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Colonoscopy results
Well I was very nervous, all I could think of was the last time I had a colonoscopy in 09 I got the news that they had found a tumor. Even the consultant knew I was nervous, he asked if the prep had worked and all I could hear was polyp lol. Procedure was painful even though I had sedation. Apparently nurses said I was so…
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CEA time again *******UP 5 ******
Tomorrow at 0800, but i should know the results by Friday 0800. Less thinking time...
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Social Security payments
Hi! It's been a while for me to post anything I hope and pray for everybodies health and Peacefulness throughout these struggles. I'm currently holding on in remission I still have Side affects but tolerable. I'm so sorry to hear We lost Lisa she was a great inspiration I'm very Happy she is at rest in heaven with our…
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first PET scan for me. What to expect ?
Hi y'all ! I got the appointment set up -finally- and will go for my first PET scan next week to get some clear understanding of where I stand. This uncertainty has driven me bonkers and I am looking forward to at least knowing what I am up against after 7 months of this rollercoaster. However, as this is the first one, I…
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Check out this NEW site by the College of American Pathologists at :mybiopsy.org
Interesting.......site set up to help those with advanced crc,if you haven't checked it out,with updated,current info
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Bad News ? CEA Flare?
Stage IV with 12 threatments planned. folfox w/avastin after 6th chemo CEA is up from just over 300 to just over 500. had leveled at about 300 after 2nd treatment and stayed there until now. pre chemo was 1800. has anyone had a good outcome yet seen their CEA values go up like this during treatment? just got this news and…
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My niece
I wrote here in October of 2010 when my 28 year old niece with a one year old baby was diagnosed with colon cancer that had metastasized to her perinea. She has been through two courses of the type of chemo that causes loss of sensation in the feet and hands, but you don't loose hair. She went in for another CT scan…
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A doctor's rap on importance of colonoscopy:
healthcarecommunication.com/Main/Articles/Watch_this_colon-cancer_rap_video_8479.aspx
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Some heavy-duty articles
being that this is CRC awareness month alot of interesting stuff out there: cancernetwork.com/colorectal-cancer/content/article/10165/2044889 "Metastatic CRC:A Curable Disease" ecancer.org/news/2570 "A mutation in EGFR that confers cetuximab resistance in CRC" medicalnewstoday.com/releases/242796.php 5th item, on RAS -and…
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I get so depressed.....
Hello Everyone, I've been lurking for about a week now and I've learned SO MUCH from you all, Thank You! This is kind of long but if you'll help with this problem I promise not to have long posts in the future, but I felt you needed to know a little about me first. I'm married to Jim, who is absolutely WONDERFUL dealing…
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“The Trials and Struggles of This Journey That We Call LIFE” (NEW UPDATE to the UPDATE)
I have much I want to say – much I don’t want to say. Where do I begin? My thoughts are racing around inside my head like the Indy 500. I wrote this post and a couple of others in my head on the way in this morning and now I can’t put my hands back on ‘em…they’ve sped away – out of sight – out of mind. Some good stuff…
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post surgery xeloda?
my husband (37) just started his post surgery chemo. he had resection & temp. illeostomy. the results after surgery were good (T3N0M0) and an almost complete response to treatmnet with 2-3 found dead cancer cells and nothing in lymph nodes. our onc decided that he will give him around 5 months of chemo. initially before…
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I'm back!!!
Hello all. I have not posted lately, but read almost daily. For those of you who do not know me or remember me, I was diagnosed with Stage 4 CC with mets to liver in July of 2009 at the age of 38 with an immediate colon resection that month. I then did 4 months of Folfox with Avastin. I was sent to Miami and was told I…
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Colonoscopy tomorrow
Hugs family no news on my scan results yet, hopefully today or tomorrow might hear something as my main cancer nurse has come back from holiday. Tomorrow have a colonoscopy, last one I had was when they found the tumor in 09. I know everyone is going through so much, feel like a fraud for asking but appreciate any…
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I feel like Job
Just found a lump in my breast. Very suspicious and my oncologist agrees. I'm signed up for a mess of tests on Thursday (mammogram, MRI, biopsy). On the one hand, I feel strangely calm -- I'm not someone with no history of cancer for whom this isthe first news. Also, I'm already in treatment -- this will just be another…
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what was my lucky number this test, when i played cea roulette ?
and after 6 weeks of no conventional treatment and intense alternative therapy the number is 28 now thats an increase of 11 over 6 weeks. i am seeing the onc tonight. my full bloods were exceptional, the best ever, so thats good news. and my blood pressure is back to 120/69/59 which is good and back to normal after being…
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BUN question
Hi everyone..... Today Carls BUN spiked to 44 he isn't getting all the iv fluids he was before and they aren't giving him anything for swelling like before when this happened and it is higher than ever before. I noticed today they ran 3 extra tests than normal concerning the area. His urine is testing positive for…
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Update on my mom.....Granny Smith
Sorry I haven't posted anything in a while. Things are not good for my mother now. She was admitted to the hospital last Saturday for throwing up uncontrollably and they had to do emergency surgery. Her tumor on her colon was blocking her intestines. They had to do surgery to give her a colonospocy. There were other things…
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Questions for Stage IV with KRAS Mutation
for those of you who are Stage IV and Kras-mut, how has your Onc delt with not being able to use EGFR inhibitors (eg erbitux)? what is (or was) your treatment plan beyond 1st line therapy? thanks peter
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10 additional months of survival when continuing with Avastin at progression, study suggests
This may be highly relevant to some of you who are stage IV and using bevacizumab (Avastin). From July 2011 Issue of Hematology & Oncology Title: Highlights in Metastatic Colorectal Cancer From the American Society of Clinical Oncology Annual Meeting June 3–7, 2011 Chicago, Illinois At the 2011 American Society of Clinical…
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Feet and Friends Fighting Colon Cancer
American Cancer Society’s second annual “Feet and Friends Fighting Colon Cancer” event takes place on Saturday, April 21, 2012, at Hudson Mills Metro Park, in Dexter, MI. There will be a 5k run/walk and an 8k run. All ages and skill levels are welcome to participate and all proceeds from the race will be directed solely to…
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Facing Death - Awkward!
Hi Everyone, Years ago, I had discussions with others about whether or not I would ever want to know if I was going to die. I didn't think I could handle it but now I know I can. It is a difficult and weird feeling but I am also very glad that I have the opportunity to do some things I want to do and get things in order. I…
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Telemarketers
Well, the phone rings, just can tell it's one of those calls...we're intalling windows etc in your area would you like a free quote. This time it was a woman, selling garbage bags for colon cancer research!!! What?? Really??? She was saying "colon cancer" in a tone like no one hears of this....she sounded all prepared for…
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A quote I thought you might like.
Despite the high cost of living, it still remains popular.
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Dennis Update and my funk...
Dennis is two weeks and two days out from liver resection... He is still moving very slow but did go to the barn today to brush his horse and then to the local tavern for lunch. The main nurse from UW Madison called all excited to say that his labs that were drawn last week were excellent (CEA that was 44 is now 18) which…
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Ladies ~ "Prempro" and "Fosamax" ~ likes or dislikes welcome
Hi ladies, I need advice. My gynecologist suggested that I take Prempro (estrogen/progesterone). I am Stage 3 Rectal Cancer with lymph node involvement with NED status since July 2011. My Oncologist seems reluctant about me going on hormone therapy but agreed with gynecologist that 6 months to get me feeling better would…
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Help
I have had slowly rising CEA and liver enzymes for a year now. LFTs 4x normal. CT normal last June. I was sent by onc to liver specialist who wanted to test for autoimmune disease; then, if neg, proceed to MRI of liver and possible biopsy. This week, Autoimmune results came back positive. Liver specialist now wants to…
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What could this be? Warning, could be TMI....
So DH was diagnosed on 1-11-12 with rectal cancer. We are still learning about this disease. Currently we are 25/28 through treatment of chemoradiation. Last treatment is Wednesday 3-14!!! Anyhow, the chemo is Xeloda and radiation daily M-F. My husband has been noticing rather unusual stuff in the toilet after a bowel…
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cisplatin biochemistry 101 and my personal online medical records system goes live and starting heav
so the cisplatin biochemistry is pretty rare info, from a top doctors reference. I saw four specialists yesterday, a very busy day. each of them offered something worthwhile, the top chelation guy in sydney has never had someone like me with platinum poisoning. ain't i lucky, and a few misbehaving cells, they might be…
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cancer family
I have an unbelievable support system with my wife, family, friends, employer, and great doctors but as supportive as they are they will never fully understand the emotions that I have experienced 24/7 for the past 6+ years and I will experience for the rest of my life. And I hope they never do have to experience it. Evan…