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Is There Any More Room for “Some” Good News?
Well, I got through the MRI Wednesday…just barely…but I made it through… This time it was for 30 minutes with no contrast required. I explained everything to them about the problems I might have and we got started. They had the fan turned all the way up, but it still wouldn’t reach my face, just sort of blew up to my…
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From the European Society of Medical Oncology--"Colorectal Cancer:A Guide for Patients"
if anyone is interested www.esmo.org/content/download/15729/270768/file/ESMO-RCT-Colorectal-Cancer-Guide-for-Patients-2013.pdf I guess US counterpart would be found at www.nccn.com/files/cancer-guidelines/colon/index.html
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has anyone heard from Vickilg?
I have been thinking about her and wondered if anyone here keeps in touch with her off the board.
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Abackhou at rest
Abackhou, Andrew Backhouse from Western Australia, has left the board. Andrew was notable for his acceptance and thankfulness of the time dealt him. Thanks for your many thoughts, Andrew. Requiescat in pace.
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update on kayekay
I know it's been a while since I was on last but as of July 8th, I hit remission again. Hell yeah!
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biopsy
I too have good news. The nodule in my lung is non-cancerous. Apparently it was caused by my having coccidioidomycosis, better known as valley fever. Have been taking medications for that for the last six months. Apparently I'm still NED.
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Sandy...how was your trip?
I was just thinking about you today Sandy and wondering about your vacation.. .and if the teen that didn't want to go made everyone miserable or had a great time?!
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Hernia
After my last scan, which was totally clear, they even checked my lungs and bones, the Onc informed me that I had a incissional Hernia, the size of a Cantaloupe, which to him is very large. I never read on the board about this, does any of you had this happen, or heard about this, it starts 4 cm (almost 2 inches) above the…
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The future, Dr Nesslehut and vaccination and my recent experience
http://www.youtube.com/watch?v=WHP65mYLPQo He is my doctor, I am up to vaccine 7. I had a massive cea ca199 spike after last vaccine, which i hope is tumour cells dieing. My cea was 12 when i arrived germany 4 weeks ago, i did 12 days immunotherapy and my cea spiked to 44, 4 days later it was at 6. since then I have done…
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One treatment left
Hi everyone! Haven't posted in a while. Had my 11th treatment on the 3rd and it was my worse one yet! Threw up all day Wednesday and basically was in bed until Sunday. But this is starting my good week so things are looking up. Get my last treatment on the 17th and then my PET scan on the 27th. God willing, everything is…
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thxmiker!!! How are you doing?
Dear Mike, It has been a few days since we heard from you. I hope you got home ok and doing well. Let us know, Laz
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Scan results
I am really struggling with writing this post. I have been off line for the past several days due to an upcoming scan and I needed to clear my head before the scan. It is very hard for me to say this especially with so many struggling hear. Craig (Sundanceh) is a very good friend and it is heartbreaking for me to see what…
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Anger :(
My aunt, stage 4 colon cancer, diagnosed in 2011 (February), her son diagnosed with Esophageal cancer in Jan 2011, her husband passed suddenly in May of 2011, her son passed away April 2013. She's so angry at everyone. For the most part my brother and I take care of her (she is still struggling to do her daily things for…
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2 Broken Wrists - Upcoming FOLFOX
Yep - I fell on July 4th and fractured both wrists. My father always told me if I did something - I should do it right the first time...Dad died at 53...:-)...but he was one heck of a guy!!! Due to chemo I wasn't even drinking - maybe if I had been this may have turned out better! This is a year of firsts for me: 1st…
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Goodbye SteveD
Hi all, just wanted to let you know that sadly Steve passed away on 2/7/13. His final days were very peaceful,he was finally free from pain and at home with me by his side. He found a lot of comfort in your support throughout his illness and I would like to thank you for that and wish you all well in your own journeys…
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Twilight of treatments
Today I started a new treatment with Mitomycin every four weeks. Debated wheather to add xeloda but the side effects were to too strong with Mitomycin that I decided that would do a stand alone first. Had two second options andwall the great oncs came very close to similar recommendations. Since I was dx with stage four…
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Message for Craig - Sundanceh
Like your new avatar! Hope you're doing well now that the shock of the recurrance is past.
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benedryl
I will have folfox tx #15 this Friday. Since tx #6, I have been given Benedryl. I hate this, because it makes me all jittery, then they have to give me something to knock me out. This makes me feel groggy all weekend. Does anyone know if you have to have Benedryl? I know it is to prevent an allergic reaction, but it has…
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UPDATE FROM LAZ
Hi Everyone, Reading these posts it saddens me that a few of our veteran members are going through some rough times. So I ask everbody to pray for those that are hurting. At the same time I'm happy to report that I reached the half way point of my radiation and Xeloda treatment. Thanks God I'm doing really well. Despite of…
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Entitlement
The last few days I've been feeling a little bad, lots of diarrhea, tired all the time, don't want to go to work, and so on. I was starting to think I'm entitled to a bad day or two sometimes. Since I finally complained to my doc about it, he says, "You think maybe it's because you've been on chemo for 4 1/2 years"? Like…
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new problem from all the great cures from cancer
Well after suffering through all thr pain of what I thought were hemrrhoids for nearly a year and seeing expert doctors i was in Texas for the birth of my grandson when the pan got so bad i went to see one more doctor. This doc actually spends more than five minutes with me. The doc says i'll bet you had radiation and…
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How the Letter “S” Has Redefined HOPE for Me – and Maybe You?
While I wait now to go to the appointments that have been set up, I’ve also been looking to give myself some strength to wake up and face this down once again. The sudden uncertainty of the fight plan and having to get to a point to bunker down and fight once more has left me looking for encouragement within myself – while…
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Duplicate Post...
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Stage IV Colorectal Cancer
Hello At only 30 yrs old, my husband was diagnosed with stage IV colorectal cancer on March 1st of this year. He is on Folfox with Avastin and he is just about to finish his 9th cycle. He tolerates his treatments very well. His last 2 CT scans have shown improvement in his liver mets. He will be getting a PET scan next…
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Do you Blog to share your story with others??? It's helps a lot.
If you have a blog... Would you please share the link so we can all follow you? When I began my cancer battle, someone told me that its easier to share the news and updates with people, with a Blog. I began writing things right away, and it has become "therapy" for me and I really enjoy sharing this journey with those who…
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Avastin confusion ...
Has anyone here heard of using Avastin if currently NED? Is this not a drug to cut off blood supply to tumors and starve them to shrink? If one is NED what is the point of this drug being used? Would it be just for prevent tumor growth? If that is the case wouldn't we all be on this drug? I am very confused on this one.
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Happy 4th of July, dear friends.
I know this is not perhaps the happiest of days for many of our members (and I think "family" when I say that, just so you know). But I hope that everyone is going to enjoy the day to the best of their abilities (and for those of you in other countries, have a wonderful day just because!). We are heading to my sister's…
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Hellish hemorrhoids, ravaging radition and numb, numb hands.
Advice on hemorrhoids (who came up with the spelling I wonder?) please. I swear that the pain I go through during and after my BM's is due to the two large and getting larger hemorrhouids I have. Sometimes its all I can do to walk. I've tried several creams, even mixed in a little lidocain myself. Polysporin has been the…
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Still fighting, but starting to take some bruises
Please pardon the copy and paste from an email I sent to family and friends. So here goes! This is the email that I've dreaded writing for three years, ever since I first wrote to tell you I had cancer. I can't say for certain that I I'm dying, but I am getting very, very weak. Warning: The following is pretty graphic, but…
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“We Didn’t See This One Coming, Did We?”
How am I supposed to feel now about Recurrence #4? How would anyone feel if it were them? I believe the operative word when I broke the news to the community was ‘stunned.’ That’s certainly how I felt... <p class="MsoNormal" style="m