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Old guard here....busy with life....10 years later....
I am thankful for being able to post this.... 10 years ago, November 27, I was told I needed to "get my affairs in order, you have 6 months to live". I do not follow directions very well (although I DID get my will finished, trust for my disabled daughters established, etc) and so I come to this anniversary I was not…
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Scanziety and Candles for You
I've been feeling kind of anxious and emotional and short-fused of late with no real idea why. When I looked at the calendar today, I saw my next CT is 08 December. My heart started racing and my breath caught and I just...yeah, instant anxiety. My appointment with the oncologist is the following day to discuss the results…
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Recurring abcess
After my colon resection in June I ended up with an abcess. They put a drain in which was one of the most horrifying experiences of my life. They took it out after a few days. A week later I was back in the hospital with another abcess and another drain which I had for over a month. The first abcess had closed off so this…
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How many people don't finish their chemo regimen?
I'm back to seriously considering stopping the chemo early. I've done four of eight and will do the fifth on Monday. I'm seriously thinking about just doing six. I want to give this my best shot but I'm so sick and miserable I just can't imagine still being this sick at the end of January. Have all of you finished your…
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Husband lost his fight to stage 4 colon cancer
On Tuesday November 18, 2014 at 9am, my husband lost the fight, he went peacefully in my arms. I was with him holding his face looking him in his eyes giving him praises for being such a wonderful man and making us so happy. He did his job! He was surrounded by all of his family members the night before, we prayed and…
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FREE. This weekend - The truth about cancer seminars - Alternative medicine
For anyone interested these webinars are free until Dect 1, 2014. They are about alternative medicine, and there may be some take aways for you. If you have a Smart TV, you can actually see them through YouTube on the big screen. I sometimes use wireless headset connected to my IPAD to just listen as I do things around the…
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Happy thanksgiving!
I am a blessed and lucky woman. I am surrounded by love and support! Our kitchen will be filled with family by blood and family by choice! All of you have given me more to show gratitude. I know I've gotten strength from your kindness and support. God is good. Being alive even with all the challenges is the best ever! Give…
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HAPPY THANKSGIVING!
I am thanful for all of you. And remember, no matter what you are going through, you are much better off than than the turkeysweating grease in your 350 degree oven lol. Laz
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Happy Thanksgiving
Happy Thanksgiving! Hope you are surrounded by family and friends. Be safe.
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Happy Thanksgiving Everybody!
Happy Thanksgiving everybody! I am so glad to be alive to celebrate this day. For those of you who can eat, enjoy it to the fullest. For those of you who can't, I hope you can find some way to partake. The Stivarga (or nighttime mouth breathing - I am not sure) has given me little cuts in my mouth which make chewing hard…
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It's Been Six Years Today
After this long you would think that I'd just move on with life and get over it especially when you are NED, but I've never been able to leave these boards. I'll have a break from the board usually at the beginning of the year promising myself and my husband that taking a three month break away is my gift to myself and him…
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What to do?
I had a polyp, which turned out to be cancerous, removed in October. According to my CT scan and ultrasound, there is now no evidence of cancer. However, the radiation oncologist recommends either a low anterior resection or a transanal excision with possible radiation. He said that's the usual approach to my type of…
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Our friends who have passed - 2014
Laz has requeted the list of our friends who have lost their lives this past year, so that we can remember them at this special time of the year. It breaks my heart as I read through the list of friends who I have grown to love. I will join Laz in being grateful for the time we were able to share with them, and for their…
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Update on my mom - not great
After getting her CEA reading of 520 about a month ago, my mom's CT results are in, and they bear out pretty much what I feared and worse. My mom actually got the scan last week, but she was very evasive about sharing the information with me until I saw the papers for myself this past weekend, and I've kind of been in…
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Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…
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cat scan with barium
since i had 3 pet scans I can only have cats scans now what im wondering is they want me to drink the barium would this only show gi trac I thoufght it was strange was was not getting dye injected
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now really concerned
I had some good news so-to-speak last week after a CT scan and then a pet scan they located only one node by my small intestine that lite up. Surgery to remove it will be in about 10 days. It all sounded very promising. But today I got up for a bowel movement and the toilet had a lot of bright red blood. Every time I've…
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Update
Sorry, I have been off the forum for a few weeks. I will get caught up this week. My life took a twist when I had a TIA that got me to the ER and admitted to the hospital. Some residual right sided weakness resolving. Still being worked up... Scary experience. Meanwhile, I wish everyone blessings galore for Thanksgiving…
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I yelled at a Nurse today.
I am still in the hospital and an Oncology Nurse PA comes in from my Oncologist's office. She starts hammering me on making a visit t the Doc's office to receive Chemo. I ask if they will be open Thursday to remove the pump. She said no, they will close tomorrow at noon, and then be open on Monday, but if I came in today…
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IV vit C #600, a road less traveled
It is ca 4.7 yrs since wife's initial diagnosis, 4.6 yrs of IV vitamin C along with about her weight in supplements. She's infused about 36,000,000 mg of vitamin C, about 80 pounds of the stuff, directly into her veins, not even counting the oral part. This year, usually 30 (too low) - 65 grams per infusion, about every 4+…
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Who has the list....
...of frieds who passed recently. I'd love to remember them during Thanksgiving and be thankful for their company even though they are not with us. Laz
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NED and traveling to Reno and San Francisco December 4-8
I have officially been told I am NED and finished with doctors until April. A little scared to be free of doctors but happy. I am hoping to meet Sue (Trubrit) in Reno on December 5th. I will be in Reno from the 4th to 7th and then San Francisco 7th and 8th. I'd love to meet anyone in those areas. My prayers and good…
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It's Not Lymphoma
Hello All: My brother doesn't have have lymphoma. Wish it was because that can be more curable. My brother doesn't have lymphoma it's just all in the nodes from a source they are unknown to at this moment. There are spots on his lung, liver, possible pancreas, along with several nodes and possible bone. They are doing…
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Made it this far
Well its has been awhile as been very busy with Chemo and moving to different town also changing Drs but things going ok so far. Had some side effects like nausea diahrea and various infections but they keeping close watch and treating quickly so all I have to try to handle is the weakness and temper. Also lost 80 lbs…
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2014 Christmas Card List - There you go! In honor of Sheyene.
For you Richard and Bob, a current list. I work on a computer for a living. I won't be able to work from the old list. In honor of Sheyene who I never had the pleasure of meeting, I volunteer this year. Please send me a PM (private message) with your real name, address and real email so that I can send out the list all at…
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Stage IV Signet Cell adenocarcinoma - advice?
My husband Neal (Age 49 yesterday) has just been diagnosed with stage IV signet cell colon cancer. He had surgery removing the right half of the colon, part of the small intestine, and several lymph nodes 2 days ago. His tumor was located just below the cecum. he also has "seeding" of the peritoneum throughout the…
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A little shot in the arm
to boost morale! I'm proud to say Justin Fitch is family. He is being honored during the second quarter of the Patriots-Lions game tomorrow. Justin had terminal colon Cancer and is still fighting for his cause. He's truly an inspiration. He's done over 50 rounds of Folfox5 snd continues his fight against veteran suicide.…
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surgery question
Dear all: I was diagnosed with colon cancer stage IV with mets to the liver last november, at that time the doctors said that I was not a candidate for surgery...... they put me on Folfox for 8 rounds (the primary tumor reduced by 50% at that time) so they put on Avastin and 5FU for 3 month and back to Folfox because my…
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Third hospital stay in 5 weeks. Ugh
We ae back in the hopital again. The same old story, my **** stopped functioning/ We at least have a plan now! One would think we should have goten a good diagnosis the first time, but no. We now have a diagnosis, and a plan to follow through. My colon became blocked, my pain increased, and so did the pain meds. The pain…
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3 pet scans in your life
had a pet scan for nov 24th after haveing nodes removed from groin but becuse im on medicare with humana and medicade seems only 3 petscans in your lifetime but unlimted cat scans this was part of the obama health care package