The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

Archives for November 2009

THe shades are all closed
The shades are all closed so that i can do the happy naked dance!!! I just got back form the Doc and got the word, NED for 1 year. Thank all your prayers and well wishes. It gives me something to be reallly thankful on thanksgiving!! Jeff Just happy to be here!!!
long term survivors
For anyone that has been cancer free for over 6 years,how often do you see your oncologist and how often do you have a CT scan?
It's here, it's here!!!!!! Happy Anniversary!!!!
I just checked my file....I was officially diagnosed with cancer on November 26, 2004....and given 6 MONTHS to live!!!!!!! THAT means that tomorrow, Thanksgiving Day, I will be 5 YEARS since diagnosis!!!!!!! Yes, it's true, now that was my first (rectal cancer) and, my second (breast cancer) is coming in July, 2010. I am…
Serious Side Effects
Hi -- My mom is a stage iv colon cancer patient and is on irinotecan/5fu/avastin and just had to go to the ER for some serious side effects. She's having some serious stomach pain and says that tylenol 3 is not even helping with the pain. she can't keep even keep water down and is constantly vomiting and having diarrhea.…
My insurance is terrible!
Hi, yes, my bluecross insurance is so bad! I was going to get into a clinical trial with Avastin butI was turned down because they said it was experimental with the combination that was in the trial. So my doc wanted me to get on Folfox with Avastin since I only had folfox 3 years ago when I was first DX and I only had it…
My Husband's Medical Oncologist Just Called...WTH
I don't post very often, but this was too important not to share the latest. So, some of you may know that my husband was diagnosed in March of this year with stage IV rectal cancer with numerous mets to his liver. He started out on Folfiri w/Avastin. There was progression. He was switched to Folfox w/Avastin, which he…
Stage 4 and cancer FREE
Just got back from my ONC and my CEA is 1.1 and no signs of the beast at all!!! I am so excited. I have so much to be thankful for and I am just bouncing off the walls. What a relief, I still have to have check ups but to me this is like a milestone that I have gotten past and I just feel like the weight of the world has…
surgery went well
typing one handed rather sucks :) makes for short and sweet posts ta-ta
Happy Thanksgiving
I am on my lunch time right now, but wanted to wish everyone a Happy Thanksgiving. I know quite a few of you are very sad and I totally understand, boy do I ever understand. But...I would like to wish you a hearfelt time with family and friends. I personally look forward to my house smelling like Thanksgiving, spending…
Nasty flu
Over the weekend I came down with some sort of flu, complete with muscle aches, chills, fever of 104 (40 C), and a dry cough that comes and goes (as does the fever). I've been unable to function and bedridden the last 3 days, which I hate. Strangely, I had a H1-N1 shot in the oncologists office last monday (8 days ago)…
Chemo
If it wasn't for feeling cold all the time. The extreme leg pain, The barfing, The wonderful metal taste you get in your mouth, and the overall just feel like crap for 5 or 6 days. Chemo isn't too bad!! Did I miss anything? LOL Life is funny sometimes Brooks
Bad News
Not feeling up to posting all the specifics, but you can read about what happened during surgery yesterday at http://www.caringbridge.org/visit/brantwalton Any thoughts/ideas as to what we should do next is appreciated. Melissa
Daydreamer....
....you ok lady??? Hoping you and your family have a wonderful thanksgiving! Hugsss! ~Donna
what I am grateful for this thanksgiving
This thanksgiving I am grateful for every sunrise. I am grateful for my BFF Bonnie who has never missed a chemo session, She has been with me for every scan,and only missed one doctor appt' but when she called me to tell me she couldn't make it because of a problem her daughter was having, she had already arranged for…
Need some info on Fentanyl patches
Hi everybody, I am posting this for some info for my partner Wendy. She is currently taking the Fentanyl patch for severe pain due to fibromyalgia. I remember reading that some of the people here have used the patch before. I am just wondering if someone could tell me how much they were on and if they had any side effects…
Wishing you a Blessed Holiday
Hello everyone, Just a quick note to wish you all the blessings of this holiday season. My husband is doing very well following his second liver resection in August. He will have his last adjuvant chemo infusion on 12/11. It's been a long and sometimes extremely rough last three years , but nevertheless I'm very thankful…
This just in: Newborn Babies Will Eventually Face Certain Death
I couldn't resist, I'm sure it's just my anti-depressants talking. We all, cancer or no cancer, certainly have a rocky road ahead of us no matter what our circumstances in life are. No one gets out of here alive, don't take life/death so seriously. Enjoy life and always do unto others...
I have a question
Good morning everyone. My husband finished 30 rounds of radiation on September 2nd and his 12 rounds of chemo on November 12th. For the last week and a half the first bowel movement in the morning is real dark blood. The rest of the day is fine. Also when he blows his nose it has dark blood in it. We thought these after…
Opiate Painkillers May Encourage Spread of Cancer
as per medicalnewstoday.com dated 11/23/09 tho conclusionm still under study.
chemo brain
Maybe it's the amount of chemo I gotten or just that I'm overly sensitivebut I have chemo brain, no question. What was I saying? Oh yeah, chemo brain... I've gotten some unexpected help. I downloaded the game Fling on my iphone. I downloaded it for my son but I've been playing it. I have noticed a marked improvement in my…
RFA vs. CYBERKNIFE
I was wondering if anyone has had either procedure and why they chose one over the other. My father has two small liver mets, which occurred after his colon resection, and is thinking about cyberknife or rfa. He is currently on chemo (avastin, xeloda, and campostar) but is tired of feeling so awful and wants to explore…
Avastin no longer allowed in UK as tx for colon cancer patients
Story Link HERE Another cancer drug too dear for Britain: Bowel cancer victims denied life-prolonging drug that's free in Europe By Jenny Hope Last updated at 12:02 AM on 24th November 2009 Bowel cancer sufferers are to be denied a life-prolonging drug on the NHS which is available to patients across Europe and beyond.…
Cea results from re-test
Hello everyone, as some of you know I went in to be retested for cea's that rose from 10.5-22, that was on Wed. now it seems It has risen even more to 32 in just 5 days. Nurse called to tell me the results and says that chemo would not cause a rise in cea levels. I was at a steady downward trend on Folfox and now this. I…
Thanksgiving Joy
2008 My last oxy treatment was 4 weeks prior to last Thanksgiving. I hadn't eaten much of anything in months. I had mouth sores and thrush so bad- couldn't even take liquids, got those IV by the bag full. I was having obcessions with FOOD- and I mean major ones. Watchingn the food channel 24/7, clipping recipes, hours and…
Happy Thanksgiving to all
I am wishing all semi-colons and their families a very WONDERFUL and HAPPY Thanksgiving Holiday and hoping everyone gets to be surrounded by love, warmth and happiness. I will be traveling to Chicago, IL to spend the Holiday with my son and will not have access to computer, so I won't be able to read posts until Monday, 30…
melissaincali hoping your husbands surgery
went well! Been thinking about you guys today!
the hare
I cant help but feel like I should be doing something during this six week perscribed break from treatment until my next scan. I feel like the hare sleeping on the side of the road and cancer is this tortous sneaking up on me. I'm finding this break to be a little difficult as I am not activly getting treatment and…
Friday Riddle Answer
This weeks winner is dorookie. CONGRATS!!!!!!!!!!!!!!!!!!!!!!!! RIDDLE: RIDDLE: What do you do with 365 used condoms? ANSWER: Melt them down and make a tire and call it a Good Year :)
snomminj - how are you???
i just noticed that john (snomminj ) hasn't posted in a while? how are you doing john? and any news on the new testing your were having done?
2 years!!!!
Today marks two years of being cancer free for me!!!! NED is GREAT!!! Love all of y'all, and I'm so grateful for your support the last 2 years. I also have to give a shout out to the excellent doctors and nurses I have. *hugs* Gail

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Colorectal Cancer

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