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Reading Room - WARNING - Sorbitol in many foods - Causes Abdominal pain & diarrhea & Rectal Issues
I went to the grocery store and bought Sherbert for what I thought would be a nice treat. I bought the one which read "No SUGAR Added". BIG MISTAKE!! My husband (who is healthy) and I both had Abdominal pain & diarrhea and lots of gas! Then I read the ingredients. Sorbitol was the second ingredient. --What is Sorbitol? ---…
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CT results
Hi everyone, Well it was as we thought. His CEA was telling us the ugly truth. John had new nodules in his lungs and existing nodules all showed an increase in size from 2 to 4 mm. One of the tumors in his liver had increased in size a little and the mass on his right adrenal gland also had increased in size. They added…
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PET /Cat results
Hi Friends, We met with ****'s onc today and the PET/Cat they did on Wednesday showed all clear. We are very happy with these results. As you know he had surgery on May 13th and they felt good that the margins were clear. The plan is for 4 months of Folfori + Avastin. The onc here and Dr. Lenz will talk over the weekend…
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First post...... Side effect question
Hello. 44 year old here, Retired military......On 14 Dec went in for what I thought was constipation. Doc sent me for colonoscopy.... Woke up and the friendly doc said "Youve got cancer, would you like to get dressed here or in the bathroom"..... Didnt know if I should cry or kill him for his bedside manner. (Civilian Doc,…
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Diagnosed and Surgery 3 weeks ago need advice
Hi I am more here for my husband but he isn't as into computers as I am. He was diagnosed with having colorectal cancer May 21st they did not feel there was time to try and shrink so he went from his coloscopy to surgery. We haven't really had time to let this soak in and have sooooo many questions. Things are moving so…
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alternative medicine
I am a caregiver and would like to know if anyone has done alternative medicine overseas and the results. I know that John23 has been doing TCM and that seems to be working. I was wondering if I can send you a PM to learn more about what you have done.
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Pancaking and Pancakes....There is a difference
Defined: Pancaking This is when the output collects around the stoma and can squeeze between the flange and the skin instead of going into your bag. One of the reasons this happens is because there isn’t enough air in the bag and so the output doesn’t take a downwards turn. If this happens try lubricating your bags with…
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Colds
Good Morning Everyone, My question for today is, is it dangerous to catch a cold while going through Chemotherapy? Thanks and have a wonderful day. Peace and Blessings, Karen
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Thank you so much!!!!
Thank you all for all the well wishes and thanks for remembering me. I still can't believe it has been seven years. WOW. I will be walking in a relay for life next w/e, I will proudly walk the survivor walk and I will be thinking of all of you. You guys were sooooo helpful to me when I stumbled upon this site seven years…
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One left....
Only one treatment left. YAY!! They did a little med error, which I caught, with my last 100mL bag that they send home with my little friend, Peter pumper (My bottle pump). They put in a bit too much of 5-FU with the saline. I can't remember feeling this tired since early in my treatments. LOL No mouth sores, a lot of…
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Mixed Bag PET/CT update
Greetings to all! I wish that I had definitive news to tell you. I write this all down to you because it helps me gain perspective. I have been feeling very good, the best in seven years. And yesterday and today, my tests were a mixed bag with knowns and unknowns. My rectal exam went very well. My GI surgeon says that…
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CPT 11
After my second treatment of CPT11, my hair has started falling out, I'm losing my taste buds, I am dead tired all the time, sick for three days after, my fingernails are really weak and brittle and my finger tips are peeling. Any one else taking a low dose of CPT 11 and having any of these problems? Thanks, Debbie in…
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good CEA news
Hi All, I just wanted to report that I just called my onc office and got the results of the CEA test they drew blood for this past Wednesday, just prior to getting chemo. It went down 27 points in the past 4 weeks since it was tested last, from 87 to 59- yeehaw! The month before, it had gone up 21 points (from 66 to 87).…
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First they see it, then they don't - back again!!!
Hello everyone. Been a while. Become a work-a-holic. An update, stage 3 colon cancer, 1 node positive. Well, remember in March I wrote that a scan was done that showed a 1.5mm spot on liver: well they did a pet scan afterwards, and they saw nothing. I had another scan on yesterday that showed the spot was there and had…
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Sundance Article Being Published in Trade Magazine – FINALIZING COUNTS NEED TO PLACE ORDER NOW (UPDA
Mornin’ Everybody:) It seems like there is no rest for the wicked, LOL:) I’ve gotten a call from the President of the St. Paul’s Medical Foundation and also from the Media Manager of UTSW Hospital. They are going to run me and Dr. D’s story on our 1st DaVinci experience together for their trade magazine and the article…
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Help me, guys...I'm sad....
...and stumbling... I just found out that a very dear friend has a reoccurance of her breast cancer, mets to the liver... I know this isn't about me, but I feel so helpless....if you could spare a thought or a prayer for my friend, please do. Hugs, Kathi (I threw out my back on Tuesday, can hardly move, feeling sorry for…
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Current issue of C3 Research has 3 interesting items on CRC
at fightcolorectalcancer.org, two on age and Tx amd one on Erbitux.....steve
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Friday Riddle
Remember NO Googling or searching the Internet allowed and good luck !! RIDDLE: What has seven letters, is greater than God, Preceeded God, is more evil than the devil, Poor people have it, rich people need it, and if you eat it, you will DIE?
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Thought of the Day
Thought for the Day “Destiny: A tyrant’s authority for crime and a fool’s excuse for failure.” ~ Ambrose Bierce
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Paddle for the Cure
http://www.hdocc.com/Hoewaa/Paddle_4_the_Cure.html For those in the North Texas area I provided a link to the Paddle for the Cure event scheduled for July 17th. If you know of someone who might be interested in this event please forward to them. Thanks for your support. Mike
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Chemosensitivity testing- found this while searching for a cost
January 20, 2005 - 3:21am Chemotherapy Sensitivity and Resistance Assays When a patient has an infection, doctors often send a sample of infected blood or tissue to a lab where they can grow the bacteria and see which antibiotics are most effective (called Bacterial Culture and Sensitivity Testing). Chemosensitivity…
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How long did you feel like this??
I no when chemo is over and they say things look good, the pain and not feeling good does just not end there. Chris last chemo was March 3rd but he still hurts everyday.. In fact has not really been out of the house in 6 days. they did make him go in for a blood test to check his pancreas and gallbladder. Just lately he…
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CT Scan Results
Got good news clear scan next scan in 6 months. Doing the dance. God has been with me. Mike
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Chemo, radiation and sun spots on skin:
I spent years on the beach in summers without using lotion or sun screens and cultivated quite a number of spots as a result (two removed as precancerous maybe 8 years ago or so). Since Dx of COPD in 2000 I had cut down on going and eventually stopped beachbumming due to difficulty breathing in heat. However, since doing…
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Healing
I have been done with chemo for almost 1 year. I cute my finger back in Dec and got 3 stitches. This week it still seemed not completely healed and slightly infected. I see my Onc tomorrow and will tell him about it. Did you notice it taking wounds way longer to heal after or during chemo? Seems odd to me.
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****'s scan today too
Hi, Add **** in to the scans today. He just had surgery (4 weeks ago) so we really hope and pray for an all clear. Thanks for thoughts and prayers. We both are looking for some good news. Thanks. Aloha, Kathleen
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Krista
Hi, For those of you who know/remember Krista (kristasplace), she's had a tough time lately. She was in the hospital for exploratory surgery recently and just got home. They discovered the ovaries and uterus were lighting up on a PET and today she posted on FB that it is, indeed, cancerous. They're not sure what type yet,…
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Here's an interesting thought: "Are Dead Cancer Cells Feeding Cancer's Spread?"
Reseachers at University of Alabama at Birmingham(UAB) are "examining inactivated or altered genetic material (DNA) left in the body after breast-cancer cells are exposed to chemotherapy. UAB researchers say the resulting altered DNA may be the factor that activates the spread of living cancer cells to distant locations in…
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I know there's a couple of us going for scans this date
Hopefully we all have positive (that is, no evidence of disease) results, making all the agony and suffering so far tolerated worthwhile. Just called for a car service; be back later......
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CT Scan looks good
I picked up the report today from my CT yesterday. It looks good. The largest lesion on my liver that was 7.6 six months ago has shrunk to 3.3 ! And nothing new showing up and no growth. Feeling relieved. I always pick up my own copy of my test reports, and my onc appointment is not till the 16th so glad I don't have to…