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ALL CLEAR
Let the hope continue. My ct. scan was clear. How blessed I feel and how grateful I am. I wish I could pay it forward. Hang on everyone who is a stage four. I am now 20 months clear. If you are reading this for the second time, I could not find my first post. : ( Hugs, Judy
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From: Big Billy .....To: Cynthia and Rick…and the rest of the CSN Crew…....*** UPDATED *** (Enjoy t
Surprise! You didn’t think that Craig would shelf Big Billy forever, did you? :) How could he let the legend disappear like that? Isn’t Big Billy a part of this cancer community, too? Good, that’s what I thought too:) Well, I'm back in black, Cyn:) Note: For all of the new folks that are asking what's going on? Here is the…
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Two Glasses of Wine
So, I celebrated another birthday yesterday. Three years out from diagnosis. While I am thankfull for many things in my life I am especially thankfull just for being vertical. Which leads me to this piece I read online today. I could not find who the author was but I'm sure they've been thanked countless times. The piece…
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JMB2096
JMB2096 Sounds like my sister and your wife has similar cancer. She is 44 and stage IV for mets to the liver and bilateral lungs as well. Diagnosed Nov. 2010..They started her on a new FDA approved drug 3 weeks age. WOuld love to here more about your wife..My brother and law is so upset over this as well. They have a 15…
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Question from breast cancer board -- any thoughts about pink ribbons & October?
Hello, all - I'm a 3-year breast cancer survivor, and an active member of the CSN breast cancer board. I hope you don't mind my sticking my head in here with a question for any of you who might like to share your thoughts? On October 28th, I'm leading a worship service at my church to honor all cancer survivors, and we’re…
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Stage 4 survivors
I know there have been many posts about survivors, but it's discouraging to look through old posts and then realize many have passed on. Was wondering if the stage 4 folks would mind posting? Things I'd love to know are: 1. How long since initial diagnosis? 2. What made you stage 4? My husband has only distant lymph node…
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Hi mates it is FRIDAY here! Any interesting plan for the weekend?
Here, fever+chest pain + nose leaking +throat pain+headache+ cough + bone pain = guess!. So..Bed, bed,hot soups, some hot milk with honey and a book!. What about you mates?
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Scan Tomorrow Morning
Last year my doctor told me this year it wasn't necessary for a scan and it would be up to me, so last month just to make sure, confirmed it with her through a phone call and said if you want me to have one I'll do it, well she said again it wasn't necessary. Then yesterday when she walked into the room she said "no scan."…
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were do i go for finacial help?
I have been waiting for my oral chemo medication (Xeloda)and called the place today and they said that are just waiting for my part of the copay before i can receive the medication but the problem is that they want almost $900 from me which i do not have. I have been trying to find some websites or finacial aid that can…
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Benign!
Benign says it all!
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The latest on Abrub/Alice....
I saw the breast surgeon today. Her comments: "Wow, I don't remember the last time I saw a hematoma that large. It looks like I stomped on your chest with a boot in the OR." I guess now she believes that I wasn't being overly dramatic yesterday when I called in a panic about the size. (My right breast looks like a gigantic…
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Protein in the urine
My husband had his first treatment of Folfiri with Avastin yesterday. He's been off chemo for almost 8 mos. His last Avastin (before yesterday) was Dec. 29, 2011. When they tested his urine yesterday there was a small amount of protein present. (The nurse didn't volunteer this info, I asked). She made it seem like it was…
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Many thanks for your invaluable comments, words of love and wisdom!
Below is the comment from my friend Carolina...rec'd it last night after she read all your beautiful uplifting words. Can't thank you all enough. Her surgery is 10/24...I'll keep you posted of course. Love, blessings and peace. Pat Wow....this stuff you're sending me tonight is incredibly heartening.....molto…
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Discharge planning
Thought I would update people on my progress. Am now a month postop from the hemipelvectomy and pelvic clearance for the recurrence of rectal cancer. Am now at the point where I am planing for discharge on Monday. Attended my discharge planning meeting today and is all coming together well. Am getting pretty mobile on…
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stage 4 colorectal cancer (9mm polyp on liver and 15mm polyp on Spleen)
My father had the symptoms of blood in stools and a feeling that he has not completely emptied his bowels. He consulted a surgeon who said that it could be internal piles which can be healed with tablets. Since the above symptoms continued to be there we consulted some other doctor who did colonoscopy, Biopsy and CT scan…
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Pet results
No big surprise PET is worse. Increased SUV in all nodes plus new nodes. No mets yet to organs or bones. Chemo cancled until I see Dr. next week. I sure hope he has a miracle up his sleeve. Detailed post at the colon club. Lori
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need encouraging words to print for friend...
Mags - thrilled to read your good news! Alice - following your most recent journey Craig,Pete, Doc, Pepe....everyone on this site is a comfort to us 'lurkers', of which I am one. One of my best friends going into Sloan NY for liver resec (colon cancer - resec 12/2011, liver mets - 6/2012)....I'd love to print her out some…
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Surgery was yesterday **Updated**
All is done. I have a bruise the like of which I've never seen before (10 X 6 inches, deep purple and rock hard under my breast.) Problems during the needle-wire localization procedure, which were not helped by the mammo tech reeking of garlic, and needing to be entwined around me to get proper placement (for a difficultly…
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Craig, Phil etc where are you?
Yes I'm lurking, haven't seen a post from either of you unless I have missed it?
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result of scans
wow 9 am and I just woke up. Stress does rob you of sleep.....yesterday I was awake at 2am...haha. so last night my general doctor phoned to say my ct scan seemed clear....no word on CEA and i still have to do blood and go the the onc at the end of the month. Feeling so blessed, so grateful, and kind of puzzled I think as…
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Chinese Medicine
Interesting article on Chinese Cancer Medicine: http://www.medscape.com/viewarticle/772680?src=nl_topic
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How sick does folfox (oxyplatin) make you
Finished radiation and 6 weeks of 5fu..starting folfox next week..just wondering what other folks went through on it? what side effects bothered you the most? kind of nervous..the 5fu wasn't so bad..radiation caused some really bad cramping...anyway thanks for any replies..it helps to hear from other people who have gone…
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Cant Reverse Ostomy..? So Sad
I had emergency surgery..saved my life..(yay)ostomy created which is pretty normal for colon cancer..i think?. i still have 6 months of chemo ahead..done with radiation and 5fu now..talked to surgeon..ahhh im crying while im writing this..he said that the tumor was really low down and i have a lot of internal scarring from…
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Need to distance myself
Hi, I met with a counsellor today. She suggests I try to distance myself somewhat from cancer related sites. I will still be around but not as often if I can succeed at this task. Thank you all for your info and responses to my posts. I hope the time I will be allowing myself will be enough for both you and me.. My reason…
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can't wait...
well finally got ahold of my mom... seems the place she is staying in doesn't have the net... nor do i have the house phone there. she doesn't answer her cell via txt or call... idk... but she went home for the weekend and messaged me. ah well she is doing fine, first week was good.. so on to the second week of chemo n…
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Hazardous Material
Sooo, tonight I got the stuff for my home disconnect, port flush stuff. BUT, included was this big bag for a hazardous material handling spill, some special pads, the complete outfit to wear, hazardous material spill sign, etc....mask, goggels, gloves!!! Anyone else get this kit!!!
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So Worried: Getting Ready to Start Folfiri plus Avastin
I'm really worried about the side effects. I did Folfox 5 years ago, and managed to work 3 days a week. I'm scared that the Folfiri plus avastin will take me down harder this time around since the treatment is different. Working is the only thing that made me feel normal. My First treatment is this Friday 10/19. I would…
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Stoma Hernia
Hi all: I've also posted this on the Colon Club website but seems there aren't many people out there who have had this happen. So I'll try you! I have had a colostomy for 5 months now. It appears I now have a stoma hernia. It may have happened when I used a binder (to keep the operation incision together) - had one…
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Port Comes Out Friday
Just want to share some good news. My port comes out Friday after 12 rounds of chemo. Needless to say I am thrilled to go to hospital (this time) and get this done. I am taking baby steps one at a time. Hope my news cheers up someone currently in chemo that the treatments do end and yes the port can come out. I called it…
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Just read a story
Just read a story about a woman who was diagnosed with stage 3 breast cancer. She decided to shave her head before chemo...to take control. Her loving husband had his head shaved as a show of support. As it turned out, the husband had a patch of agressive skin cancer on his now bald head. Doctors said that if it had not…