testing like I begged him to, manly because the…
Problems after bowel resection
So, dad had bowel resection on 1/20. It took almost 11 hours, he has a small pelvis and dense tissue. The surgeon said she ended up removing just a small part of the sigmoid and a little bit of the rectum, instead of the whole sigmoid. He passed gas in the hospital the very same night and all seemed good. We brought him…
Can chemo cause swollen lymph nodes ?
Can chemo cause swollen lymph nodes a year after chemo ? My dad was having pain where he had a hernia repaired they did ultrasound . My dad's PD told him he has swollen lymph nodes there and that its from chemo so I am wondering could that happen a year later . Or could this mean my dad has cancer in his lymph nodes which…
An update
My husband started a probiotic which strangley enough has made a huge difference in his constant time in the bathroom. He was even able to leave the house a bit. His appetite is fabulous he is eating his goal of 2800-3000 calories a day. It doesn't seem he is gaining any weight at all though. That's very concerning. His…
Heart Breaking news from Northern Ireland
This truly breaks my heart. https://www.bbc.com/news/uk-northern-ireland-55760914 Tru
Dad is in surgery
Just dropped dad off. It feels so cruel that they won't even let one person wait or be there when he gets out. Even though one of us (me) had COVID and one of us (my sister) has been vaccinated... he was so nervous. I know so many of y'all are old pros at surgery. I'm trying to let that comfort me. Sorry for Comments or…
where to purchase / buy Vitamin C IV mega dose?
Hello, Due to the pandemic, all clinics in Illinois ran out of Vitamin C IV. Now all patients have to look for other solutions to find Vitamin C Intravenous to continue the therapy. So we can call it a humanitarian case. Question to the members of this forum ... does anyone know the distributors of Vit C IV (contact and…
Thyroid Ultrasound
Hello. I'm new here but have been creeping around this discussion board for maybe a year. I was originally diagnosed with colon cancer in February of 2018. I've had several surgeries and have been through chemo and radiation. My most recent surgery was in November of 2020 to remove a nodule on the lower part of my left…
So the break didn't last long
Hello So while my dad was doing the wait and see approach with his onc the radiation onc called so the break was kind of short . We went to see the radiation onc and he said my dad could be a canidate for radiation on his tailbone expect one spot in the front of the pelvis worried him . The radiation onc said he thought…
Update on Richard
Back in the summer there was a lymph node in the liver area that showed up during a scan. Then Richard has a liquid biopsy, which confirmed cancer cells in the blood. The liver surgeon at MD Anderson wanted to go ahead and do needle biopsy on the lymph node and an endoscopic ultrasound on the liver. we flew down to Texas…
daily steroids
Hi All- I am currently undergoing my second round of chemo. I have a lot of pain from my rectal tumor and it hurts the most when I am sitting in a chair. This has lead to me missing a lot of work. I take morphine, acetominiphine, and gabapentin every day but they only make the pain manageable for staying home and laying on…
Covid Vaccine
Do y'all plan on getting it when your "group" is eligible? I was thinking today how terrified I get when someone without a mask comes close, and then I worry for 10 days, and how extraordinarilying fabulous it is going to be to have that anxiety lifted from my shoulders! I will still wear a mask until we get the all clear,…
Appt. last friday with oncologist
Had my year and 1/2 check up last friday the 8th. The oncologist did bloodwork........he said it was perfect. My CEA was 1.8. He ck'd my Covid antibodies and they were 175. Next checkup will be a PET scan at the 2 yr. mark. One question, l still have phtom pains on the side(right) where they took my ascending colon.…
CEA decreased but onco says cannot continue treatment...
My mom was diagnosed with MET colorectal last year which had Metastasized to liver, bilobar. Her CEA at that time was 1600, her first line treatment went well, but within 3 months we were back to square one. At this time her CEA dropped to 800. With second line chemo the recent PET scan showed that the size of the cells…
No resection
Well at Penn State yesterday I got some good news and some bad news. My liver and lungs are responding to the chemo but with nodules on my lungs I can not have a liver resection. Oh well, I'll see my Onc on the 13th and see where we are going. I do feel really good though. Taking it day to day. I am an ex wrestler and…
Surgery Wednesday...
So, I'll be going under the knife on Wednesday the 13th to get the little lump of demon cancer removed from my breath bags.... Not eligible for VATS because of where it's at... Darn the luck... I'm on my way out to find some pj's with a button up top (who actually wears those?) and get my nails undone... I'm more upset…
Panitumumab--Has anyone currenyly on or tried this med?
I was just put on Panitumumab (Vecix) which I started yesterday becuase my CEA shot up to 600 even though all scans are clear. Like all of us, I dont want to be on any infustion, but I want to see if anyone hs any success or no anyone who has success with this medication.
Life after TME surgery?
Hi, I am 58. I was diagnosed with rectal cancer. A colonoscopy removed a small polyp using electric cauterization, but was not thought to be worrisome until the lab came back. Lab came back as cancerous to the edge. Originally, due to a follow up sigmoidoscopy, where ink was used to identify the spot, but caused swelling…
I am at a loss
I don't feel like I can say this anyplace but here I try not to say much on Facebook because my husband hates his business out there. I think he might be dying. He had a stent replacement before halloween and they could barely advance the scope, but they did. They removed and replaced two stents. within a week he was very…
The
is there a place where I can read About more people who have survived this? I exhausted the too few survivorship stories that come up when you search them like on fox chases website and cancer coalition.
What to expect from FOLFOX & 5-FU?
Hi all, I started Chemo (FOLFOX & 5-FU) on Dec 14th 2020. So far, the side effects they've told me about are: * Cold sensitivity * Neuropathy * Nausia * Fatigue What I have experienced so far: * Cold sensitivity - Pretty bad after the treatment, but fades over the next week to 10 days. * Neuropathy - Minimal so far, I only…
The great run has hit a road block
I can't believe I haven't been here in so long, well I have checking in....but just not posting. I found a great support group for caretakers and am very active there. It's been 37 months now...so hard to believe that he has been fighting like a trooper. As of my last update, his meds did not change he was doing very well…
Colostomy supplies
I used SenSura Mio Flex 2-piece with adhesive (wafers precut at 1.25 inches) and have leftovers to give away. PM if interested. Alice

Colorectal Cancer

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