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Caregivers

Archives for December 2011

Everybody loves cute puppies
My elderly mother is dying, and she's no longer able to read or pay attention to TV very well, and conversation can be a challenge. So one day this week while my brother covered for me, I bought a 2012 calendar with really cute puppies on it. What a huge, huge hit! We spent a half hour goobing over all twelve puppy…
How long does it take to die?
Hello all - My mom has been in a hospice facility since december 6th. She has struggled with cancer for the last 16 months and she has steadly declined. Her last diagnoses was carcinomatosis which they gave her six months to live. We are at six weeks. She stopped eating on december 18th and has had no measurable liquids…
"Losing It"
Ok, I really need to vent because I am starting to lose it! I am hoping by actually writing this out I can ease my stress & anger.... How can insurance companies say things like a PET Scan are not medically necessary???? In the 2 1/2 months since my husband was diagnosed with Stage 4 Stomach Cancer that has already spread…
Grandma refusing Dr. Appts.
My grandmother had Lung Cancer in 04 and is in remission I believe is the term. But now she has another health issue. She has been DX with Severe Pulmonary Hypertension. Dr. says it will lead to heart failure (she is 76) and though there is a density in her lungs (they believe it is scarring or infection) that the new PH…
Need advice
Folks, I am new here....need help,, Had a swollen lymph node left side of neck.... After antibiotic treatment for possible infection, no change.... Had chest xray for possible other swollen nodes....no others.. Had swollen node removed....Squamous cell detected.... went for PET scan....found location in left…
My Mom has been sent home to die
Mom was sent home to die three weeks ago. She is getting weaker and weaker. Her bowels are shutting down. The ascities are really bad. She won't let them drain her, because she knows the anemia will get much worse, and it's already very bad. I hate this. How does anyone cope with this? I don't know how I can do this with…
My Mom has been sent home to die
Mom was sent home to die three weeks ago. She is getting weaker and weaker. Her bowels are shutting down. The ascities are really bad. She won't let them drain her, because she knows the anemia will get much worse, and it's already very bad. I hate this. How does anyone cope with this? I don't know how I can do this with…
ISO Experiences with Zoloft Withdrawal
So I decided it was time to go off Zoloft - I'd been on it since August for PTSD/Anxiety/Menopause (not sure what was causing the panic attacks, but the cure was the same for all, according to my doctor). I'd been thinking about doing it over the holiday break anyway, and then I ran out and couldn't refill for more than a…
I'm 26, and so overwhelmed
Hi all, This is my first time using an online support group. My mom, 66, was diagnosed with pancreatic cancer in August. Thank god it hasn't spread anywhere else yet, but she just moved in with my sister. I'm a grad student at a nearby university, but I don't have a car. My sister and I are taking care of her at home now.…
Thank Goodnes for CSN
Hi all caregivers, Today I was hoping not to be feel so alone today, I know I should be grateful to have my husband with me for Christmas because there were so many moments that I was on the verge of losing him in the last two months. Yes I am grateful but first time since I met him I had to have Christmas without him at…
Still Debbie Cakes wish I could send you all some
Sometimes it seams like I am living a nightmare that never goes away. I fear to say somethings. I look at the gladd as half empty. Sometimes I am so depressed I forget what it is like to laugh. Some times just it is like fighting a battle that no one wins. . but then my hubby does something silly or odd for him like buyig…
All I do is cry
I really miss my Mark. We had the services on Friday the 16th in the cold air of Ohio. I was surprised to see at least 30 people there as it was so cold. Also at his "celebration of life" there were about 100 people there. It was good to meet and greet everyone in Mark's life. Most everyone told me that "Mark waited 49…
When do you call hospice?
Any should I call hopice? Things are getting worse not better? Not eating, no bm, more pain.
Got hit again...
We have been to hell and back is my saying these days. We have had so many ups and downs in the last two years it is truly a wonder that we are still here and somewhat sane.. I think anyway. After being told no transplant then yes transplant, then no again then treatment for the past year to get back into criteria we were…
Mom is actively dying
The first thing we learned from our hospice nurse was that death is an individual process, as unique as the person themselves. My mother has always needed to control everything, and giving up control has been what the last several days have been about. Our hospice nurse was more concerned about Mom’s sudden disinterest in…
Need advice here.....What should I do?
Christmas weekend is coming up. We suffered a major dissapointment when we found out son from NC can't come down. Son in GA and Daughter in FL are coming Christmas Day. We originally thought that Son in GA was going to stay a few days. Yesterday, he told his Dad that they were coming for the day only. Something about the…
Take Care of Yourself - Reminders
It's been a while since I bugged folks (and invited you to bug me). If you have been putting off the dentist, OB/GYN, yearly check up, dermatologist, mammogram, colonoscopy, depression screening (hah!) or other routine maintenance, make your early New Year's resolution to schedule them. It might help to post such…
My son, the caregiver
My son was 13 1/2 when he had the burden of being a caregiver to my husband - he had the issues of being home alone a lot when we were at the hospital, taking care of his father when I had to be out, having his father lose 45 pounds in about 2 months and seeing him very ill and on the edge of giving up. Once my husband…
Does these side effects sound familiar to any one???please..
Many of you have watched your love ones suffer with side effects. Can you help me identify this? Everyday my husband gets weaker and weaker. I thought that he was getting better. I may sound desperate. I am sorry. He has stage iv bc with bone mets-all of his bones. He had a recurrence in 2009. Since then he has lost about…
I was a caregiver and now I am not
My Mark died on November 14, 2011 and I miss him terribly. I just finished a powerpoint presentation for his "celebration of life" after the graveside service. I am having awful issues because he is gone. I know I should probably be posting this in the other board but I have been here for so long that I feel as if I know…
Our new normal is not easy
My husband has been sick for 4 years with limited lung function and in the past year he has gone down hill fast and is pretty much house bound. Just early 40's and our kids have gotten used to daddy being sick and not well so he can't play, and we all know he gets short tempered on his bad days, but now they are all bad…
Just got rug pulled UPDATE.....
11/7 PET scan after year fighting colorectal cancer. 11/14 Chemo doc says husband has new liver/lung/prostate cancer, must start different chemo right away. We make appt. with Onc. 11/17 Onc concurs, says it's inoperable, chemo is only hope of buying some time. We make appt w/surgeon for port. 11/21 Surgeon says "wow, this…
ashamed
First of all I'm greatful for a place to say what is on my mind that is safe. It is sort of strange that it is here that I think people can relate to how I'm feeling sort of. I'm feeling ashamed of the thoughts I've been having lately. My shame which is saddness stems from hopelessness if that makes sense. My mom, 81, has…
Jpeg feeding problems
JPEG feeding problems. My husband for 2 years has been on Jevity feeding with a #20 tube. The Jevity often thickens, even though he shakes the cans well, and then overflows causing a big mess and him covered in the sticky mess also. Very discouraging. Has anyone had this problem? Any ideas what we could do to prevent this?…
I have a question about Precertification?
I discovered that my husband's chemo treatment did not get paid for for the past 2 months by our insurance company because the dr office did not obtain precertification. Has any one experience this? The insurance letter stated that the dr could not charge us for it. I am wondering if this is why suddenly my husband gets a…
Hi Friends
Just checking in on you all. I pray that you all are holding up. I am a little down...watching husband...WHEW! Dr. took him off chemo since hospital scare. So that will make about 2 months off. Should I be scared?
Oh My, Where Do I Begin?
This is my first time posting. We moved into a new home, and two weeks later, my Fiance was diagnosed with Stage IV stomach cancer. I'm feeling so overwhelmed. He is having such a hard time. Had chemo for the first time last Thursday. Nausea and vomitting intensified five fold and he had to be admitted into the hospital.…
Father Diagnosed with Stage IV Colon Cancer
I hope I am posting in the right category. I just found out last evening that my father, age 61, has been diagnosed with stage IV colon cancer which has metastesized to his liver and lungs. They are doing a brain scan today to see if it has reached that far. I don't know what to do. My parents live in the Orlando area and…
♥ Have a great recipe to share?
In the spirit of sharing and gratitude, a website has been set up where recipes can be entered, viewed or downloaded by members. The recipes don’t have to be holiday oriented and can be anything you enjoy and would like to share. Thanks for contributing! Clickable Link: ♥ Recipe Sharing Project…
I do no know what to do
Okay-family of 7-We are mean to each other So I moved to Florida-Love my life-And last time I visited my mom I had my sisters jump me-Kept my mouth shut-Till I could not take it anymore-Just wanted to come home-Now Mom has Kidney cancer-It Kidney cancer took my husband 2 years ago. So I talked to friends and posted on face…

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