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Tara: Temozolomide
I have researched TMZ and see that is was approved for glioblastoma brain tumors ... did the biposy you had indicate that your brain lesions were secondary colorectal mets or other primary tumors? As you know, my husband also has had a recent discovery of brain mets and I am interested in you being offerred TMZ. I am glad…
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"Sparks" - In memory of Roger (Crow71)
While reading Annalexandria's recent "luck" post I was reminded of our dear friend Roger when she spoke of bright sparks. For those of you who did not have the opportunity to know Roger, he was truly a bright spark on this board. He wrote a poem for all of us here and I'd like to share it again with you all. Sending…
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CAM: Complementary and Alternative Medicine ... please continue to post
I hope that folks will continue to post their ideas and research regarding complementary and alternative medicine and treatments. Because these products and practices are not part of standard medical care most of us hear very little about them unless our friends here at CSN call them to our attention. I don't see the…
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How to say thank you to Mom?
On the topic of caregivers, my Mom is Gibraltar. This is going to be a tough week for our family - my younger brother goes in for his first colonoscopy, I'm seeing a surgeon, and so is my father who will be having open heart surgery. And who is supporting all of us, emotionally and driving us to appointments? Mom! (We all…
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Pets!
When things get stressful on the internet, post pictures of pets.
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colon health after large polyp was found
So, since my procedure on Tuesday I've been researching how to promote proper colon health to reduce the risk of polyp and tumor development. A little back ground. I have been 15 years cancer free since a Stage 3 diagnosis, Resection and Chemo. Last week I went in for a flex-sig ( 5 years delayed, supposed to be annual). A…
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Rang The Bell
My Friends, Well, hubby got to "ring the bell" yesterday to celebrate the end of the 10 lung rads. He had a baffling problem on Thurs., but fortunately was able to "git er' done". We were at an Internest appt. preceding Thurs. rads when blood started running down his stomach from the G-tube location. Got a nurse who…
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Help me understand pet scan of my father
My father had been diagnosed of colorectal cancer about 8 months ago in august. At that time pet scan was done. After this, he underwent fistula colestomy and 3 cycles of chemo. Recently my father once again went under pet scan. The recent pet findings show that -- Compared to previous pet/ct dated 20th Aug 2012, liver…
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TARA , you fine my dear ?
Hope so , praying for that!
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Hi mates it is FRIDAY any interesting plan for the weekend ?
Cold and rainy here spring time seems has not arrived yet! My wife is in Istanbul in holidays this weekend so........don't know what to do sniff ,sniff, sniff. What about you mates? . Whatever it is your plan have fun, love, peace and health!
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Please read MWNN "Ok" post. It is heartfelt and
explains why he is here on the colorectal board. He also shares information about his son who has brain cancer. I posted this because it may not be clear what the contents of the post are because it is simply titled "Ok" Since there has been recent controversy involving Tony I was afraid folks might think it was simply a…
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Hope magazine for colorectal cancefr - general guidelines - inspirationsl approach
Now that I have been battling my diagnosis for my advanced stage I continually think about all my new friends and the resources available to help each person with their care. Its great there are all the pamphlets and brochures out there to take at whatever facility you get treated at. However, wouldn't be great if there…
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Humbling/This is not the place for bullying, either outright or indirectly...
I have read comments on here regarding treatments, both alternative and conventional. I have mentioned my alternative treatment I use along with my chemotherapy. My fiance and I both use it. I have not told anyone to use the alternative. I have also not told anyone that what they are doing, conventional or alternative, is…
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It's decision time
Just got the check from my life insurance company so now I actually have to make a decision on going to Germany for treatment. Hate to be away from my family for 3-4 weeks but if the treatment works it will be worth it. I have a lot to think about this weekend.
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Ok
Im staying, some people and their comments/emails/messages have convinced me to stay, but there is another reason, I really believe I have brought some info. here that will help people with CRC I can think of at least 3 posts that should have got far more attention than they did. Also my mother did die from bowel cancer,…
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NEW HERE - caregiver daughter
Hi. I am new here. My mom was just recently diagnosed with stage 4 colon cancer. She had 14 out of 15 lymph nodes that came out positive. Distant metastasis was on omentum but nothing on liver. I have been sooooooo sad lately. I cry every single day because I fear to lose my mom. She is turning 67 this April and I still…
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Noone has to leave just learn to be thick skinned
It may be none of my business but am going to write this anyway..I am actually from EC forum since '11 but I always come and read everybody's post here specially Pete's ....I though this forum is never boring ...like to read everyone's post specially Pete's, manwithnoname, tanstaafl, renw, john23 and brave people who…
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Interesting article on too many colonoscopies debate
http://www.philly.com/philly/health/cancer/20130315_Too_many_colonoscopies__A_new_study_has_doubters.html
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Quick request to the mod
Could you PLEASE remove the whole argument involving myself, Winter Marie, and MWNN in my "Luck" post? It's fine to leave in Tony's initial response, as he's certainly entitled to his opinion, but the rest has kind of ruined what was meant to be a chance to express something a little more positive in the face of all the…
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Winter Marie and MWNN
I took this out of the lovely "bright sparks" posts and wanted to start anew here ... Winter Marie: I think that is so kind of you to offer an apology to MWNN for possible confusion resulting from lack of sleep, steroids, and losing your kitty ... these are all rough things. You are a great example of how the board can go…
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Debates and arguments go here???
Would love it if we can have one place for all the arguments to go, so those of us that don't want to read them don't have to stumble across the childishness through several different threads. It's completely ridiculous. I liked Ann's post about luck - I thought especially fitting with St. Patrick's day coming up and all,…
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Cynthia. Cynthia. Cynthia.
I see that we have three differenct Cynthia's posting regularly on the message board. Just thought that was very interesting, and maybe I should change my name. I know people are reluctant (including me) to post their real names, but with some posters here, I'm not sure if they are male or female, so a name would be…
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vectibix and xeloda
Any one on this combination.. if so how is it working for you? any side effects? any benefits? 5FU makes me not sleep well so I guess I will need to be taking naps again.. just when life was coming back together.. I have to start this chemo.. crap again.. I have some minimal growth we are hoping this will whip back into…
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Liver levels steadily rising, CEA steadily going down, oh and Potassium levels going up, up
What the heck, no pain in liver, but it has been rising in levels on everything past three checks (month and a half) but CEA, which is a great indicator is going down Everytime, at 8.2 at moment. Liver area doesn't hurt, I haven't even had a glass of wine in 6 months, been drinking more water etc., WTH. Now I get to sit…
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Trying to enjoy the "luck" while we have it.
Cleaning up a random corner of my house this morning (that only happens once in a blue moon, I tell you), I ran across an old notebook. Inside I found notes I had made back in 2007 concerning my oldest daughter's sleep habits. You might think I'm talking about a baby here, but no. She was 15 at the time, and had basically…
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Fishing hole Lake Lopez, CA
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Personal Experience
I am new here. I was diagnosed with colorectal July 27, 2012. I have had chemo, radiation and surgery, and have started maintenance chemo. They want me to have 12 sessions. I live alone and at times feel totally lost even though my neighbors have been wonderful. I live through diarrhea, constipation, and anything else you…
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Posted a new avatar so I wouldn't seem so invisible ...
for a long time I had no picture, then one of our dog, and then one of my painting of the horses, and then ... well, since I have been a bit more vocal of late :) I thought it only fair to reveal a bit more of myself. I am a very shy person, but I am encouraged by all the wonderful pictures folks have been sharing. Hoping…
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3rd one down
Just had my 3rd chemo session yesterday and so far so good. Even came to work today wearing my lovely fanny pack. The days of chemo aren't that bad. It's the disconnect day that the symptoms start but it's usually fatigue. The last two sessions, after the disconnect, I was down for the whole weekend just sleeping. If…
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Need a laugh? Watch this (39seconds)
http://vimeo.com/61275290 (hopefully even fellow-ostamates will enjoy) Sent to meby a former colleague from work;only man i know who had breast cancer!