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need info on fap
i have 4 kids and was just diagnosied with fap. at first it was rectal cancer that was never staged. i am so confused please can someone help?i have been dealing with this for 3 years and have a ileostomy. can't get any answers from the doctors just test after test. they are doing a egd on 3/23/07, hope they don't find…
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UPDATE FOR MOM
COLONOSCOPY AND ENDESCOPIC WENT WELL YESTERDAY. NO SIGNS OF RECURRING CANCER, BUT DID SEVERAL BIOPSIES FROM THE COLON AND STOMACH. WILL HAVE TO WAIT 2 WEEKS FOR RESULTS....ALSO TESTING FOR A BACTERIA IN THE STOMACH NEXT WEEK ON THE 29TH. I HAVE READ THAT THIS IS TREATABLE WITH MEDICINE. HOPE THIS IS WHAT CAUSED HER CEA…
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headache after folfox 4 cycle
I had severe, splitting headaches from Friday to Tuesday after getting disconnected from my chemo treatment. Was on pain medication, which helped a little. Have others had similar reactions?
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Got CT scan results...
here we go....1 tumor shrunk 1 mil and the other one grew 1 mil. Dr. said that he is not concern . Plans ??? finish my 12 cycle, have a pet scan and if everything is negative...SURGERY !!! and this is what I have been waiting for,,,,on the other hand CEA dropped again to...3.3....started at 7.8..so I am happy....Bunch of…
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Prayers please
One of my friends from my local support group is having surgery today. Hopefully it will remove the remainder of her pancreatic cancer. She was diagnosed with stage 4 pancreatic cancer a few years ago. It had spread to her ovaries. That was removed. That's when they found out it was pancreatic cancer. She has since spend 3…
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switching from FOLFOX to Xelox
Just found out I am going to be switching from FOLFOX (5FU + leucovorin + oxaliplatin) to XELOX (Xeloda + oxaliplatin). I'm also taking Avastin. I am excited, since my FOLFOX regime involves having to stay in the hospital for 3 days (well, 2.5). I'm interested in hearing from others -- especially those who have experienced…
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Margo!!!!
Are you ok?
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Length of treatments
Hello all. My husband was diagnosed with stage 3 rectal cancer in late September and had two nodes involved. He had 6 weeks of radiation every day and 6 weeks of 5FU continuously. 3 weeks later he had surgery to remove the tumor and 12 inches of colon and a temporary ileostomy. 4 weeks after that he started Folfox…
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Is Folfox and 5FU the same?
My dad is scheduled to begin chemo real soon. He had his port put in yesterday. He will be taking 5FU only. Is this the same as Folfox? What side effects can he expect? He can't take the mixed chemos beause he had a stroke right after his colon surgery (although he is doing great and no disability). Any help or advice? As…
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CEA Levels
Hi again, Thanks so much for all your responses to my question about my tests. I went to the onc on Friday. He is not concerned with the jump from 1.5 to 1.7. My CEA level was 1.4 when I was first diagnosed. Also as we looked over my history, it was went up and down several times, but never above 1.9. I did ask about the…
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Advice re: Folfox
I am starting on a 6 month course of Folfox after Easter. The oncologist told me that my chances would be improved by 10% if I had just 5-FU/Leucovorin and by 15% if Oxaliplatin was included, so somewhat reluctantly I have agreed to the more toxic package. The Oxaliplatin and Leucovorin will be administered over two hours…
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Back from Boulder....Again!
Hi Everyone, Well, we are back from Boulder, and my mom was able to finish all 6 of her cyber knife treatments. All did not go well, and it was a very hard week for her. She was having significant pain in her back from the tumor on her left adrenal gland, and was given pain meds before each treatment. The treatments…
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Help celebrate Lisa Rose's 5 year CANCERFREE mark!
Hi everyone, Lisa Rose (aka Baby Lisa) celebrates her 5th year cancer free anniversary in a few hours and I welcome you all to join her, her loving husband Andy, and handsome son Andrew in this wonderous celebration. Baby Lisa, you know I love you and thank you for helping me to get to where I am today. I'm not sure I…
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NED!!!!!
I just returned from the oncologists' office. My PET showed NO EVIDENCE OF DISEASE! I didn't realize just how concerned I was until the relief came from the good news! We are going to continue with Avastin every 3 weeks, to keep me NED as long as possible! I was initially diagnosed with stage IIIB, had the resection,…
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Free Patient/Caregiver Seminar
Conversations about Colorectal Cancer: Finding HOPE (Healing. Options. Peer Support. Education.) in your Community presented by the Colon Cancer Alliance are free one day seminars intended for colorectal cancer survivors and caregivers. These seminars will offer information about the latest treatment advances and give…
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Update
Hi everyone I am doinjg well. I had my colon reconnection surgery on 27 Feb 07 and was released from the hospital on 7 March 07. While in the hospital I developed a small PE in the right lung and began the shots while in the hospital and currently taking Warafin 5mg for a period of 6-9 months. I also have a small wound…
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For Sale To The Highest Bidder-(fiction)
One well used male body with stage 4 rectal cancer.Presently have an undetermined life expectancy, during which time the Succesful bidder will be given carte blanche for any kind of alternate / conventional research they wish to perform in the interest of CURING cancer. All funds shall be donated to a non-profit trust…
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Clarifying CEA question
Questioning whether or not I can expect my CEA to keep dropping even though chemo stopped last month? I'm happy that it's still going down and is 1.8 but would like to see it drop further as it was only 4.8 with 5cmm tumor and 16 positive nodes. During the last 2 months it did drop by.1. Has anyone had the number continue…
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To Ron50
I know that your last post told us you are leaving us due to your marriage breakup and having to move. I know that you may not get back here to read this mate and I am sorry I was not here to say goodbye. We have been talking here for a long time my friend throughout good times and bad. I think we have helped each other…
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Just wondering
Does anyone know,for how long the CEA continues to move after your tx's end? (Assuming your one of those ,who's CEA is a fairly good indicator).
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JUST POPPED IN - THANK YOU ALL!
Hi, everyone - Sorry I have been AWOL. I am at the Coast Guard Academy attending Prospective Commanding Officer School. I have been without "real" connectivity for over a week (working on my Treo just doesn't cut it!). WOW! Baby Lisa (Lisa Rose) forwarded me all of the replies to her post about me achieving my 5-year mark.…
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Predicting Colon Cancer
Hi All you Awesome Semi-Colons! Here's an interesting article in keeping with Colon Cancer Prevention Month. peace, emily Does Inflammation Predict Colon Cancer? A study conducted over an 11-year period showed that people with higher levels of C-reactive protein (CRP) in their blood were more likely to develop colorectal…
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Palooza Time, Baby!
Alrighty folks!!! It's THAT time again! Time to be reminded of the PARTY OF THE YEAR!!!! September 12-16, 2007 we will be CELEBRATING LIFE in NASHVILLE, TENNESSEE!!! Everyone from caregiver, to survivor, to family member is invited to join us. We will be staying at the Hilton Hotel, downtown Nashville. There are only a…
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An Irish Blessing or Two!
To all my friends here. Happy St Patrick's Day. An old Irish Blessing: "May the Best day of your past be the worse day of your future" and (my personal favorite) "As you slide down the banister of life, May the splinters never point in the wrong direction!" I wish you all a Happy St. Patrick's Day and May God Bless you all…
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Time Issue
Thought I would ask your advice on chemo. I had surgery on 2/15. My onc appoinment is 3/27. I'm trying to get another app't with another dr. but it will be 2 works longer, making it approximately 2 months after surgery. Does that sound too long to wait to start the chemo treatments? Thanks.
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mind/body/sprit
read it yesterday.... Fighting Cancer With Mind, Body And Heart March 12, 2007 LIMA, Ohio -- The Greek word for Earth is "geo." And, in Greek, when you put an "a" or "alpha" in front of a word, the prefix turns it to the negative, Darrel Linder, a student of the language explained. The Greek word "ageos" literally means…
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Insurance questions
I don't know if anyone has any advice on insurance but I really have to vent. I went to my GP Dr in Oct and told them that I had seen blood in my stool so she scheduled me for a colonoscopy. In Nov I saw that Dr with my insurance and we scheduled the colonoscopy in Jan. Well my husband changed jobs and we switched to his…
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Sharing my good news!!!
Hi everyone! just to let you know that today I received a call from my uncologist office and was a nurse to tell me that the ct didn't show any cancer, I asked her to repeat, it twice, that it was clear,as some of you might remember my pet scan was fine too, and during my recent colonoscopy they found a polyp but was…
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In Recess
Hi to everybody, Happy birthday kanga (how do you manage to get a holiday). I'm basically posting to say that I don't know when I will talk to you again. The day I have been dreading has finally arrived. I am moving out of my home into a little two bedroom flat. I still have no idea why my wife has ended our marriage but I…
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MOM/FRUSTRATED
HELLO, I AM A NEW MEMBER AND HAVE SEVERAL QUESTIONS IN REFERENCE TO COLON CANCER. I KNOW THIS SOUNDS STRANGE, BUT FORTUNATELY MY MOM GOT SICK AND WE TOOK HER TO THE HOSPITAL WHERE WE FOUND OUT SHE HAD COLON CANCER---THEY REMOVED APPROX. 40% OF THE COLON AND EVERYTHING LOOKED GREAT. --NO SIGN OF SPREADING---NO CHEMO (STAGE…