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Radiation burns
I have had 18 radiation treaments out of 25. I have stage 3 rectal cancer. When the Drs. told me I would have irritation in that area I had no idea it would be as bad as it has become. about 2 weeks ago the irritation started, now I am in constant pain and when I pee, I cry. They didnt warn me about the burns going beyond…
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Could use some advice
My husband who is a healthy 39 was diagnosed with rectal cancer during a colonscopy because he was having constipation issues. They then did blood work that was fine and his CEA was 9 which the two different oncologists said means they might be able to use the marker to see how his treatment goes, but maybe not (very vague…
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Ileostomy reversal complication
Hello, I was diagnosed with Stage 3 colon cancer back in March 2015. I did 8 treatments of 5fu which was followed by 28 radiations. After that, the tumor in my colon was removed as well as 15" of colon. I was given an ileoscopy bag. I kept the bag for 8 weeks then went in for ileoscopy reversal. My dr said that everything…
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This and that
My hubby and I took a short pre-surgery vacation to the beach this past week. The weather was fabulous. It was nice to get away for a short time. I would have preferred Vegas but since I have been grounded until after surgery. It was the next best thing. On Tuesday morning I got a call that a very long time friend had…
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Possible New Treatments Pinned Post?
I'm wondering if there's a way we could have a pinned post that would include all the potential new treatments, where they go wrong or if they remain positive, what really doesn't work, things like that. It might be a handy for all of us but particularly for new members. We all know that once they've been diagnosed they'll…
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Some good news
9 years ago today, my brother and sister traveled 125 miles to visit me, their sister, who during a routine hysterectomy was diagnosed with metastatic (Stage 4) appendix cancer (mucinous adenocarcinoma.) We sat in my hospital room and cried, not knowing what to say. Fortunately, my subsequent 170 mile travels to a…
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Weight Gain
So last year while I was in the hospital for the PE I lost about 35 pounds. My family thought I looked sick and my doctor was always encouraging me to gain weight and eat more. He said I was malnourished. I did eventually start eating again but never did get back into as much as I used to eat, which wasn't that much…
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Intro -
I'm so thankful for the internet. Thankful for the information available (even though sometimes TOO much information) as well as the communities and support groups that can be found. Almost 3 weeks ago, after excruiating pain for weeks, we found out my husband has cancer (colon w/mets to liver). It was an absolute and…
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Sad news
my husband passed away yesterday. He was 50 and was diagnosed stage 4 about 3 and a half years ago. He just started hospice on the weekend and was pretty comfortable. All three kids (18, 16 and 4) and I moved into his hospital room last Friday. He seemed to take comfort that we were with him. On Tuesday he slept a lot but…
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Sometimes, Just Sometimes
I am a year out. And unless you are the member of this silly club, there are no words. Two new diagnosis of people and two more people gone in the last few weeks. Not the colon ones, but still... And it is truly amazing how much strength and grace I have seen with all of it. And I think that I am so weak considering…
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Happy Birthday Ron50
Dear Ron. I hope you have something special planned for your birthday. Remember, your friends here are thinking about you, and wishing you the best. You are a constant. We are so grateful for the many years you have been NED, even though they have been anything but easy. We are grateful for your years of support and good…
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5 year scans
Hey guys, it's been such a long time since I've been on here. Friday will be 6 years that I was diagnosed with stage 2 rectal Cancer. I'm going in for my 5 year scan this month. Of course, the first thing I open was someone's post about their 5th year scans, and finding a liver tumor. I am so nervous. My husband suffered a…
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Malignant Polyp
Hello, I am 39 year old female from Europe but living in the US. I was diagnosed with a malignant Pedunculated polyp Haggitt level 1 in January. Cancer center diagnosed me with low risk polyp since the stalk was free of dysplasia and Cancer. And surgery wasn't indicated. I am nervous just being monitored... Thank you for…
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question about edibles
Hello dear fighters and friends - I am one round two of chemo - typing with my pump at my side. So a well trust friend of my gave me a 10 packe of little watermelon candies/gummies of edibles. I am willing to try but wondering when would be the best time. I am bacscially usising zofran evenr 8 hours to ward off the nasuea…
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New here hope someone can help
My husband was diagnosed with stage 2 high risk colon cancer, high risk because the tumor was the size of a grapefruit and it's a fast spreading cancer. After he was diagnosed I started to noticed an odor, then I realized it was coming from him. It's almost like a urine. I'd how to explain the smell. I am now sleeping in…
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It's Been A Long Time.....Thought I Would Stop In To Say HELLO
It will be ten (10) years NED for me in July 2016. My last CT scan (March 2016) came back clean. It amazing me how uncomfortable I still get when I see my Onc and get these scans. The "cancer" word never seems to leave your mind and is always hooving somewhere in the back black areas of your brain. To this day I am so…
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So Many Questions
I apologize in advance as this will probably be long. I joined several months ago for my Husband Robert. He had a resection of his colon in 2010 before I knew him. Shortly after we met he went for his final scan (5 years) and they found a spot on his liver. He has liver disease, so it was assumed that was the issue. It was…
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Hospice
i can't believe we are here but my husband started hospice today. I'm just so sad ... For him, for me, for our kids. Not fair.
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Reminder to recheck the weight/height on your record before chemo
Do you double-check your weight and height on record with your dr before chemo? I now know of several people, myself included, whose chemo doses were incorrect because someone recorded the wrong height and/or weight into the medical records. In my case, the intake nurse put my temperature as my weight in kg (97.4) and I…
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Cancer and vision loss
I was recently determined to have with colorectal cancer. I even have abnormalities in vision. I went for an eye check yesterday and the specialist prompted me to take the Lasik eye surgery procedure from any nearby facility in Toronto like the Goldberg centre(https://www.goldbergcentre.com/lasik/ ). But I don't know…