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Colorectal Cancer

Archives for November 2009

Question re:Tumors and heating pads
Hi everyone, My husband went to a naturopathic doctor to help support him through chemo. She suggested daily castor oil packs for his liver, along with some other therapies regarding nutrition. He is supposed to use a heating pad on low on top of the pack. I remember reading/hearing something about not using heating pads…
Diane's new picture....
I think your new picture is stunning, Diane. You are a very attractive lady. Just so you know..... Sandy
DRESSING FOR XRAYS,PET/CT SCANS AND MRI'S
JUST THOUGHT I'D PASS THIS PIECE OF INFO ALONG . A FRIEND OF MINE WHO IS A NURSE,TOLD ME THAT IF YOU DRESS WITH NO METAL OR PLASTIC ON YOUR BODY YOU DO NOT HAVE TO CHANGE INTO A HOSPITAL GOWN AT ALL.I HAVE NOT HAD TO CHANGE MY CLOTHES IN 4 YEARS.I WEAR ELASTIC WAIST YOGA PANTS,CAN BE DRAW STRING IF NO METAL GROMMETS( CUT…
could this be from chemo
Hello everyone, I have had my knee pop out of place three times now, I had to turn my knee to get it back in place. This is the worst pain. This was not a problem before, I have never had a knee problem. Has this happened to anyone else? I don't even know if they can do anything for me since I am on chemo. Let me know if…
Something we ALL have in common.
Good segment on 60 Minutes tonight IMO. Sure to raise some various points of view. Things have been too calm here... ;-) -p
Need Input
I was dx in July with Stage IV colon cancer. I was told I had a spot about the size of a quarter on my liver, it was in my lungs and lymph nodes in my abdomen area. Since then, my last CT scan showed the spot on my liver is gone or either small enough they can't pick it up on the scan, since my lungs did not show…
Malfunctioning Machine
Ok, so maybe I have trust issues. Went to Philadelphia today (Sunday; they are closed Thursday and Friday, no treatment those days, since cancer takes a holiday too) for my 16th radiation treatment (rectal cancer) and all of us waiting were told that there was something wrong with the machine--bad motor--and it will be…
What's up with low energy
Man, I could hardly stay awake in church today. I did not take my meds before bed for pain because they seem to keep me awake, but I was awake all night on & off anyway. I just wake up and start thinking about surgery last week. I am starting to remember new things and bits of conversations and I can't fall back asleep, I…
Starting Chemo - Questions
My sis is starting chemo next week and has not asked any questions regarding what to expect regarding side effects. She's having 3 chemo drugs and then something called 5fu in a pump for a couple of days. What's the chemo like - does it knock you for a loop, or is it pretty mild? Hers is going to be every other week. Does…
my 1st week phase 1 trail
Hello! I just wanted to post how my 1st week phase 1 trial of ARRY-438162 went. my history is I was originally diagnosed 2007 with colon cancer that had ruptured and gone into my abdomen. The 1st year I had surgery and 4fu and xeloda chemo. Two months after my chemo I felt something was wrong again. My wonderful Dr. had me…
upcoming surgery
on the 24th, going to deal with ulna nerve entrapment at the elbow and hopefully enough time to tether tendon through arthritic thumb joint. Something about a 2 hour window once they put the tourniquet on and may not have enough time to do both. The ulna nerve entrapment has been an issue for 16 months. I woke up with numb…
New picture
Thanks to all who commented or pm'd. Another coach took the picture when I went up to have lunch with Jim on Thursday. Diane
Kimby
If I remember correctly, semi's were inquiring about Kimby a few weeks ago. I was just on the Colon Club site and there is a new discussion "talked to kimby". I would post a link but honestly, I don't know how to do that. Anyway, she has had a bit of rough time lately but you can read about it yourselves. Tina
PM went away
I logged in and noticed I had a PM, when I clicked on it all went away. There is nothing listed in my "inbox" so I am not sure what happend. Anyone else having trouble this way? Thanks Jan
May I just say......
how totally awesome you semicolons are. You respond to folks asking questions who have been just diagnosed and really take the time to explain and give hope to those who are scared. We have just learned that a very dear friend has been diagnosed with bone cancer. I posted on the bone cancer forum here as I know how…
PET scan question...
How soon after you have a chemo treatment can you have a PET scan? My onc. always told me you need to wait about a week. Now he is sending me Wednesday... 15 minutes after I get my pump disconnected. It just don't seem right to have all that fresh chemo juice running thru your veins and then put all that radioactive crap…
robInVancouver
how is the new chemo routine going
Neuropathy like childbirth is a memory that is easily recalled
10 months since I ended chemo and it is clear the neuropathy in my hands and feet is permanent I am thankful that it is doable, with somewhat of a struggle what bothers me the most? washing my hands and standing in the shower water has to be luke warm, not any hotter or colder or else it feels like electric current going…
Tweaking treatments
I want to post this in case anyone else starts out with a couple very rough cycles and is losing hope. I didn't think I could do it again after cycle #1. I would rather die than do that 12 times. I'd rather have colon resection surgery every two weeks, than chemo every two weeks. (Got bad thrush throughout entire GI tract…
Follow up to staff issues between clinics
The doctor asked me to tell him how round #2 went. I used this opportunity to fill him in on how hard Monday was, and have him look at how low my blood pressure dropped. Then I told him about how the nurse chewed me out because my chart wasn't there, and wasn't going to allow anything other than the Nuepogen shot that had…
The problem patient again - more port issues
Of course I had to be the difficult patient again. My port would not work for blood draws, and they didn't think it was even going to do very well for infusions. After trying to flush it several times she had me put my feet up, no go. Then she tipped me back with my head low, no go. Then lay on right side - nothing. Then…
Lengthening Oxaliplatin infusion time
After getting my nurse navigator to pull up the studies on the syndrome I was getting from oxy (happens in 1-2% of patients - acute neurotoxicity - affecting chest, throat, jaw, tongue, eyes), and the results that lengthening infusion time from 2 hours out to 6 hours can make a difference, we adjusted. Due to time…
STUDY Results: Depression increases cancer patients' risk of dying
Article: Depression increases cancer patients' risk of dying Depression increases cancer patients' risk of dying Click to read more Depression can affect a cancer patient’s likelihood of survival. That is the finding of an analysis published in the November 15 issue of Cancer. The results highlight the need for systematic…
News for those who have been seeing higher cea numbers out of the blue
here is a link to a discussion on another forum. I noticed several of you have posted about your suddenly elevated cea numbers. It seems there is a new reagent being used that is causing significantly elevated numbers that do not correspond to clinical observations. So hopefully for you all it is just a glitch.…
VickiCO
I sure am missing my buddy.....I hope your healing well and the new item is starting to work well for you...Take all the time you need to heal and I will keep you in my prayers...Love ya sweetie.....Tell Hubby I also said Hi.......Buzzard
CEA Numbers
Hi! Last tx I was told my Cancer numbers dropped from 27 to 5 and again this tx from 5 to 2.2 with a white blood count of 6.8. I have no idea what this all means does it mean that if my count stays below 5 I will be considered in remission. I still have 6 more tx to go so things could change along the course but for now it…
1st Oxyplatin Treatment & started Zeloda - anyboday take L-Acetyl Carnitine
Had my first Oxplatin treatment and started Zeloda pills. I have neuropathy and wondered if anyone takes L-Acetyl Carnitine? If so - where to get it? Need something for sure. Also have jitters from the steroids I take. So far no nausea - just had my 3rd day of Imend and also take prylosec. Hope it continues to keep it…
calling all long term stage IV lurkers
I go onto other cancer sites and lurk, this is the only one that I post comments.So, I was wondering if their are any longterm stage IV's or at any stage, who are out there that may be lurking, that would come on and offer support and treatment plan? We have many on here posting and offering amazing help to others. Just…
Juicing Question
Hi Juicers! Happily my mom's husband just gave us her juicer (a Juiceman) and we're getting ready to start juicing in addition to whatever treatment we decide to go with after meeting with the oncologists in the coming weeks. My husband just had a right hemi-colectomy on Nov. 9th. He's doing great so far! Has been walking…
confusion now------HELP
I just got a email from the doctor who told me two days ago that I had a new tumor in liver, that now says that he had a special radiologist look at it and maybe it nis not a tumor and he will let me know later. He says maybe I can have surgery now? What else would light up on a PET if not a tumor?? Any ideas would be…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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