Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Archives for November 2010

Our Friend Brooks (just4Brooks) Is In the Hospital ** UPDATED **
Hi Everybody, I got a call and text from our buddy, Brooks. He's been in the hospital since Wednesday and is having surgery this coming Sunday. He's back in with bowel obstructions - the goal of the surgery is to take out the kink where his ileo was, so that this will not happen again. I asked him if he wanted me to open…
Vitamin D follow-up - **Update**
I was looking for the thread on vitamin D, because I promised to report back after my appointment with the specialist, which I had this week. Ton Wednesday, I had my appointment with an MD who works in the Integrative Medicine department at Memorial Sloan Kettering. Dr. Wesa is conducting a study about Stage 4 colon cancer…
Question on Pet Scans
Okay, so I had my Pet Scan today, they told me they were doing this to see my tumors better. My last scan was a CT Scan in August, where they said they could barely see the tumors in my liver, etc., except for my colon and that had shrunk too. Today, after my pet scan I'm in the gyn cancer oncologist's office to make sure…
Good news and bad news today at chemo
I feel like I was ran over by a Mac truck, and I'm fading fast. Here is the short version. The long version is on my CaringBridge page. After 3 tx of FOLFIRI and Irinotecan, my CEA is in normal range!!!! 2.7 yesterday. Bad news - port wouldn't work, took 2 hours, over 20 salines, 2 heparins, lay back, cough, breathe deep,…
not what I wanted hear....update thank you!
so I go to the GP and she examines me and says mmmmmmmm...I think we will book a pelvic ultrasound. Could be a bladder that is not working.....could be ovaries....could be uterus....and the whole time I am thinking could be CANCER.....but I didn't say it she called the hospital and asked for ASAP but they are jammed so now…
Bad things happen to good people...
Im sorry to take up space with my whining....I can't seem to stop crying, in my heart anyway, don't want hubby to see me sad. (he's napping...so here goes) I read Winter Maries poem (beautiful!!) and all of Lori-s' posts (love them!) and I feel sooo guilty for my mood, pick myself up and carry on, then dangit, it always…
Do you remember your first Real Laugh after dx?
I was just curious if anyone had such a moment that they realized that they really laughed after being diagnosed. I knew I wasn’t laughing for quite a while and no matter what it was … nothing seemed to be funny to me and it really made me sad when I’d hear or see something that would have normally gotten at least a…
mag
good luck at the doctor today mag
Friday Riddle
Remember NO googling or searching the Internet allowed and good luck!!!!! RIDDLE: I can build a building, or tear it down. I can make you blind, or help you see. I am bigger than all the oceans, but I can fit in the palm of your hand. What am I?
Thought of the Day
“Don’t be pushed by your problems. Be led by your dreams.” ~ Jack Johnson
Hi every body it is friday any interesting plans ?
Go ahead !
Chemo delayed - tweaking it now
I've been having a very hard time with FOLFIRI now. I barely left my bedroom the first 8 days. And then the diarrhea hit. Every time I thought I had it under control, if I ate again, it hit again. I can't take Lomotil anymore, as it has Atropine in it, and I've had problems with Atropine eye drops, and the Lomotil now.…
Back Home
Got back home this morning, so glad to have computer access full time again. Heading to Stanford for my first PET Scan and then to the gyn cancer person there. Came home and found another appt with radiologist? Is that what the radiation people are called? Meet with him/her on Wednesday next week. Next Friday is appt with…
Happy Naked Dance or Naked Happy Dance?
I don't really care which it is - I'm just doing it! Great reports from my onc and my onc surgeon today. They couldn't have been more encouraging! Every time I see them, the news gets better. Dancing...... Alice
bag leaking
Hi all! I am Suzanne and have been reading your posts for months, but this is my first post. I was diagnosed in August of '09 with stage 3 colon cancer. I had my colon removed and now have a bag. I went through 6 months of chemo (Folfox and oxi) and handled it quite well. I then had a reocurrance in my ovary and had a…
Last chemo treatment for Mom tomorrow
Hi everyone, Just wanted to share that Mom has her last chemo treatment tomorrow :) She is so excited and happy. I know we are not out of the woods, we will need a scan in a few weeks, but I'm just enjoying seeing her smiling and happy. She actually gained more weight from last months treatment. She is up to 138. She said…
Scans without a port for meds
So I had an appointment with my Onc yesterday. He gave me the green light to get my port removed. Today I recalled the nurse from my last scan saying how much she loved utilizing the port for the med that makes you feel all warm inside (forgive me I forget the name). She was talking to another nurse at the time and I think…
looking through my work emails....
I get a newsletter from our pharmacy which in turn gets a newsletter from the Institute of Safe Medication Practices. With many of our drugs (not just chemo drugs) on backorder, I found this interesting and wanted to pass this along. I copied and pasted this from the newsletter regarding chemo drugs. Chemotherapy…
Reading Room Article on lab created liver
Just wanted to post a link to an article that came out last week relating to livers being created in the lab at Wake Forrest. Does not look like it is quite ready for humans but certainly promising for the future. http://singularityhub.com/2010/11/02/wake-forest-creates-first-liver-in-lab-using-human-cells/
Friendinpenn Here! Anyone just using 5fu with leucovorin only? (first time writer...).
I had a bad reaction to the oxiplitan yesterday only about a half hour into the treatment....I had the full FOLFOX and FILFIRI in the past and never had this type of severe reaction...it was really bad and scary yesterday... I'm now off the oxiplatin and will be seeing my oncologist next week for consultation... By the…
Today
Today they said I had cancer. They patted my leg and I could feel their sorrow in delivering this news. Today I learned I was entering a new world, none of which I had ever dreamed of. Today my life changed forever. Today nothing will ever be simple or taken for granted. Today I start my life over, every moment a blessing.…
New to this board mom just diagnosed
I am new to this board but not to cancer I was dx this January with breast cancer. This board has been very helpful. My mom was just dx with colon cancer. I don't have much info as of yet. She had a colonoscopy a couple days ago they removed one polyp but the other one was to big to remove so they took a sample. From what…
The comfort of a Mother
Tomorrow I leave my mother (I hope I see her again this Thanksgiving, hoping to go back up before surgery)been trying to convince her, she won't die from too much talking on the phone, or going down her steps to go outdoors and enjoy her flowers. The child has become the parent, the parent the trying child. I realize I'm…
After treatment...what happens with support then??
I have had unbelievable support when I was diagnosed, during my treatments and with all of my appointments and I am eternally grateful to all of my family and friends for all of that!! But now that I am "Cancer free" and not in "treatments" what do I do now? I need more now than I did when in treatment and no one knows…
Amber...............We are looking for you out there..
You can't come in here and check in then not come back.....its, Hmm...UnAmerican, or Un Southern...LOL....Its Uh......Its Ok ...... Just messin with ya.........but, This bunch in here is missing their Southern Belle...You need to be in here...You need to find the answers in here...and they are in here, promise...This is a…
FOLFOX #2 , Charlie Chaplin, Orville Redenbacher, Eric Clapton and dead baby chickens
I'm channeling Charlie Chaplan, sound like Orville Redenbacher, listening to Eric Clapton and it tastes like dead baby chickens. Just to start things out right, I will report that I did again have a reaction to the oxy eventhough pre-meded. Only this time, it got noon o’clock and everyone comes over to me and checks on me.…
new photo.....haha there she is the old cancer bag is back
just in case you think I have discovered the fountain of youth....fear not!!! I am still an old cancer bag. this is a picture of my daughter and her fiancee taken at the wedding of friends of theirs last weekend in Toronto. It was a beautiful wedding....all so young and hopeful. Everything was great until after dinner when…
I had a brain scan this morning
Well my cyber friends, I had a problem this week. Monday and Tuesday I had episodes of being mentally out of it for about 5 minutes. One each day. I had a brain scan this morning and I now have a cancer tumor in the brain that is 2cm X 2cm. I don’t know yet if it is operable. The scary old woman just left to pick up some…
www.clinicaltrials.gov
Hey Everybody, In my quest to figure out what I need to do next at this point in my cancer fight, I just read through all 813 clinical trials listed under the clinicaltrials.gov website for either solid tumors or colorectal cancer(that number very well may be different when/if you do a search- it depends upon what you put…
does anybody know anything about WinneyPooh?
Thank you!

Colorectal Cancer

Discussion List