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In memory of my mother
Donna Lorene Alexander Smith, July 14, 1944 - March 16, 2012 In memory of my mother You were a precious gift from God above, so much beauty, grace and love. You touched our hearts in so many ways, your smile so bright even on the bad days. You heard God's whisper calling you home, you didn't want to go and leave us alone.…
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pain will not go away...
Hi all, It has been 8 months since my surgery which consisted of the removal of all of my colon because of the tumor(right side) and Lynch syndrome positive. For the last 2 months I have been having pain on the upper right portion of my abdomen. When I tell my onc and surgeon, they tell me not to worry that it is probably…
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problem with xeloda??
My husband has stage 4 colon cancer with distant lymph node mets. A scan in Jan 2012 showed the cancer had spread to more lymph nodes. Doctor started him on weekly 5FU + leucovorin & vectibix every other week. After 6 weekly treatments of the 5FU + leucovorin our local cancer clinic was not able to get the leucovorin. We…
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anyone else want to do this course with me mind body mastery by ian gawler
just check it out if your keen, i signed up a few days ago because some of my mates from the october retreat i went on joined up and they said it got them back into meditation. i thought what the heck , something else to try. just posted it here in case anyone else is interested in meditation rather than medication. of…
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For those with liver mets, no spread elsewhere:
This artilce is rather comprehensive and current as to options for those with mets only in liver; the two shorter items cited at end should also be read: Can Metastatic Colorectal Cancer Be Cured? at: cancernetwork.com/print/article/10165/2044871?printable=true Those squeamish about stats be forewarned as authors are blunt
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Again issues with OXY.
Did you ever got severe bloated stomach while in OXALY? it's quite painful and always coincides with diarrhea episodes and lack of appetite. Your experiences will be wellcome.
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Husband is in OR as we speak
Hello everyone. Remember me! We found out my husband has Colon Caner Aug of 2011. Our lives have been a hot mess every since with other family personal issues. We have lost his dad and I lost my grandma. Just so much stress. He went through 12 rounds of chemo. Thank the lord he got through it and did not have many side…
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fermented soy anyone aka haelen 951 tastes like poison
so a $80 a bottle its very very expensive, but my doctor said he wanted me on it so i buy. this stuff tastes like poison, its the foulest tasting substance i have ever tasted. so it must be good for me. alot of interesting research. i am taking 30 ml a day. http://www.haelanproducts.com/ now ironically my other functional…
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another question re: xeloda
They have raised the amount of xeloda my aunt takes, now instead of 2 tablets a.m. and 2tablets in p.m. she takes 2 a.m. and 3 pm. she's done that for two weeks now and she's now complaining (and she never complains) of the bottom of her feet hurting. They do look red and irritated. She has an oncology appt this Thursday…
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not looking promising
Hi everyone I got my warning call the other day and then 2 days later prep call telling me it was time to come back to Denver. I got here 6 a.m. yesterday morning drove all night to get here, spent all day in meetings between the kidney team, liver team his surgical team and the palliative care dr. His kidneys and liver…
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Emotions
My husband was diagnosed with Colorectal cancer when he was 29. It had spread to his pancreas and kidney. After surgery and chemo he was told the tumor was gone and hopefully the chemo had got rid of any cells remaining. He was always very strong and positive. Then after the chemo was finished, life really changed. He…
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CEA
Hey guys should I be worried Jorge's count this month is 1.3 and last month it was at 1.2 and in jan.it was 1.0 I don't want to worry but sometimes I can't help it
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Surgery
Hi everyone! My husband is scheduled to have rectal surgery in 3 weeks. He had liver surgery on 11-30-11. I was just wondering if anyone had any advice, things to expect, what to do or not to do. The plan is for him to get a temporary ileostomy also. I wondered if this surgery is going to be as bad as the liver surgery or…
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Tears...
I hate this disease! I hate what it's doing to my son, my family, our friends. I hate feeling helpless...desperate for a cure.. I hate this...I hate this ...and did I mention "I Hate This"!!!!
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who has had very bad side effects from oxyaplatin???
dad is back on oxy with xeloda pills following for 2 weeks...this time the oxy is kicking him in the butt!!!!! he feels like he has the flu and tired...he also has the neuropathy with the cold...did anyone ever have bad side effects from oxy and if so what and how long did they last? hes discouraged (when you don't feel…
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breast lesion is a met
I posted recently about finding a lump in my breast. Had a biopsy on Thursday and got the results today. It is a met, not a primary breast cancer. I guess that is a good thing (well, benign would have been better! but...). Unusual, I gather: has anyone else heard of rectal spreading to breast? Mind you, I seem to…
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NIH Library of Medicine PubMed site
a good resource PubMed at NIH
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CEA variation - real change, or not?
there are many posts here expressing concern about changes in CEA. Having a lab background early in my career I know that all analytical results have a variation associated with them, and that results which fall within that variation cannot be considered to be different. hence, for examaple, it may be that there is no real…
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mets to abdominal skin
Has anyone had mets to the abdominal skin. My husband's cancer was in his transverse colon. Restaged 8/10 to stage 4 with mets to liver and lung. on chemo for 1 year, holding his own and then found out yesterday he has met to the skin above his transverse colon (or what used to be there) And to top it all off right above…
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Fishing for treatment
Howdy all y'all! Awhile ago I had mentioned a fishing retreat for men with cancer and I wanted to post the information. It's called Reel Recovery and the website is http://www.reelrecovery.org physical address is 160 Brookside Road Needham, MA 02492 phone 800-699-4490. Any guys wanting to go on a retreat in their area can…
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Hi mates ,it is FRIDAY , any interesting PLAN for the weekend ?????
I will be unplugged of my port today so we will see but my idea is have Lunch Saturday on my wife's parents house and sunday with my family and mum.May be some shopping walk in between ! What about you mates?
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Sunburn
Howdy all y'all! Last Saturday, I went down to Phoenix Arizona to visit my daughter and go to the Renn Fair they hold there every year. I asked her if she could put some sunscreen on me when we got out of the car and after we got parked, everyone forgot about it. I didn't remember that I needed it until way too late. In…
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Varmint5
Have not seen any recent posts from you and was just wondering how your daughter is doing. Hope all is going well. Luv, Wolfen
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Update on my niece
I heard from my brother today through his conversation with my husband, and the news is not good. Claire is still in hospital on morphine drip and pain killers on top of that, but she wants to go home - which I can well imagine. She had a lot of trouble with her CT scan, threw up the liquid and they had a terrible time…
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Buzzard, John23 and any others who haven't posted in a while
We sure would like to hear from you and find out how you are doing. As always sending good vibes, prayers, or whatever makes ya feel better. Hugs, Marie who loves kitties
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Happy Birthday Brian
Today is my husband's 55th birthday, and although he is spending it in the chair getting his erbitux infusion, I'm just happy he is here for another one. Hoping for many, many more for him, and for everyone fighting!
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Why ignore?
My husband was finally able to spend some time outdoors yesterday in the warmer weather. We saw neighbors outside and walked down to say hello. While talking to them, another neighbor came over and completely ignored my husband, wouldn't even look at him. No hello, no how are you, no nothing. Why are some people like this?…
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Good scans!!
Well, picked up copy of my scans, these really had me on edge as it's been six months since I've had any chemo. So, now I suppose surgeon is gonna recommend colonoscopy.
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Hello My Semi-Colons
I haven't been posting much, I'm sorry and I will catch up. I have been tending to my uncle on hospice care and we had his funeral on Tuesday. He had a wonderful life having come from very poor beginnings. The love of his life passed away 8 months ago. They were married 55 years. My uncle was 95 years old. He loved…
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winter marie
I read your stoey yesterday while getting treatment. What a great story. You are just more proof that the doctors can't predict how long we are going to live and that we need to be in control of our treatments and doctors. It is awesome that you are now working on a degree.That is just another way of slapping cancer in the…