The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for February 2013

I am torn between flaunting and sharing my success
dear friends, I have started round two of the second dendritic cell vaccine with high hopes. this afternoon I had another chemo embolisation split 50 50 lungs and liver with irenotecan and mytomycin and avastin ( off label use , as direct inject not tested offically) the good news is dr vogel said the mri and ct are…
What Chemo Causes Mouth Sores?
Hi there... I had mouth sores when I was on Avastin which I know was a side effect but I have switch chemo to Irritecan and Eurbitux and now I have a bad case of mouth sores. Is this left over from the Avastin or are mouth sores common with other chemos?
Creating a list to leave at the Wailing Wall in Jerusalem...
I have already included "CSN warriors".....if there is someone special you want me to add specifically to the list, let me know... If you would be more comfortable, you can PM me here... A friend of mine, when I had just been dx'ed left my name there...I always remember the thought.... We leave on February 22 for the…
Re-start chemo based on rising CEA?
I am having a hard time undertanding something. My husband has been receiving treatment for Stage 4 rectal cancer since June 2011. He had liver resection after FOLFOX and then radiation. Before the rectal surgery could be done new liver lesions appeared. He then started FOLFIRI which continued until November of last year…
To: Luvinlife2
What is the class action lawsuit about regarding Celebrex? Liver damage? Just curious. I was taking it with my liver enzymes high from chemo in the hai pump. I stopped it on my own. Doctor never suggested that. Now my liver enzymes are through the roof. I'm scared there is permanent damage.
Eye spasms
I am just past my second session with the FOLFOX & 5FU. Yesterday morning my left lower eye lid started to twitch. I went for a little morning walk, temps around 27 F. When I got home, both lower eye lids were twitching like crazy. It lasted about half an hour. Later in the afternoon I went for another walk. Temps around…
celebrex celecoxib
am going to ask my dad's oncologist abt including celebrex / celecoxib along with the xelox chemo he is undergoing... there are numerous trials going on to check the effectiveness of this and i wanted everyone to have a look and share your experincex with celebrex/celecoxib…
Back from the dr. NOT GOOD NEWS please help me here.....
Jason & I just returned from his dr. appt. this morning & the news was devastating. He scheduled his colon surgery for Friday, said he would remove the right side of his colon & then when he has had time to heal a little he will start him on Chemo. THEN, the nurse came in & said the dr. wanted to speak to me, alone. (while…
Chemo for Life - how many on this site?
I was wondering how many for lifers are on this site and how long they have been on this phase of life.
Up at 3:00 am, husband is nauseous & vomiting-HELP!?
It's me again....for those of you who don't know, I'm new to the site. My husband Jason was just diagnosed with Stage 4 colon cancer (upper right side is where the tumor is) & possible met on his liver. It's after 3:00 & he is very nauseous & has vomited 2 times, not a whole lot either time though. He says he feels so full…
Very low blood pressure with Stage 4 colon cancer
Hey everyone, I'm back with another question. Of the ones of you who have or had Stage 4 Colon Cancer, did you also suffer from low blood pressure & light headedness? My husband is anemic & is on iron pills, so I was just wondering if that is a common occurance with this type of cancer.....Thanks in advance! Kris
Cannot post from my phone anymore
I am at my daughters and she has a laptop. I wanted to Thank everyone for the beautiful Christmas cards. i also wanted to share the good news that I went to see my onc in Jan, he ordered an abdominal CT SCAN....results were No sign of cancer. Liver,abdomen,bottom of lungs the way I understand it.I was so relieved as I know…
Cannot post from my phone anymore
I am at my daughters and she has a laptop. I wanted to Thank everyone for the beautiful Christmas cards. i also wanted to share the good news that I went to see my onc in Jan, he ordered an abdominal CT SCAN....results were No sign of cancer. Liver,abdomen,bottom of lungs the way I understand it.I was so relieved as I know…
Suregry over. Not as expected.
Thank you all for the last year and all of your support. Surgery over, still in hospital. Woke up with a colostomy which was not expected. Will write again soon. Just wanted to say all is okay and talk to you soon. Helen
New to the Board Worried about CT Scan Results possible focal fatty infiltration, but can not rule o
Hi Everyone, my name is Hope. I was diagnosise with Stage IIIA colon cancer in Sept 2012. I started on Folfox in October, but have had allergic reactions to the Oxiliplatin, so have been on a desense program, where it is administered over a 10hour period of time in ICU. My CT scan in October was clear, but my reent…
Extremely tired after first chemo treatment
Good morning everyone. My name is Ralphie. Last Nov I was diagnosed with Stage 3 colon cancer. In December I had colon resection to remove a 2 1/2 cm tumor and just this week I started chemo at Msk. It's a 2 hrs at msk then I bring it home for 48hrs. This was Tuesday thru Thursday. It's now Sunday and I'm still drained. I…
I need to know...
I am having my colonscopy on Tuesday... I've been having symptoms for awhile.. Blood and mucus in stool, feeling like i cant empty completely--blah and blah--all the signs. I'm really afraid I have CRC-- although I'm really hoping for something else--I keep hoping it's crohn's disease- or anything else but what I think it…
Neuropathy Help
I have stage IIIB colon cancer and started chemo 2 months ago, 4 treatments so far.I am an accomplished artist and was making good money until this all started. Since last treatment on Monday the neuropathy gets worse with each treatment and I am afraid my art career is over. I had neuropathy before the chemo but now it is…
Stage IV Good News!
I met with my most wonderful doctor this past week. Latest scan results in. All clear. That now makes 3 years and 11 months in remission since my February 2009 colon resection and liver resection. I told her that I could kiss her! I told her I would consider myself 4 years in remission and she said it was close enough.…
great scans report! would like hipec info
jan 26th i had pet/ct scans. (i was dx dec 2010 with sigmoid cancer-stage 3. i had surg & then 12 tx of folfox6 from jan-july 2011. june 2012 i was dx with metastatic tumors in the liver, 2 abd, right ovary & lots of tumors in the peritoneal). i completed 12 tx of folfiri with avastin jan 2nd 2013. the scans showed no…
Irinotecan & CEA
Second treatment of Irinotecan and husbands CEA down from 11 to 5 good news. Could use some suggestions on how to manage the diarrhea, imodium not helping much. I have been preparing foods for him with starch like bake potato and puddings, this helps a little not much. Dyan
Anniversary
Two years ago today I took my husband to the ER where he was dx as stage lv colorectal (many mets to the liver), after colon, liver resections, rfa and temp ileostomy we are NED at this time. I can barely stand to call upon the memories of the day and I can't believe that after two years of fighting I am still such a wimp.…
My husband just diagnosed with Stage 4 colon cancer....
Hello everyone, my name is Kris. My husband Jason was just diagnosed with Stage 4 colon cancer. I will tell you all what I know & would really appreciate any feedback you might have. He is 42, & has been experiencing digestive issues for about a year & a half now. We don't have insurance since he was laid off from work, so…
First oncologist visit
What should I expect from my first oncologist visit? I have stage 3 colon cancer. The tumor was removed a few weeks ago but three lymph nodes came back positive. Just a little nervous of what is about to happen. Cyn
Lift therapy
Has anyone been a part of gift or lift therapy trials?? http://hstrial-mcrump.homestead.com/index.html http://nextbigfuture.com/2011/05/leukocyte-infusion-therapy-clinical.html?m=1
6 Years out and NED
Hi all. Haven't posted for a few years. I was diagnosed with stage 2a in August 2006. Had a resection and some chemo. stoped chemo less than 1/2 the way through as I got CDIF and was back in the hospital. I've had a colonoscopy each year except the last one. I'm getting one in the next couple of weeks. Just wanted to let…
Just recently diagnosed with colon cancer
My name is Justin I am 24 I am in the Hospital as we speak, I have had a history of drug use for about 6 years. Started as pain in the back pain doc gave me narcotics well that went to being a bad junkie, I am now getting help from the methadone clinic. If not for them giving me blood test 4 diffrent times I would have…
Just Call Me Numb
I don't really know what else to say. We met with MDA doc today. The cancer in the lung is adenocarcinoma, while the cancer in the mouth & lymph nodes is squamous cell. No chemo can be started until urology problems are addressed. I managed to get a urologist appt. for next Thurs. morning. Due to his serious heart issues,…
Hi mates it is FRIDAY any interesting thing to do in the weekend?
First of all,feel sorry for not anwer to anybody last weekend but had to go urently to Madrid by Saturday night for work , well this week I have planed to go to see the James bond movie on Friday and Saturday dinner with a good girlfriend jut divorced from one of our best friends! Sunday family lunch as usual,a nap and…
Lung operation?
Anyone suffered nerve damage from lung nodule removals. Was told 50% chance and is quite painful. It will be last resort. Hoping tumors shrink and die off. Don't really want them disappearing docs surgeon said leaves cavity and hue infection risk?

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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