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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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starting chemo thurs.
I'm really nervous about what to expect. It's oxy plus avastin infusion once every three weeks with 3000 mg xeloda pills for fourteen days with one week off and it starts again. any words of wisdom?
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THE ECONOMY OF HAVING CANCER.
Hi Everyone, I started my cancer journey only 2 months ago, have a great PPO insurance and now a secondary insurance costing me $700/ month, but I already accumulated about $4000 just in copays. I still have surgery and chemo and who knows what infront of me. I'm lucky because I can still work and make good money as a…
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Ride on, Doc Hawk
The following was posted on Ray (Doc Hawk) FB page about 5:30 pm yesterday by his ex-wife: ********************* My ex-husband Ray Poulsen lost his battle with cancer about an hour ago. He fought to the end as he always said he would. Our daughter Sabrina is understandably devastated. He always said he wanted no tears at…
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MAGS!
Are you already with the bears? Just want to say hallo to you! Big hug!
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Just got pathology results-used Sloan Kettering prognosis calculator-need help
PT3, PN1a. Low grade well differentiated to moderately differentiated. Perineural invasion. 1 of 8 lymph nodes. 2.6 cm. Lymph vascular invastion indeterminate. So the surgeon said this is IIIA. I see the oncologist in a few weeks. After doing some reading this looks to me like it is IIIB? Anyway I plugged all the info into…
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New Primary Tumor in colon
Oh the joys of colorectal cancer, they just keep a coming. first off, had my liver surgery 8 weeks ago, and before I went back to Oncologist I emailed him and asked for a colonoscopy which I had last Friday. When I awakened the Dr. said that she could only go up a very little ways as a tumor blocked her from going further…
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Constipation on folfiri?
Seems like so far I am having more gas, bloating, and constipation with cramping than diarrhea after my first dose of folfiri. Anybody else have a similar response? Diarrhea seems to be the most common and problematic side effect of irinotecan but I do see constipation listed as a possible side effect.
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How Long do we have?
Good morning to all, I'm sorry so many of you have to deal with this desease. I've been here once earlier this year. My wife has Stage IV colorectal cancer. It was diagnosed as Stage IIa in September 2009. We had two years to think the monster was behind us. She went through the ileostomy and all the related surgeries. On…
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Bad news...
What a difference 4 months can make in the life of a cancer survivor. Last April I wasn't feeling good so I went and visisted my GP, she seemed to do every test known to man to figure out what was ailing me. At the time she determined that I had influenza b and that I'd be okay in a few weeks. A few weeks later, I was…
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How Doctors Die
I saw this on another forum and it comforted me! We need to be informed and inform our families on what we want and don't want. http://thehealthcareblog.com/blog/2012/08/06/how-doctors-die/ It’s not a frequent topic of discussion, but doctors die, too. And they don’t die like the rest of us. What’s unusual about them is…
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PET scan results
Well, the news was as expected, which is that pretty much every tumor they saw on the CT scan lit up on the PET scan. The SUV values were from 3.6 to around 10.5 which the oncologist said was moderate for uptake. He said he has seen values up to 80 or more so my tumors aren't hyperactive. Unfortunately, this is more…
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Stopping treatments early
I have had 8 treatments and see my oncologist in the a.m.. I am going to ask if I can stop the rest of the treatments. My feet are numb and my fingers tingle all the time. My intestines hurt in different places at different times and my rectum throbs most of the time. Had a sigmoidoscopy last week and it shows, fissures…
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Next steps?
Having an anxious day. Husband stopped chemo the end of March - had surgery to remove rectal tumor the end of April. Also had a temp ileostomy at that time. He is stage 4 due to para-aortic lymph nodes which were removed/biopsied back in the fall right after diagnosis. Surgeon said ileostomy would be reversed in 6 to 8…
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IMPORTANT QUESTION ON FOLFOX!
Hi Everyone, I just had a visit with my oncologist and everything is looking good. He presented a plan to me that is different than what I was told at the beginning and what I heard from other patients here which was that you get all your Folfox treatment after surgery. He suggests that since I tolerated Xeloda a radiation…
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PET Scan
Hello Im very happy to say that my husbands PET scan came back negative!!! He is getting 3 more chemo treatments then another PET scan to see if he even needs surgery. We are truly blessed!!
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Hi Everyone...been away...went on small vacation...been busy
I have been AWOL from the board for a few weeks. I lost my password, then i couldnt get my posts to actually post. I did get to take the kids on a mini vacation to the beach. We went for 4 days and 3 nights with my MIL. It was a nice time...she had to rent a little scooter to get around...but other than that a nice time.…
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What a rollercoaster ride
Last week I posted my scan was clean. I told my surgeon that I did a scan and he read the scan that day with his radiologist and emailed me the good news. Well today I went to see my oncologist and he has the actual report which states there is a small nodule on or near my liver which they can not rule out cancer at this…
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Off topic....My beau is bonding well with his new heart.....
Other than trying to do too much, he is doing great!!!! Hugs to all! Kathi
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Well Folks, It's Time Again
For me to feel a year older. Please join me as I wish my firstborn, Johnnybegood, a great big Happy Birthday tomorrow. Pretty soon, she'll catch up to me & I'll have to raise my age again. DRAT!! Luv, Wolfen
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Numbnesss in feet ONLY when he burps...?
As crazy as that sounds, that's what Jason has been experiencing. He says that when he burps the bottoms of his feet feel numb for just a second, then its gone.....? Anyone else had this happen?
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Fucoidan anybody?
Does anyone have any experience with Fucoidan? It's a dietary supplement from okinawan brown seaweed that supposedly has very strong anti cancer properties. It can be very expensive but seems to have a lot of support on the Internet. Anyone have direct experience with it? Or any thoughts regarding it? Thanks
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Question on cutting out sugar / red meat?
Hi everyone, I was wondering: when a few/quite a few of you cut out carbs, processed food, sugar - what do you do about the meat? Do you cut out red meat altogether? How much protein do you allow? As much as you want or do you follow the "Atkins" types where a lot of calories come from fat? What about vitamins and…
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Bloodroot?....
I forgot to add this to my other post.....has anyone had any experience or know of anyone who has used bloodroot for liver mets? (or cancer in general) A friend recommended it to me. Thanks in advance! Kris
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Update on Jason....
Hey all, sorry I haven't been on here in a while, just been busy & having some shoulder issues. Anyway, Jason got his 8th chemo treatment this past Wednesday, the 2nd one that included the Irinotecan (instead of Oxaliplatin) & he has been tolerating it well so far. He is still on the 5-FU, Leucovorin, Avastin, & all the…
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some good news
Hello old timers. It is now 7 years since dx with stage 4 colon cancer (mets to lungs and liver) and I am still here. I know I haven't posted much the last year but I do read many posts. I just had CT scan and shows NED. This is now 1.5 years since my last lung resection as clear. ( 4 lung resections, liver, resection,…
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Benedryl
Well, tx #15 today. I asked the doctor if I had to have benedryl. He said, "No, you don't." How much better I feel not having had that. I also restarted the Avastin...yahoo. I had a good scan in April; he wants to wait to scan me after I've had Avastin for a while. He could not feel my liver (yahoooooooooooooo :) ). Judy
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did you see any tumours in the mri or the cat ?
Worlds leading tace pioneer Thomas t vogel "NO" I was his first patient 9am and his last 7pm, after tace to the liver, i did IPT b17 dca xeloda insulin liver tonic, fish oil. You will never read about TACE done with IPT, its takes combining the best of two different clinic, and persauding the doctors after the event how…
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HEY KENNY!!!
Kenny, it has been a while. I hope you and your family doing well and you made some progress in tests and treatment. Let us know what's up. We are all rooting, paying for you. Laz
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Are these symptoms normal (I'm 6 mos. post-resection + FOLFOX)
Okay so here's my issue and I'm confused on whether or not this is normal for my situation or something that should be looked into. My oncologist keeps saying it's pretty normal, but I just don't feel right, or really feel like she's listening, and contemplating a second opinion. I'm a 26 year old female, healthy weight. I…