-
see my oncologist tomorrow
In 4.5 years I had never felt better. Felt like I surely was one of the lucky ones with the stage ofCC 3B, successful take down of colostomy, and truly have never looked back. Guys I have had normal bowel movements for over 4 years. Other than the damage from chemo, neuropathy in my hands and feet and chemo head- I have…
-
Doc Hawk...
Thinking of you and hope you're feeling better. Peace, Laurie
-
Cathleen Mary
Hi Cathleen Mary, I tried to send you a PM but your account does not accept PMs. You just need to click one of the buttons on in your profile section. :-) Cyn
-
Hepatic Arterial Infusion
I am undecided whether to use HAI at Sloan Kettering even though I am a perfect candidate according to my doctor. Can someone help me make that choice. Has anyone been treated with the pump and systemis at the same time? My other option is standard systemic FOLFOX with hopes of the clinical trial called EPOCH which uses…
-
MYH mutations
Has anyone here been diagnosed with MYH mutations? I have had 7 surgeries trying to hold off precancerous and cancer tumors, as well as Paget's skin cancer. Hoping to find someone else with this mutation on the colon genes. Not that I would wish it on anyone... just feeling isolated and like I am teaching the docs and…
-
re. a little advice
well turns out i went in for blood work today and my red blood cell count was way low, the shot they prescibed was scary crazy with the side affects, like accelerated tumor growth and heart failure....ahhhhh anyway seems that was a big part in my lack of energy, thank you guys for the input you are the best!!! hope it…
-
B6
Anyone taking this? If so at what dosage and who suggested it and why. My husband's onc told him lots of people are taking it but he forgot to get dosage. Thanks
-
Flank Pain turned out to be kidney Obstruction
Well crap! My flank pain only got worse and had to go to ER. Turns out my right kidney stopped working because of an obstruction which they can not identify as a stone. I now have a temporary nephrostomy tube and will have a stent placed monday. They will also explore to see what caused the obstruction. I am not looking…
-
Chlorella, 4Life Transfer Factor, & Cell Food
Hi everyone... In my battle to get my platlets up so I can get chemo, I went to the vitamin store and they recommended the following. I have researched on line but I figured I go to the experts (you all) to see if you have any experience with these: Chlorella 4Life Transfer Factor Plus Cell Food Thank you for the feedback.…
-
Another promising plant for natures pharmacy boswellic acid
Americas best functional doctor sent me this, glad i am a friendly aussie has has some clever friends. just an fyi................ its just my opinion, but my functional doctor here mentioned boswellic acid also a few months ago. hugs, Pete Boswellic acid induces epigenetic alterations by modulating DNA methylation in…
-
Mom went in for CT - liver...embolization?
hi everyone, I posted a few days ago too about mets in my mom's smaller hepatic ducts - we got a CT last night and awaiting results. I hope we can get some adequate and helpful news :) And if it's more positive, that would be awesome!!!!!! Anyways - I talked with my mom's doctor - and liver embolization is a potential. He…
-
steved, Day 2 Wed. Sept. 19, 7am.UPDATE Wed 11am End of Day 2...8pm update
"Well, i wasnt called overnight so that must be good.i rang twice in my sleepless state and steve was stable.had to have yet more platelets but no more blood and his clotting has stabilised so thats a relief.he is " eating up" their sedation drugs according to the itu reg and they are having to give him large amounts to…
-
a little advice
hey guys hope all is well with everyone, i am on my 3rd round of this new chemo, and even well after im still sooooo tired, is there anything out there to help with the fatique?? ive read about ginsing, your help is greatly appriciated!!!
-
Feeling down
Hi everyone. My mom has colon cancer and was diagnosed last month. I'm her 18 year old son (I don't know if anyone remembers because I haven't posted recently). Well after waiting about a month, my mom is finally getting treatment with chemotherapy at Memorial Sloan Kettering hospital in NYC. She is apparently on Folfox…
-
LivinginNH Thinking of you and Rick
Hello Cynthia, just wanted to let you know we're thinking about you and Rick. Hugs, Winter Marie
-
Oxaliplatin
Will i loose my hair taking oxaiplatin? Or will it just thin? intervenous 2 times a month? every other week. Please reply asap. cheekse917@comcast.net
-
Eloxatin and Oxaliplatin & 5fu-side effects
Hello, I'm on my last treatment of chemo. I already had chemo/radiation in may and then went in for a permanent colotomy, but thank the lord, he saw all the margins and i have a reversable illiostomy. I have now started chemo for 8 treatments. 2 times a month, every other week i go in and get the drip for 2 hours of the…
-
Any ideas for treatment
After having colon cancer, I have tumors in my liver that have increased in size and number with treatments of folfiri and erbitux. My oncologist is sending me to a university med center to look for other possible treatments. I called a clinic that practices naturopathic oncology but was told immedicately they do not take…
-
Chemo boosts the immune system
Yes you read it right, 100mg cyclophosphamide daily in 2 X 50mg doses, one week on one week off. Depletes T-reg, stimulates NK cells. http://www.ncbi.nlm.nih.gov/pubmed/16960692 MTD of cyclophosphamide = 3500mg daily (in children)
-
Irenotecan without 5FU
HI, anyone doing Irenotecan without the 5FU? Today we removed the 5FU from my treatments. I am now just on Irenotecan and Vectibix,. I am being treated for metastisis to the lungs.. many very tiny nodules. DR referrs to them as very minimal We removed the 5FU to help my hands sores and mouthsores heal. will revisit adding…
-
No more chemo
I will give up chemo, because after 2 and half years , the side effects are devasting. Mouth sores are very bad and it got to the point that water will burn. Losing lots of weight and no appetite. Doctor told me she did not see me living longer than 6 months. Did have a few days of quality. Most of the time in the bathroom…
-
Dealing with constipation from chemo?
My husband has his first treatment Friday. They did not do avastin because of his biopsy surgery the week before. So he had the fluorouracil, oxaliplatin and leucovorin... with the 48 hour take home goody bag....plus 4 days of decradron. He didn't get much sleep, which we found out is pretty standard with the steroid. In…
-
th_in_Canada passes
Tricia has had no active treatments since September 2011, (only symptom management) Resident in the Norwood Hospice; where we celebrated her birthday, our 37th wedding anniversary and my birthday during our 7 week stay; in the early evening September 11, 2012 and in the company of friends family and the Holy Spirit, our…
-
might be starting chemo, will know tomorrow, UPDATED no chemo hipec instead
I have been a bit down today, not usual for me. It could be the doom and gloom from my chinese oncologist/herbalist. He does alot of colorectal and shared some bad stories. He did say he will tailor a herbal mix to whatever chemo i go onto, if i do. Had the most detailed consult, a few hours on and off with my top alt…
-
Great PET results!!
I had a PET scan yesterday and got the results today -- they are great!! I have multiple bone mets. ALL the bone mets have shrunk, several have "disappeared" (no longer metastatic), and no new nasties. Also had an MRI brain and everything looking good - no edema, further shrinkage of the spots. I am thrilled! Even my…
-
Has anyone ever had experience with smaller ducts to the liver blocked with metastases?
Hi all I posted last night about my mom's liver enzymes flying up over the last 10 days. It seems that her Bilirubin and Alk Phosphatase are those of highest concern - they are very high (over 1300 for Alk Phos). Recent news tonight from an ultrasound is that she has metastases that are small, but causing problems in the…
-
iliostomy reversal surgery
Just wondering if anyone has had this surgery and willing to share some information.
-
Rick's surgery update
Well, things didn't go as well as we had hoped. He's in ICU, and they'll try to wake him in the morning. The tumors were everywhere, so they removed all but two meters of bowel. They don't believe that he'll recover from this one. He may never leave the hospital. :'-(. What will I ever do without my wonderful man.... :'-(
-
Chemo
Anyone have stopped chemo. Thinking about doing that. Quality of life don't have any of that. Too many side effects and no appetite.
-
Monday Sept. 17 first post on steved / update Tues Sept 18, 6am...UPDATE 3.30 PM , Update 6pm
steve's wife just posted to say: "Steve in hosp everything kicks off at 730 tomorrow.he is amazingly calm,in good spirits and bored already.kids came in with me today and saw him and we had a tour of his reserved itu room for tomorrow." mags Tuesday 6.30 am here....Steve's wife wrote: "hospital just called, lymph nodes…