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Freakishly Tired
My dad has stage 4 inoperable colon cancer with mets to liver. He skipped his chemo this week because I suggested he take a break. he is still freakishly tired. He is sleeping constantly and when he is awake he is not quite with it cuz he is so tired. His chemo is Fu5 and Levorcin or something like that. They stopped the…
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"Science"? try these on for size......
Don't know how many of you have tried to read and comprehend articles that are published in "scholarly" ,"professional-type" publications, so I present the following for your amusement or edification(sorry I don't know how to do links and it does take some time to enter this in menu bar).....don't let title scare you too…
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Would you think it important to know your cancer origin?
My Onc thinks I have Bile Duct Cancer...my second opinion Onc thinks I have Colon Cancer. 1stOnc says it doesn't matter, treatment is much the same and tests to confirm Dx too costly for being worth the info. I think it makes a big difference and is important to know. Treatment-wise, I do see differences and I can recall…
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l think we need to talk about Kate' s wedding dress or something like that !
Don't you think?.( in case you don't understand it ,it's a metaphor ! )
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The Role of Information for the Semi;Colon Nation
I’ve mulled this situation over for the past several days. Decided I wanted to speak – then changed my mind and decided to stay quiet. But it just keeps eating away at me and I just have to talk about it to clear my head and my spirit. Much has been bandied back and forth recently on the role of information on this forum.…
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Too much drama for me
If we can't rah, rah, if we can't encourage, if we can't share options, if we can't pray....what is left? A board full of sympathy. You all have a good say, I mean good day and if you don't want to have a good day, that's ok... that's your prerogative.
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clinical trial adomet (SAMe) helps heal folfocked liver damage UPDATE not phase 3 study
hope for all new folfoxers sorry but folfox can really damage your liver, in case your onc failed to advice you. see the study, this is from 2003 and a more recent from 2011 why am i the only digging up the relevant trials that can save our butts. our survival is supposed to be a team effort. posted this on colonclub as…
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And the verdict is....
Benign polyp!!! Didn't realize I was holding my breath for 3 days until I let out the biggest sigh of relief! Still have the ultrasound for Monday morning, but I can go into it feeling a LOT better! *hugs* Gail
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Indiana need recommendation oncologist
Husband stage IV colon cancer large liver tumor, had 2 rounds of chemo, last CPT-11 ended up in the hospital twice. We saw a surgeon we like at IU, any suggestions on good oncologist in this area would be appreciated.
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Low white blood cell count.
I went for my 1st treatment on 4/8 and the following week had a horrible time of it. The next week was actually decent however when I went back for my 2nd treatment I couldn't take it because my white blood cell counts were too low. So, I was scheduled to come back this Friday for treatment. Last Saturday I started feeling…
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off topic but nice read...
Slow > Dance > > > This > is a poem > written by a teenager with cancer. > > > > She wants to > see how many > people get her poem. > > > > It is quite the poem > Please pass it > on. > > > > > > > > > > > > > > > > > > > > > > > > This > > poem was written by a terminally ill young girl in a > New York > > Hospital. > > >…
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A poem about my personal Beauty I had to write for English class, yes in the end Cancer related titl
My Beauty Marks Winter Marie Egbers As I look upon my body I see these marks that have shaped me into who I am, Others may look upon these things, my scars, and think oh, you poor thing. But, no, each scar tells a tale of the shaping of my soul. The scar upon my finger from chopping kindling, when I was but 11 years old is…
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One question with 2 alternatives, and of course my opinion, which is just like a butt, normally stin
The quote..." permanent liver damage from chemo, irinotecan may lead to increased mortality after liver surgery UPDATED" .......unquote..... In my opinion since this is what I see to be a link to somewhere in cyberland that is causing a little stir in the ranks. Would a better route be to make the topic maybe.."Concerning…
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For our dear friend Lori S please
Lori called me today and she is having a very difficult time as any of us would be. I told her I would pass on her words as best I could. Her son is in the hospital again after numerous admits this past year. She doesn't often talk about her son but I know some of you will remember from December how hard of a time she had…
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Lullabye (not topic related)
"Day is done little one Close your eyes now sweet dreamer. Every star is a light. Watching over you tonight" author unkown I used to sing this to my kids before bed...back in the day
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Right...
Ok firstly everyone knows about Colontown on Facebook, or Colon Club, or Cancer Compass is it? I'm just dismayed at reading comments that have been flying left, right and center about a certain thread. Now I love this site with my heart, consider you my online family, but I feel like the colorectal forum is going to…
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I see a Darkness
By Will Oldham Well, you're my friend And can you see Many times we've been out drinking Many times we've shared our thoughts Did you ever, ever notice, the kind of thoughts I got Well you know I have a love, for everyone I know And you know I have a drive, for life I won't let go But sometimes this opposition, comes…
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support group info needed and advice on diet needed
I am the single dad of a young son who is suffering from colorectal cancer, I want to get him into a support group we live not far from downtown Los Angeles, CA, also I need advice on what diet he can start to help his recover? vegeterian diet? vietamins, food supplements? I am profoundly concern please help
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If the CEA is down does that mean your cancer is shrinking?
My dads got non operatable stage 4 colon cancer with mets to liver. His CEA went from 121 to 7. Doc says this is good. does it mean the cancer is almost gone? We have beeen told it will not go away. Incurable, whatever. He is 61 years old. He is still very sick though. He has this pain in his left side that is so severe.…
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Elevated CEA level
I have written a blog about my 27 year old son with stage 3 rectal cancer. He had his resection in July of 2010 and a ileo reversed in January of 2011. Monday he had a ct scan and labs. So far all I no is that his liver looks fine but his CEA level is 5.6 which is not in normal limits. I guess my question is: Does this…
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Liver damage
I'm starting a new thread about this because it is near and dear to my heart and very much an integral part of my journey. If you don't want to hear about how your diet can impact your health (good and bad), stop reading now! In 2004 when I decided to stop chemo, I still had 2 active tumors in my liver and my oncologist…
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HI mates it is FRIDAY, any interesting plan for the week end?
Nothing special here , for the moment watching the royal wedding specials ! LOL..
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surgery date set for me too.
OK, it's gonna happen the 24th of May. Before that I will have from the 19th to the 23rd with one of my daughters and grandson from, PA. My choice for her not to be here. We planned this for so long and don't want her sitting in the hospital. My Florida daughter gets to do that!! Hugs to all. Judy
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This is not helping...
I just wanted to say good bye to everyone. No, I am not dying. I am focused on living which is the point of why I will no longer visit this website. I came to it seeking advice from others that have been through what I am going through. I have received some good advice however too many times there are posts or responses…
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Surgery Date Set
Saw the surgeon yesterday. Surgery is set for May 16th. Could have done it next week but Roby wanted some time to get use to the idea and suppose to see the grandkids week after next. Wants to be able to hold the newborn and play with the others. Wanted to thank everyone for their support and information. Have a great…
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Platelet counts
I'm doing my third Folfox6 right now and my blood work done before I start shows my platelet count down to 105 after just two treatments. I drop 80 each time so far. They will suspend my treatment under 100 although my doctor will let it go in the 90's if everything else is good. My question is does the dropping level off…
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Thought of the Day
“We live in a wonderful world that is full of beauty, charm and adventure. There is no end to the adventures that we can have if only we seek them with our eyes open.” – Jawaharlal Nehru
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Friday Riddle
Remember NO googling or searching the internet and good luck!!!!!!!!!!!!!!! RIDDLE: I have six legs, but no arms. Though i may be small at first, I could swarm a mountain. One day I could become a man, but not for long. What am i?
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colonoscpoy & CT scan during chemo. Is it Normal?
Dear Family, My wife finished her 5th Round of 5FU,6th coming after 10 days. Now the doctor told her that next week before the chemo, the will need to do colonoscopy and CT Scan. Is it normal? I suppose the colonoscopy is ok since they could not complete it last time in January at the time of diagnose, since they could not…
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Can I travel with my Mom?
My mother has just informed me that she has been diagnosed with stage 4 cancer. The cancer was discovered in her anal canal, lymph nodes in the groin and in her liver. She is a very healthy 75-year old woman who undergoes regualar check-ups and this news has been devastating to me. She seems to be taking it very well, and…