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Colorectal Cancer

Archives for January 2018

Spine lesion
my dad has pathological stage 2a no nodes no any organ involved his Pet for upper body is all clean With Grace of Almighty what bothers me is his spine Lumber L-1 & 2 has some uptake showing Lytic and sclerotic lesion involving intervertebral disc and they wrote it as infective process ( dad has tuberculosis earlier)…
Oxaliplatin put back into mix
Has anyone been taken off the Oxi and then put back on with success? Me CEA has been creeping up, so onc added Oxi to my latest infusion at a reduced dose. I previously had 13 infusions with the Oxi, then taken off for past six months to the neuropathy. If anyone has similar experience let me know. Peace!
Fingers getting brown?
I think my fingers are turning brown. Has this happened to anyone else? My skin is drier so I am wondering if it is just dead skin that needs to be sloughed off. I also got a brown spot on my forehead.
MD Anderson Clinical Trial Waitlist
I traveled to Houston, Texas over the holidays to see if MD Anderson had anything better to offer than my local clinic. I didn't like the idea of being on Folfiri "for the rest of my life or unitl it stopped working" as my doctor in Fargo told me. The CT scan showed growth in a few tumors in my lungs which was expected. It…
CEA
my Father’s CEA level before surgery was 3.95 n/g and exactly after 6 weeks after surgery it is 4.55 n/g iam worried he is not on any treatment for now , his PET scan report is due yet please help and Pray
Help needed: Should we change chemo scheme now (from Folfox to Folfiri)?
I have the following situation: my moms primary oncologist recommends we stay the course, i.e. to continue with Folfox 4 but to add also on top Avastin after the CT scan results of January 4th. She believes the deterioration in the liver is not that big and that we shouldn’t get rid of a med so quickly (potentially because…
Scheduled for radioembolization consult with radiologist
Hi all! I would first all like to thank each and every one of you on here for the much needed encouragement and information given to me regarding my diagnosis. Words cannot express my gratitude, this is such a difficult thing to face and to battle every day. I've known about this consult since my last Dr visit but just…
Shocking!
http://www.bbc.com/news/uk-england-oxfordshire-42632450 I was born at The Churchill Hospital. My friend, who passed away last month, was treated at The Churchill Hospital. If I hadn't moved, I may be one of those affected. I couldn't believe these lines. Quote: But the memo also suggested cutting back on treatment to…
Article on new skin barrier product, plus:
Did you know that in the US there are some 800,000 of us ostamates? www.eurekalert.org/pub_releases/2018-01/wkh-nsb010918.php (can't get the link to come up blue so you can click on it)
Advanced Cancer
I found that to be an interesting read: How-and Why- Oncologists Should Help Patients Make Treatment Decisions, 'Or, Is It Ever Time To Stop Chemo?' Video Transcript Achieving Communication Excellence (ACE) Lecture Series Interpersonal Communication And Relationship Enhancement (I*CARE) Dr. Thomas Smith How-and Why-…
Foundation one testing... anyone heard of or tried it? Running out of options
The last treatment i was on stopped working. My CEA went up to 100 and my scan shows slight increase in tumors. One in my lungs & one in a lymph node by my aorta. Idk but upset so i didn't ask many questions. Decided to go back to oxi with 5fu and adding in avastin. She had stopped oxi 3/17 because of the neuropathy.…
Paste for ostomy?
I was changing my ostomy bag yesterday and was thinking about how some people have such a hard time with having to replace the bag often. I replace mine once a week now. I was able to get 5 to 7 days out of them previously while I was using a wax ring but it would eventually lift and seep and burn my skin. Without the wax…
Lynch Syndrome and depression
I was diagnosed with Lynch Syndrome at the age of 25 after having discovered a tumor in my colon. It's been 13 years since it was cut from me and I'm still afraid for my life. I eat anti-anxiety and anti-depression meds like candy. I haven't been able to function as a normal person since. I'm a mess of anxiety and…
Mom taking Stivarga
Hi all. I am new to this site. Mom has been fighting colon cancer with Mets. She cannot tolerate Xeloda; Folfox; Or Folfiri. Now taking Stivarga with lots of side effects. Any words of wisdom would be greatly appreciated!
Good news on my latest CT scan results
I just got the results from this morning's CT scan. Two years, nine months since my initial diagnosis of Stage 4 rectal cancer with mets to the liver, after chemo, radiation, more chemo, a liver ablation and APR surgery with a permanent colostomy and continuing maintenance chemo, the scan shows no evidence of new…
Pre- and post-operative CEA levels
I have noticed quite a few postings about CEA levels and thought some might be interested in this summary of a JAMA article on the topic: "In this cohort analysis of 1027 patients, the 3-year rate of recurrence-free survival (RFS) in patients with elevated preoperative CEA that normalized after surgery was similar to the…
Mum’s rectal cancer stage 4-I just got the CT scan results and it’s not good-please advise
My mom has stage 4 rectal cancer with mets in liver and the lungs. The mets were diagnosed 20th of September (previous CT scan), it took us 1 month and 10 days to start chemo , she started Folfox 4 in November 1st, she had 4 rounds since then and doctor asked for a CT scan now to check progress. I just got the results…
CT scan results
I had a CT scan last week. I just got online and read the results. Everyting was good in the abdomen and pelvis... Liver is good. But the chest CT results shows: There is now noted nodule in the left upper lobe axial, 5 mm. There is nodule in the left lower lobe, 9 mm. No other lung nodules are identified. Stable apical…
An interesting issue--financial incentives for chemotherapy
I came accross this issue a while back when a local newspaper article suggested the "spread" between actual cost of IV chemotherapy and the reimbursement rate provided 10% of the budget of the cancer center where I receive treatment. This raises the very real issue of whether my oncologist has a financial incentive to…
Chemo(cetuximub) related acne
Hi everyone, I wonder has anybody had acne on the face that related on chemo, cetuximub. I had 1st cycle of that chemo and had acnes on my face, my incolohist gave me antibiotic and a gel but it looks like it will be a permanent issue During chemo. Has anyone found a different solution for that. Thanks for input.
Life on the high C's, 800 infusions
My wife has had 800 infusions of IV vitamin C over 7.7 years. This past year, we have mostly managed to skirt by on fewer infusions at higher dosage. The past 100 infusions (~22 mo) have been with 50-90 grams of vitamin C (50,000-90,000mg) per completed infusion. Infusions were spaced a median of ~6 days apart, with two 3…
Newly diagnosed...here for support. Hello!
hello. It all started with a bit of blood, being told I had statistics and being young on my side and not to worry. One colonoscopy later, I have stage?2, possibly 3, colon cancer. The tumor is located in my sigmoid colon, almost at the rectum but with enough colon to remove and resection. 2018 is going to be about…
Hands and feet peeling.
My hands are peeling so bad after my 5th treatmeant. I am worried about how they will be after the 6th treatmen. I put lotion on all of the time.
no tea/coffee with meals?????
Hi--and happy new year, all! QUESTION: Our sister told me our brother (Stage 2 colorectal on Xeloda and radiation) is not allowed to drink tea or coffee with meals--because it would inhibit iron absorption????? Between meals, no prob--but not while taking food for nutrition purposes..... Anything to that? I am seriously…
Hot tub after port surgery
Hi there, I have a qustion for the community. My port surgeon gave a limit of 4 months of healing before immersing myself in a pool or bath tub or hot tub. Surgery was Nov 2. the hot tub is mine, not a community one and I can control the chlorine I’m not asking the internet to validate my desire to hot tub early, but that…
Have a Happy and Healthy 2018!
Someone sent me this article thus morning. Although the subject did not have CRC specifically, I found it inspiring. And love this guy's sense of humor. http://www.macombdaily.com/sports/20171230/column-a-different-kind-of-scoreboard P. S. Wish the link worked more simply.

Colorectal Cancer

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