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anyone had this happen
I am almost 3 years out of stage III rectal T3N1MO. Last week I had my CT scan done and it read lungs, kidneys, abdomen no sign of residual disease. 6mm on liver suspicious suggest redo CT scan with contrast. I have not been having the injected contrast because of "borderline" kidney function I'm 62 and have had 8+ CT…
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Recently diagnosed, surgery on Monday
I'm a new member of the club no one wants to be a member of, so, hello. In Sept., a routine colonoscopy turned out to be not so routine in that cancer was found in one of two polyps. I had no symptoms or pains. I'm a type II diabetic and some anemia was noted during one of my 6 month check ups. Thank God I found this…
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Does anyone have experience with 5-Fu, Leucovorin, and Eloxatin treatment?
Hi All, I had a colon reduction 5 weeks ago (stage II). I'm scheduled to start chemo on Monday. It will happen every 2 weeks over a period of 6 months (12 treatments). I will receive 5-Fu, Leucovorin, and Eloxatin in the hospital then walk 2 days with 5-Fu. I live by myself and wanted to know about the difficulty level of…
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Assessing How You feel
Happy Friday Semi-Colons, I woke up this morning and was feeling quite fatigued. Each time that happens I get the willies because I relate that symptom to cancer. (for those that don't know- year and 6 months out from last chemo- currently NED) I have found as I go through this journey that symptoms abound that I think…
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New CSN Look
Hi - I was talking to a friend who is also a CSN member, and we were both commenting how we are having a harder time with the site since it has been revamped. I like most of it, but what is blocking my full approval is the fact that new RESPONSES go to the top of the list. Previously I would be able to go back exactly…
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Surgery on Monday!!!
Hi I am 37 years old with 4th stage colon cancer also in lymth nodes, I have had 12 rounds of 5fu, I am now NED!!!! I will be having surgery to remove the rest of the tumor, It has shrunk quite a bit... Then some more chemo. My question is what can I expect pain wise with my surgery. My surgeon will try to do it…
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NED Yippie Ki Yay!!!!!
Hello Everyone! I was stage 4 colon cancer with mets to liver. I completed my 12th and final chemo on the 13th of October. Pet and Ct scan on the 13th showed NED. I am truly, truly, amazed. Prayer is the best solution, I had many prayer chains going. Miracles do happen!!!!!!!! I am living proof and I vowed that I would not…
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What foods/drinks can't you STAND now because you consumed them during chemo?
Madre's post reminded me of the things I can no longer eat because of the dreaded cancer! First, I can no longer drink Ginger Ale because I made the mistake of using it for prep one time. Next, I can no longer eat tomato soup or even stomach the idea of having a can/box of it in my pantry! My last chemo rounds the one…
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This one is for the guys only (sorry ladies)
I am on 5 day plan with 5fu via an infusium pump. I have completed three weeks so far. My question is regarding sex with my wife. Doctor told me to use a condom because there will be traces of chemo in my semen. (My wife is fixed). Since I have been on 5fu everytime I ejaculate it burns. Is this normal? It kind of ruins…
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Radiation
HI all, A little history: My husband was dx'ed Jan 2006 withstage 1V Colon Cancer. 3 surgeries later, the first one to remove the tumor, then 3 months later another surgery to remove almost all of the colon, he ended up with a permenet illostomy, they did the hot chemo treatments to his abdomin as well. He was able to make…
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Weight loss
Hello everyone, I weighted 127 lbs before the cancer, June 2007 and now I weight 107. Kind of weird because lots of people are trying to loose the weight. During the chemo I have not appetite at all. I can only stand soups and light fruits like watermelon. Any word of advise or comment with be grately appreciated. Much…
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hair loss
My mom's hair is rapidly falling out. I'm wondering how many of you have lost your hair due to folfiri treatments? SHe didn't lose it all with folfox, just thinned a bit but it seems to be coming out by the handfull. She is really depressed about it too. I keep trying to remind her that it's only hair, we'll get a wig but…
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October 15, 2003
Five years ago today, cancer was removed from my body, and after chemo therapy and a few bumps in the road, I remain cancer free. I have changed, grown, and am, hopefully, a better, kinder, and more compassionate friend and person because of my experience. Five years is a milestone in the world of cancer, but it has never…
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Genetic markers and insurance...YEA!
After posting about redlining by insurance companies, based on family history or genetic testing results, I researched on.... This is now in the PAST!!! There is a new law, GINA (Genetic Information Nondiscrimination Act) that makes not only this illegal, but also an employer firing a person based on these results!!!! YEA…
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Can't start FOLFOX until ins company approves!
My father has had "stable" liver mets for the last 3 years. Unresectble. Has been on FOLFIRI + Avastin 3 years. Most recent CAT scan on Oct 1 said new lung nodules (6cm mass) This is totally new...his lungs have been clean and he has scans every 3 months last 3 years. Doctor said he will need to be switched to FOLFOX to…
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Scared Newbie
Hi everyone, Very scared about chemo...Had surgery on 10/18 to remove large mass from my colon. Mass and lymph nodes are cancerous. Going Friday for a second opion to Sloan Kittering. Very nervous and scared about chemo..Been reading to much and am getting freaked out... Any advice and help would be wonderful...Thanks
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kras genetic testing
Hi, How many of you are familiar with getting tested for a kras gene mutation? After emailing my liver surgeon on Friday about another issue on a recent scan and mentioning the chemo my oncologist has me on (Erbitux/Camptosar/Avastin), he asked me, "On a side note, have you been genetically tested to determine if you have…
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pamness...
Hi, I read that you were treated at Mass General. I'm going there for my reconnection surgery sometime at the beginning of 09. I was wondering who did your surgery? I've been referred to Dr. Cusack (sp??). Thanks, Elizabeth
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Lymph nodes in neck
Background: I'm stage iv. My last PET scan was Sept. 17 and NED. Friday before last, I had a slight sore throat, tender to the touch at the base of my neck. Last Monday, I went to my PCP and he said I had drainage, but no infection. My lymph nodes were swollen, so he prescribed an antibiotic and said if they didn't work,…
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Jana 11
It is with great sadness that I share the news that Jana passed away today. She was diagnosed seven years ago at the age of 32 and up until the last few months lived life to its fullest. In fact, I saw her at the end of May, and she was as bubbly and as beautiful as ever. Jana and her husband, Pete, were both doctors and…
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need help quick about chemoradiation
Hi, i am just wondering if all of you who got chemoradiation got continous 5FU 24/7 with radiation. I have one week down and my pump is getting disconnected on Fridays for the weekend. I have never heard of this and the NCCN guidelines say it should be 24/7, so i am concerned about this. Everyone else i have talked to has…
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Should I change to another Oncologist
Is it normal to hate your doctor? Perhaps I am just stressed and the doc just happened to be the one that I vented on. Long story short: I just completed 3 weeks of chemo via an infusion pump going 24hrs a day for seven days a week. When I first started the chemo the Onc said i would have the pump for 5 weeks. Since I was…
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Is there a difference?
Is there a difference between Lung Cancer and cancer in the lungs that stem from colon cancer?
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Just got back from
Well, just got back from a 4 day vacation to Lake Placid with my husband. It was great, for a little while I had my old husband back. He was given the clear from the surgeon to resume his eating (was on a low residue diet from surgery for 2 weeks). It was nice to see him eating again, and enjoying his food and not feeling…
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Metastasis
Hi Semi-colons! Just read this new study report and wanted to pass it on: www.cancerdecisions.com/100508.html peace, emily
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Hereditary Disease- Please inform family members
I just wanted to see how many found out that there was a significant amount of kin that had colon cancer in your family that you never knew about until you were diagnosed. I found out after my diagnosis that my grandfather had it at 74, but died from a heart attack at 76, and my G G grandmother died from "bowel blockage"…
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Need your prayers
Sorry for not posting the Friday Riddles the last two fridays, but I have lost my job and my main focus has been on find one. My last day was Wednesday, 1 October 08 right after I returned from our anniversary get-a-way. All prayers are welcome and I will do my best to try and post the riddles, but I am on dial-up at home…
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leg cramps with oxaliplatin?
Anyone experience leg cramps with oxaliplatin? I had an oxaliplatin infusion yesterday and I'm experiencing very sore calf muscles and calf cramps -- feels like I did a 50 mile hike (but I didn't). Called my onc. He hadn't experienced this before, but I just found a few references to this in an online search. I trust it is…
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Neuropathy anyone?
Hello! I have started to get neuropathy in my finger tips and feet. It is from the oxcoliplatin chemo. My oncologist stopped the oxi and continued to have folfox and folfuri (sp?) (Had 9 cycles of oxi)I just finished round 12 and am done with chemo for the time being. Just wondering if this neuropathy will go away and how…
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whirlwind
Recap: Mom dx '07 stage iv colon cancer. Surgeries: colon resection, omentectomy, ovaries removed, possible mets to liver and lungs. 12 rounds of folfox + avastin. CT scan, disease stable, 8 rounds of 5FU leucov + avastin. CEA began to rise, ordered pet scan. Pet scan, no lung nodules, no metastatic disease to liver,…